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Second thoughts now that things have calmed down... Second thoughts now that things have calmed down...

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Unread 02-14-2012, 01:33 PM
Second thoughts now that things have calmed down...

I am hoping I am not alone here with this feeling but now that I finally have a secured surgery date...after being bumped 5 times...I am starting to second guess myself. Although I have been through hell this past year...all of a sudden...I don't feel so bad! No bleeding since beginning of December...random spotting after heavy activity or exercise...cramping even seems under control. Night time seems to be when things get iffy...but am no longer able to distinguish back pain from gyno issues. Maybe they are all connected? Has anyone had the surgery and the Dr's find NOTHING when they get in there? As in no logical explanation for the horror and pain? I know it is my mind playing tricks on me and that I am always my own worst enemy but I am starting to get scared of a "watch out what you wish for" situation. The only thing the Dr can assure me of is that I will no longer have bleeding which is understandable as their are no guarantees in life. Is it possible for the CAT scans, MRI's and U/S can be wrong? Do they miss things?

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Unread 02-14-2012, 04:03 PM
Re: Second thoughts now that things have calmed down...

The doctors who perform this surgery deal with the diagnostic results every single day. If you have had all of those tests, then it's highly unlikely they are wrong. However, if you are unsure, you really should get a second opinion. There are a number of sisters who have questioned whether they needed the surgery AFTER the surgery was performed. That is too late. However, if you are still having symptoms that may be due to your gynecological problems, then things aren't completely resolved. It just may be better than it was before.

I had a similar experience, only without the surgery date. My doctor referred me to the gynecologist, and then all my symptoms disappeared, so I cancelled the appointment. It wasn't too much later than everything returned with a vengeance. I then had to reschedule, and had the procedure later than would have otherwise happened.

It's good to ask all of your questions, and I hope you are able to find your way to a decision that works for you.
Unread 02-14-2012, 04:11 PM
Re: Second thoughts now that things have calmed down...

Thanks Carole...the Doc that is performing my surgery is my second opinion Doc. I asked her straight there any chance that these issues will just resolve themselves? To which I received a firm"No". I realize that hysto's will not be covered by insurance if they are not thought to be medically necessary. Knowing my luck, I would cancel and end up in the ER with blood collecting in my uterus again. I just find it strange that I stopped bleeding when it was soooo bad. And that none of the diagnostics have turned up anything. That's why I they sometimes find out differently once they "get in there"??
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Unread 02-14-2012, 04:33 PM
Re: Second thoughts now that things have calmed down...

After I had a CT scan, my gynecologist told me that I had a large fibroid and a pelvic mass that was most likely an endometrioma. When I was at my family doctor for a different issue, she accessed the CT report and read it to me. That report was very general in what it said, and mentioned nothing about the endometrioma or fibroid. It made me really question what was going on. I talked with my daughter about it (she's in med school), and she pointed out that the people who are doing the diagnostic reports have to limit the wording to their area of expertise. However, the specialists are better at interpreting what is going on. The surgery confirmed exactly what the gynecologist had said before the surgery. He deals with these reports every day, and so with the report and his clinical assessment (my history, his bi-manual exam and all of my symptoms), he knew what was going on.

That doesn't mean that there aren't sometimes surprises, but usually that would be finding that the problem is more than they anticipated, not less. For me, the endometrioma was a lot larger than they expected. Still, the surgery was the same treatment, regardless of what else they found.

I hope this helps.
Unread 02-14-2012, 05:48 PM
Re: Second thoughts now that things have calmed down...

I'm doing the same thing-I'm scheduled for surgery next week, taking uterus and one ovary. I have a good week and question whether I'm making the right choice. I've had 3 opinions and all agree I should go through with surgery BUT I'm only getting an 80% chance my pain will stop. I have 3 bad weeks a month and have no doubt about my decision but its that 4th week that I think what if this isn't really the problem. I've had MRI, ultra sound and Laparoscopic surgery done as well. All come back showing nothing but Dr is thinking possible adenomyosis. I know the schedule of my pain, 3 weeks before period starts my life becomes hell. Nonstop pain, terrilbe bloating and weight gain and pure evil mood swings due to hormones and being in pain. I know they all fall into play with my period but when I'm not having the pain I question it. You're not alone at all! It's just that good week that sends me into a tailspin! I have exactly one week till surgery and my pain kicked in yesterday so I'm much more confident that I'm doing the right thing. Hope you find peace of mind no matter what choice you make!!
Unread 02-14-2012, 06:24 PM
Re: Second thoughts now that things have calmed down...

I confess that I was not in constant pain before my op, but for years my periods had been getting worse, with the bloated tender tummy, and the dreadful flooding through 2 pads in 1 hour! Life was pretty grim, because the periods, and discharge in between made it seem constant.

The gyne felt my abdomen and said I was the equivalent of 10 weeks pregnant, probably with fibroids.
She offered me a hysterectomy, or an ablation. For 98% of women, they never have another period. I was at the top size of uterus but was hopeful that it would work.

My thoughts at that time was "How will work cope without me?"
Advice from a friend at work was that, if work was my greatest worry, I was not ready to go for a hyst. As you guessed, the ablation did not work and the periods carried on. More irregular, the longest gap being 105 days so I thought I was OK at last, - but still with flooding.

After 2 years, I went back to my GP. Both her, and my surgeon, recommended a hyst, and by now I was SO ready for everything to stop.

I am sure that it was the best thing I could do for me.
My GP printed out the histopathology report for me to read, so I could see what the surgeon found once she got in there.

I have not felt so good in 7 years.

I don't know whether any of that helps you with making your decision, but my prayers are with you through this difficult time
Unread 02-15-2012, 07:32 AM
Re: Second thoughts now that things have calmed down...

Guess who woke up cramping and bleeding?? All I have to do is say it out loud...that things have calmed down and God sends me a friendly reminder! No doubts now...I am done and March 30th cannot come soon enough. Thanks Ladies, having people with similar experiences to talk with is so much better than feeling like a whine bag with those who have no idea how horrible things can get!
Unread 02-15-2012, 07:40 AM
Re: Second thoughts now that things have calmed down...

My TAH-BSO was the result of cervical cancer, so I didn't really have any symptoms of that, but I will say that once I had my date set, I didn't have a hot flash or a night sweat for a few weeks!! WHAT?? after 6 years of them being my CONSTANT companions...I swear - our mind and body KNOW, and work together to plot aganist us. On the way to the hospital, my ovaries, usually extremely quiet little girls, were singin' the blues for all to hear - SO painful. They KNEW.

Unread 02-15-2012, 07:52 AM
Re: Second thoughts now that things have calmed down...

Thanks so much...all of you. I have been through so much this year medically and this will be my 4th surgery this year. Just yesterday I was telling my sister that things seemed to be leveling off so maybe I should wait and she threatened to club me in the head!!! She was with me during my last hospitalization for sudden onset of pain where an emergency hysto was discussed. Now, I have a new fear...I know...somebody smack me...but what if the pain gets so severe and I can't deal? My surgery has been postponed to accommodate two Dr.'s schedules and I don't want to mess with that. Might have to look to heavy meds for the next 6 weeks. Such a doomsday conspiracist!! But you lovely ladies have all been there, right?
Unread 02-15-2012, 07:53 AM
Re: Second thoughts now that things have calmed down...

LittleStar31, sorry for your discomforts this morning. I too had second guessed the need for a Hysterectomy. See, my issues were not as bad as many of you girls on here. I had a very bad episode one day over a year when I was at Target shopping. I was wheeling my cart around and suddenly I felt a horrific abdominal pain and lower back pain like I was about to have a miscarriage, and I was not even pregnant. I was so scared I'd pass out in the middle of the shampoo isle! It started to lessen enough for me to move on out of the store and go home as fast as I could drive within the limits. I chucked it up to some form of PMS. 7 months later it happened again when I had just gotten into work. It was every bit as horrific as months before, so I went home in tears as soon as I could drive. Long story short, it never happened again but last Nov. my OBGYN asked for an ultrasound finding I had a huge fibroid the size of a 4 mth pregnancy. He immediately talked to me about a hysterectomy since at my age (52) I would not have anymore children. I agreed and we scheduled for after the holidays. I was feeling so good with no real issues that I almost called him just before Christmas to cancel. God knew my intent and that week I started feeling pains on my left side like the fibroid was reminding me it was there. On Jan 6th when I was in surgery not only did they find the Fibroid to be larger than expected but it had attached itself to my bladder, and spleen, but it also wrapped itself around my left ovary and urethra. My surgery went for 5 hrs versus the 2 hrs it was supposed to be. Sooo, if your Dr. saw what he saw and suggested a hysterectomy, and he is your second opinion, I'd say go for it. Pray about it as I did and your answer will come for sure!

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