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Adenomyosis Diagnosis - Hysterectomy Scheduled Adenomyosis Diagnosis - Hysterectomy Scheduled

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Unread 02-11-2012, 04:29 AM
Re: Adenomyosis Diagnosis - Hysterectomy Scheduled

Deanna, I know how you feel about feeling to young for having to make this type of decision, i turned 28 a few weeks before having to make this decision. my prayers or with you through this.
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Unread 02-11-2012, 09:52 AM
Re: Adenomyosis Diagnosis - Hysterectomy Scheduled


I feel totally out of control too with all of this. My date is 4/3 for adeno also. I'm glad to know I'm in good company and not alone. I'm very scared! But I'm also glad to hear that's normal!

I'm going to keep reading and I'm glad to know this group is here.
Unread 02-11-2012, 09:01 PM
Re: Adenomyosis Diagnosis - Hysterectomy Scheduled

I too was diagnosed with adenomyosis. I'm 35 years old and a mother of three. My husband works 2 jobs and I work full time. I'm hoping that I can get back to work after 2 weeks (desk job). I'm scheduled for March 15th and am still in a place of sort of "shock". I looked at all the alternatives and agree that the hysterectomy is the best solution for my problems. Being a woman is tough, being a mom is harder and the combination of the two when a problem arises is overwhelming. Good luck to all of us in the next few months. I'm going to have to zone into a mental calmness that it is ok to live in a messy disorganized home for a while.
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Unread 02-12-2012, 01:28 AM
Re: Adenomyosis Diagnosis - Hysterectomy Scheduled

You all are amazing. I was quickly reading the replies this afternoon, and started crying.. had to pull myself together for company that was coming over, so I decided to read through them all carefully tonight. I wanted to quote every single one of you in this post, but thought it would get long and confusing!

I would definitely explain my mental state these last couple weeks as being in a state of shock. I have to say I didn't get much of anything done, and I felt very much like I was walking through fog. I know that, physically, this will be a good thing.. I know. And I should be happy about not having visits from "Aunt Flo," anymore.. but I still find the tears welling up and needing to choke them back quite often. It's just a lot to take in. I was finally able to get honest with my DH last night and tell him how I feel. Until then, I don't think I had the words to express it. I feel like I'm letting my family down.. like somehow this is my fault (absurd, I know), because I won't be able to "do my part" in maintaining our household for several weeks following the surgery. And knowing in my head that this isn't my fault, but still feeling guilty. My DH says it's just because it was so unexpected and it is my fierce independence that is being taken away.. but just for a short time. In the scheme of things.. it's a short time. And so many have posted about how it's changed their lives for the better, that I need to focus on that!

I'm in the list-making mode now of all the things I need to do before the surgery. Not guaranteeing that any of those things will get done, but making the list seems to make me feel better.

Again.. thank you for all the tips.. shopping for those granny panties
Unread 02-12-2012, 01:50 AM
Re: Adenomyosis Diagnosis - Hysterectomy Scheduled

Originally Posted by tink5113 View Post

I know from experience, it is a very hard decision to make and then on top of it not knowing if the surgery is going to be done laproscopic or abdominal. Thats always scary. My doctor was very honest with me, he told me up front that he would not know until he went in with the laproscope to start. He said he would do everything he could to keep my surgery a LAVH but could not guarantee it.
Was your endometriosis on or very close to your uterus? I have been having pain on the lower right side of the pelvic bone in addition to the horrible monthly pain. My doctor told me that *if* it turns out to be endometriosis, she would most likely have to do an abdominal hysterectomy, but (same as your doctor, it sounds) she would know know until going in with the laproscope.

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