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Pre-existing medical conditions Pre-existing medical conditions

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Unread 02-19-2012, 01:15 PM
Pre-existing medical conditions

I think this is my 3rd post and I finally have to bring up all these fears that I'm having in regards to my pre-existing conditions. I am so scared that I will have complications from all stages of surgery and recovery.
I have a condition called POTS and it affects my blood pressure and heart rate, and I'm super sensitive to medication.
The last time I was in the hospital it was for the delivery of my last child and I was so very ill, I ended up having postpartum cardiomyopathy and then the POTS started and I have been ill ever since.
I had a stress test of V-day and my cardio said I was strong enough for surgery but I still have this horrible fear! I have read so many posts and and even the healthy people seem to share this fear and the "what ifs", so I guess I'd like to hear from other with pre-existing conditions.
How did it go?
Was recovery harder?
Before surgery did you ever get a sense of calm?

I need support getting through this I've freaking my husband out.

Thank you all
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Unread 02-19-2012, 06:45 PM
Re: Pre-existing medical conditions

Hey Lissy! I have POTS/dysautonomia as well. My surgery is not scheduled yet, but I'm planning for May or June. I went to my dysautonomia doc last week, and she said she thinks I'll do just fine. My symptoms are mostly under control (or I'm getting more used to them). She said if I feel this good at surgery time, I'll be in good shape. She did tell me to double whatever recovery time the gyno told me. She wants me to make sure I don't miss any doses of my medicine. I just hope I can sleep well...I have full-body shutdown if I don't get enough sleep! And she recommended as much exercise as possible between now and then.

When is your surgery, how long have you had POTS, and (if you don't mind), where are you located?

Unread 02-19-2012, 07:07 PM
Re: Pre-existing medical conditions

Hi Lissy78,

I have Supra Ventricular Tachardia (rapid heartbeat) and Chiari Malformation and I too thought that something would happen to me during surgery. I was so scared the day before surgery it felt like I was going to have a heart attack my heart was beating so fast and I was shaking uncontrollably. I had to stop and pray and ask God to help me get through the day and day after.

I am 5 weeks post op and all went well. I am doing fine, no pain or pain meds after surgery or any time.
I had gas bubbles after surgery, but it was bearable.
I know it is not always easy to think positive thoughts, pray and ask God to help you get through.
I was not nervous the day of surgery.
Hope all goes well with your surgery.
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Unread 02-19-2012, 07:18 PM
Re: Pre-existing medical conditions

Hey Christy- I have had POTS suspected since I was a teen I'm 33 now!My surgery is next week and I am doing awful as of right now, don't know if its a virus coming or what but I am so weak/fatigue/dizzy etc.
I take no meds have been avoiding them for years due to the increase tachy and shaking...and I'm located in Indiana.

Hi Gwenessa, So glad to hear your on the other side now!!! Thats encouraging!So has your recovery been mostly the same compared to others without prior issues?
Unread 02-19-2012, 07:35 PM
Re: Pre-existing medical conditions

I'm 32, so I know how you feel. I've complained of dizziness and have had high heart rates since I was in my teens.

If you think your recent bout of not feeling well may just be nervousness (I know that it certainly makes me feel terrible), have you tried exercise, prayer, and/or meditating? I'm not sure of your doctor's orders for the week, but a glass of wine seems to calm all of my nervous system issues without creating new ones!

Please keep me updated on how you're doing before and after surgery. I'm definitely interested in how your POTS behaves through this.

I only asked where you live because I LOVE my dysautonomia doc. She's awesome!
Unread 02-19-2012, 08:13 PM
Re: Pre-existing medical conditions

Hi Lissy,

I thank God because I was so fearful that I was not going to be ok because of pre exisiting conditions

or either I was not going to wake up. Lots of prayer helped me to be calm the day of surgery.

I was numb on my right side the day of surgery due to my Chiara , but my heart was beating normal the day of surgery.

I had surgery due to large painful fibroids, largest 10x20cm and to many to count.

Surgery went well, and I am still waiting to go over pathology report with Dr at 6 week check up.

I am doing wonderful. feeling great with no problems except little pulls sometimes, nothing that needs pain meds. I have been going out shopping since the day after I came home. I take it easy, but all went well so far. Hopefully I will get a good report for 6 week check up.

I am praying that all will go well for you also.
Have a speedy recovery.
Unread 02-20-2012, 04:41 PM
Re: Pre-existing medical conditions

Hey Girls,
I had an unexpected Pre-Op appointment today and I thought it would calm me and make me more comfortable, but it did the complete opposite...I felt like my conditions were not concerning to the anesthesia doctor and that made me more nervous! And then they seen I had postpartum cardiomyopathy after my last baby and he said I need a echo done and if my EF% is to low then I couldn't have robotic it would be to dangerous...SO ladies I'm honestly freaking out I live in a small city and have always questioned the competence of the medical field here, since I had to go 5 hrs away to even be dxed with the POTS.
Today was the 1st time I broke down from fear and just wishing I didn't have to go through this.
Husband is getting kinda upset w/me saying I will be just fine!

I have been talking to GOD hoping to get reassurance or a sign but I still feel terrified.
Unread 02-20-2012, 04:46 PM
Re: Pre-existing medical conditions

They'll take good care of you. My POTS doc said I'd be fine. Just stay hydrated and get plenty of salt! Be sure to mention to them at the hospital that you need to stay very hydrated. What day is your surgery?
Unread 02-21-2012, 10:10 AM
Re: Pre-existing medical conditions

My surgery is on Feb.28th a week from today. I am just waiting to hear if I need the echo to determine the type of surgery.I don't know what I'm gonna do with myself until then I feel like I'm kinda detaching myself to cope with the stress and fear. I am so glad for this site your support means so muchI know after the surgery I will continue posting and responding on this site because its so much needed and it helps so many get through a very tough time in life.
Christy- if you don't mind me asking who is your specialist or location?
And what is causing you to have a hyster?

Gweneesa-I will be praying for a good path report You are already a survivor from all that you have had to endure
Unread 02-21-2012, 12:08 PM
Re: Pre-existing medical conditions

I'm in Birmingham, Alabama, and I go to the Autonomic Disorder and MVP Clinic at Trinity Hospital. My doctor is awesome!!

I'm having a hysterectomy because I'm having constant pain on my right side from either ovarian cysts (which are always present, but not always big) or post-ablation syndrome. I had an ablation five years ago and now it looks like part of the lining of my uterus is regrowing under the scar tissue left from the ablation. It doesn't have anywhere to go, so it's painful (and may be leaking up into my right tube). Fun!

I do wish you the best of luck. I'll be praying for you!!

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