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Hysterectomy or Ablation for Endo and Why now is the time Hysterectomy or Ablation for Endo and Why now is the time

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  #1  
Unread 02-10-2012, 10:27 PM
Hysterectomy or Ablation for Endo and Why now is the time

I'm so confused! Scheduled for hyst on Feb 21, but not sure I want to go through with it. Really scared. At my pre-op, my dr. offered Ablation, however, due to an ovary that has three cysts, that will have to be watched, frequent ultra-sounds, etc. It can collapse and then begin to die and then this would be a real emergency requiring a hysterectomy. So in a way, it seems that I might be destined for a hyst one way or the other.

Practical reasons to have it now:

I have insurance right now.
My mother can come and take care of my child.
I'm not getting any younger and it might be harder later.
I'm not working right now and don't have to worry about getting time off.


Reasons not to:
Fear of death, leaving my son behind alone.

Does anyone have any input related to ablation/hyst. Does anyone else think I'll end up having to get the hyst in the end anyway and I might as well get it over with? I'm so freaked out about all this. When I first found out my dr. recommended it, I was excited to get this problem solved (extreme bleeding and pain). But then the fear of risks started to take over. I have lost so much sleep over this, wondering if I should soldier on, or try ablation, or just bite the bullet and be done with it.
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  #2  
Unread 02-10-2012, 11:24 PM
Re: Hysterectomy or Ablation for Endo and Why now is the time

I don't have cysts, but I do have fibroids. I had a NovaSure ablation a year and a half ago, and it didn't work. My hyster is next week. Doc thinks I also have adenomyosis. I'm still on the pill and pretty much bleeding non-stop for the past free months.

I'm not afraid of dying, just of the whole process. But at this point with the cramps starting all over this week, I'm ready to get it over with.

Good luck.
  #3  
Unread 02-11-2012, 05:02 PM
Re: Hysterectomy or Ablation for Endo and Why now is the time

I had a hyster scheduled in Dec, got cold feet and canceled. Then decided I wanted to go with ablation only to find out I have adenomyosis, so ablation isn't a good option for me. My doctor, who is the best Ob/Gyn in my city (honestly) and I trust a lot, told me she isn't a huge fan of ablation. She said that it works really well for a small set group of women and then everyone else ends up getting a hysterectomy. She was sharing her experience with me, and not the stats you read. Based off of her patients, she thinks too many end up going hysterectomy route any way.

I have a friend who had ablation for endometriosis and did really well. It controlled her heavy bleeding well and she does cramp, but not severely. She now is starting to have enough problems that a hyster looks eminent, but she doesn't regret the ablation because it gave her 8 years without a hyster.

My doctor's advice is ablation is very specific to each woman. It depends on her body, her symptoms, her issues whether or not ablation will work.
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  #4  
Unread 02-11-2012, 05:27 PM
Re: Hysterectomy or Ablation for Endo and Why now is the time

That's very helpful Abagayle, that is my gut feeling on it too, based on what I've read from women here and other forums. My Dr. suspects adenomyosis for me too, would you elaborate on why ablation is not good for that? My Dr. says you can't confirm that until after the fact when they do the pathology. I'm strongly leaning in the hyst direction, but really scared. You are getting yours in March? I you more at peace with it now?
  #5  
Unread 02-11-2012, 05:48 PM
Re: Hysterectomy or Ablation for Endo and Why now is the time

I had an ablation in June '11, instead of getting the ablation I ended up with a D/C due to the size of uterus and fibroids, doc wasn't able to do it. Tried birth control pills for 3-4 months. Finally had to have a hyst in Dec. I feel much better! So glad I did and my only regret is not getting it done instead of the ablation. I had HUGE fibroids and adenomyosis, so basically nothing was going to work for me. Work with 2 ladies that had an ablation in the last 2 years, one it didn't work and is sched for a hyst this coming up summer. The other one it worked well enough, light spotting but now the spotting is starting to pick up just a bit so she is worried that it is no longer working. On the other hand I had a friend that had it done 4 years ago and it worked wonderfully.
  #6  
Unread 02-12-2012, 01:01 AM
Re: Hysterectomy or Ablation for Endo and Why now is the time

My ablation for endo was a nightmare and it did not do anything to help. having my Hysto on Monday! The success rates with ablation are not very good.. Wish I would have read up on that before I did it!
I have tried everything you can try to treat endo. The only thing that has worked witout making me crazy is pregnancy and nursing..And I'm done there! I'm very lucky and blessed that I have 4 kids (2 are twins) and I have very bad endo. 1 tube, 1 1/2 ovaries Lupron helped with the pain and bleeding, but i was a hormonal nightmare not to mention the weight gain, acne, mood swings, sweats, depression....... no thank you!!!!! getting everything taken out TAH. hopefully they will get most or all of it.
  #7  
Unread 02-12-2012, 06:42 AM
Re: Hysterectomy or Ablation for Endo and Why now is the time

If the adenomyosis has grown deep enough into your uterine muscle then the ablation won't touch it. What happens is a seal is created, as ablation is supposed to do, but endometrial lining is trapped behind that seal, because with adenomyosis the lining is thick and into the muscle where it doesn't belong. Sealing the lining in like this causes a lot of pain, worse than the adenomyosis, and bleeding. The body tries to sluff off this lining as it would in a period, but it is trapped.

I did a ton of research and agreed with my doctor, if adenomyosis is suspected then I'm not even willing to give ablation a try. I am worried about how the hysterectomy will affect my orgasms, so that is why I got cold feet. I knew I wouldn't forgive myself if sex was unenjoyable and I had had the surgery just for benign bleeding, but now that I know I have adenomyosis, I'm going into this hysterectomy with no regrets. I tried the pill and it didn't control my bleeding, plus it made me nauseous and depressed. I wish I could keep my uterus, but the cramps, bleeding, and back aches will only get worse. My case seems to be progressing pretty fast. I have three children (ages 5, 3, and 2) and it's really hard to be a good, happy, energetic mom with this. I need to take care of it. My mom, doctor, and husband all think I need the hysterectomy. I was just dragging my feet. But now I do feel at peace with the decision.
  #8  
Unread 02-12-2012, 12:01 PM
Re: Hysterectomy or Ablation for Endo and Why now is the time

I'm in the bracket of the ablation didnt work.

I have fibroids and endo, cysts, and suspected adenomyosis. I didnt know when I had the ablation a year ago, it would do nothing for me due to the possibility of adenomyosis.

I'm looking forward to no more pain, no more heavy omg bleeding.
  #9  
Unread 02-13-2012, 12:20 PM
Re: Hysterectomy or Ablation for Endo and Why now is the time



It is okay to be scared and confused. A hysterectomy is a big deal, especially with endometriosis in the picture.

I am actually very confused about your options. An endometrial ablation will not treat endometriosis and will do nothing for any ovarian cysts. An endometrial ablation removes the lining of the uterus in an attempt to stop bleeding issues. The procedure is done completely in the uterus so it can't help with cysts or endometriosis which exist outside the uterus. I am assuming the ablation option is being offered for the bleeding issues rather than for the endometriosis or cysts. If you go with the ablation, will your surgeon also do a laparoscopy to try to clean the endometriosis and address the cyst concerns?

Have you had a second opinion about what is best for you? Have you ever consulted with a doctor who specializes in treating endometriosis? Even a hysterectomy is not a cure for this condition. The key is the careful excision of the endometriosis implants, not the removal of our reproductive organs. As long as some endometriosis exists, it can cause issues, no uterus or ovaries needed. You an learn more by popping over to our Endometrisois Support forum.

Also, if you do have an issue with a cyst or ovary, it wouldn't be an emergency hysterectomy you would need. It would be an oophorectomy--removal of the ovary. It is not usually necessary to remove the uterus for an ovarian issue.

I do not recommend anyone going into OR for a hysterectomy if she is not 100% sure it is the right option for her. There are too many risks and long term side effects involved. Additionally, I was one for whom the hysterectomy was not a happily ever after situation so I know first hand how the complications can affect one physically, emotionally, mentally, and financially. I also know first hand that a hysterectomy does not cure endometriosis.

Personally, I suggest you postpone at this time until you have done some more research, gotten at a second opinion, and determined if this is definitely the best choice for you and your particular diagnoses. You don't want to live with regrets and this surgery cannot be undone.

  #10  
Unread 02-13-2012, 12:30 PM
Re: Hysterectomy or Ablation for Endo and Why now is the time

My Dr. has told me that we can do ablation for the bleeding issue and that a hyst will not fix the endo, but in 60% of women it does resolve it. In my family, this has been the case. My mom, aunt, both grandmothers, other aunt...all went through it and it did resolve the endo. I think I've pretty much ruled out ablation. The only thing holding me back is fear, I think it probably is my best option. I don't have an endo specialist available to me, by the way. I have to do something--this has taken over too much of my life. BC pills and hormones are not advised due to a lot of cancer in my family. Feeling frightened and discouraged.
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