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No Success Stories? No Success Stories?

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  #1  
Unread 02-11-2012, 12:07 PM
No Success Stories?

I've been on this board for a few months and I get depressed each time I read. It seems that the majority never feel quite right after a hysterectomy. They are never really back to normal. Can someone point me to the direction of stories where they had more energy, they were more active, they accomplished more AFTER surgery?

I feel like when I talk to people I have to "promote" why the surgery is good for me. I don't want to lose my hair, have bone loss, have mood swings, etc. but this is all I seem to be reading. My dr. tells me I am crazy ... yet the people on the board say otherwise.

I hope I am not offending anyone because this is not my intention.

What is the balance?
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  #2  
Unread 02-11-2012, 12:20 PM
Re: No Success Stories?

Inevitable

I'm sorry you've not come across any success stories yet - but they are here! The "problem" with any support forum is that most members only post when they need help. Those who've recovered well (the majority) have moved on with their lives and generally have no need to post.

Whilst you're waiting for replies (we often have threads like this and they attract many encouraging responses!) you may wish to check out Our Hysterectomy Stories forum, if you've not already done so. Also, please visit the Beyond the Land of Hyster forum where you'll find many uplifting threads!

I'm sending positive thoughts!

  #3  
Unread 02-11-2012, 12:24 PM
Re: No Success Stories?

I am 7 months post op and feel 100 times better now. The road here was difficult but it was worth it. I posted alot in the beginning to get support when things were difficult. This website is great for that and there are many of us that are past the negative and offer support to those with questions and complications. In general people seek out these websites because they have concerns, complications and need help which is why the negative outweigh the positive. That doesnt mean there isnt a ton of woman out there that havent had a positive experience. They just didnt need to seek support. Just something to keep in mind when reading things. Use what you learn to your advantage, ask questions and make sure you are satisfied with the answers.

Good luck
Tracy
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  #4  
Unread 02-11-2012, 12:37 PM
Re: No Success Stories?

I think part of the issue is those who have had little/no problems have moved on and are no longer posting here. I posted yesterday on the post-op board that I was now 8 weeks post op and gave a little update. It did not illicit any responses and is now already 4 pages or so back. Yet if someone posts about a difficulty there are immediate responses. I really see no reason to keep posting about my positive result if there is no need. If someone was asking a question specific to my surgery/recovery based on my update then I would gladly answer. You know what I mean? I feel silly coming back to the post op board and reporting that I am doing well only to get no response or questions. I try and read through other posters general questions to see if I can offer anything new but honestly I am starting to see so many repeat questions that I am getting a bit frustrated. It seems some people are not that willing to search for relevant threads but to rather start a new thread with the exact same question that might be less than a dozen threads down. That is however the nature of the beast. I see it on every message board I frequent (travel, recipes, weight watchers).... it's the same/frequent threads over and over. I just don't bother repeating myself anymore. I have also frequented the pelvic floor forum to see if I could add anything there. Many of my posts go without response there too. So there's my opinion, also not meant to offend anyone. Now that I am back to work part-time and doing more and more around the house there just isn't the need/time as I am not looking for any answers...

I will tell you that I feel much better now after my surgery than before! My uterus was grade 3 prolapse and was trying to leave on its own. I also had grade 3 cystocele and grade 2 rectocele. I am terribly nervous about re-prolapse but will just have to deal with that fear. I still get tired very easily but it's only been 8 weeks. I am getting stronger every week... not always day by day but week by week there is improvement.

Good luck to you!
  #5  
Unread 02-11-2012, 12:43 PM
Re: No Success Stories?

Inevitable - I'm 12 weeks post-op and feeling great! I haven't felt this good in years and am looking forward to all the outdoor activities I've avoided because a toilet wasn't readily available. Nothing puts a damper on an outing more than persistent heavy bleeding.

Fact is, I spent an entire day with a friend visiting nurseries and picking out plants for her garden just last weekend. Not something I would have easily done before surgery.

Like Pooodle said, those of us who have had successful surgeries don't post much on the post-op forum (or at least don't start threads) because we really don't need support. Some of the date club treads probably have more positive stuff early on, but as women heal, they tend to drop out and those with long term issues are the ones who continue to post.

I think the only good thing post-op forums are useful for, if you are not yet post-op, is to gain an understanding of the potential problems and drawbacks to this surgery. It certainly isn't a cake walk.

The best advice I can give you is to be sure to follow post-op instructions very carefully, no matter how good you think you are feeling. From what I have read, it seems the largest percentage of post-op problems are due to overdoing it too early. Recovery can be boring, but like another sister likes to say, "Bored and stir crazy is better than repair surgery." Can't argue with that.

I wish you the same uncomplicated surgery and perfect recovery I have had! CHEERS!
  #6  
Unread 02-11-2012, 12:46 PM
Re: No Success Stories?

I know that I havent had mine yet...6 days to go, but I feel as though I will be a success story. Any life that doesn't constantly involve pain to the extent I live with now... its a better life. I can deal with anything else that may come. That is my prayer. A life without pain. I have a high tolerance for pain, but some days it gets to me. I'm crabby, and unhappy and completely depressed.
  #7  
Unread 02-11-2012, 12:55 PM
Re: No Success Stories?

I have read several stories on here that were positive. There is an area where you can select the way your surgery will be done & just read those. The majority were positive. I stay clear of the post op thread @ this point. Also I seen this same story on serveral sites about this girl saying all her hair was falling out, skin was sagging, had aged 40 years in 1 yr (or some other relatively short period of time.) Just bc you read the same story on multiple boards does not mean its happen over & over. The wording was sooo similar i am most certain it is the same poster. And believe it or not there are people out there who like to scare people. My advice is to look around like web md or wikipedi and see what the side effects are. If you really feel the need look up actual statistics. That will give you a better idea of how often it actually happens & will help put it more in perspective Hope I have helped a litte. I am scheduled for this coming tuesday. Had to go to the dr for pink eye this morning and my throat feels wierd so I'm praying I am well enough to get it done. I have an 18 month old with chronic health probelms & have been in the peds office 3 times in 2 weeks & have only had 14 hrs sleep total in 4 nights....it was bound to happen I guess
  #8  
Unread 02-11-2012, 01:07 PM
Re: No Success Stories?

Go to "Our Hysterectomy Stories" and select the hysterectomy type you are having to read post-op stories from those having your type of procedure.
  #9  
Unread 02-11-2012, 01:34 PM
Re: No Success Stories?

Inevitable:

I am three weeks post op and doing well. I had the DaVinci robotic hyst which i would suggest to everyone, if they can. I kept my ovaries and so did not go right into menopause, which i would suggest also, if you can. I feel good and am not having a lot of problems. I dont feel much different than before, except i lost 6 pounds of fibroid/uterus. My outlook is good and i cant wait for 6 weeks and i get cleared to exercise. I have that Just Dance on the kids Xbox and I cant wait to start dancing like a crazy fool, or like a mom who wants to lose "more" weight. Dont worry, you will be fine!
  #10  
Unread 02-11-2012, 01:39 PM
Re: No Success Stories?

Irish wife: Keep the ovaries if no history of cancer! I think it makes a smoother transition into menopause instead of being smacked in the face with it. You have such a positive attitude im sure you will do great!! I had the DaVinci Lap, Supracervical, and am healing well 3 wks postop. Its big surgery but you will be much happier without pain, when you are done.
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