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Why are you getting your hysterectomy? Why are you getting your hysterectomy?

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  #1  
Unread 03-07-2012, 05:47 PM
Why are you getting your hysterectomy?

I thought while we're all passing the time until our surgeries that it might be encouraging, empowering, and comforting to all share why we're getting our hysterectomies.

I decided to start this discussion thread after reading an article about "unnecessary hysterectomies." The author said hysterectomies to stop benign bleeding were all unnecessary and said that these women were wanting to stop the inconvenience that their periods were causing in their leisure activities. I was really offended by that statement. Inconvenient is such an understatement. I have to stay glued to our house during that week

I'm having my hysterectomy to stop my heavy periods, irregular bleeding, and cramping. My doctor suspects adenomyosis and will also be looking to see if I have endometriosis as well or adhesions from my past c-sections.

Before this I've tried to control my symptoms with the pill. I was first put on the pill at the age of 12 to control my bleeding (not extremely heavy then, but bled 15 days out of the month). I took it for a decade and then my ovaries shut down when I was 22 and my estrodial dropped to zero (actually a blood test showed it to be -2). My ovaries woke up 8 months later. I had my 3 kids and then my periods got worse. I had one in which I bled so much when I sat on the toilet that it scared me (and that's coming from someone used to long, heavy periods). Since having my 3rd baby I normally pass lots of raisin to prune size clots, but during that one bad period I passed one the size of a golf ball. I went back on the pill again for the first time in over 10 years, but my periods started getting heavier each month and I got depressed. With my enlarged, irregular shaped uterus, my dr says that ablation really isn't a good option for me. So, hysterectomy it is.

I feel the pathology report after my hyster will show adenomyosis. Not only has my bleeding gotten heavier over the years, but now my cramps are way worse and I cramp almost every day of the month.

I know my husband and kids will be happy to have the period drama behind me. Mommy is no fun laid up on the couch curled up in the fetal position with a heating pad and I stay glued to my house during my period so it's easy for me to clean up.

Whew, feel good and validating to get it all out there like that.

So, why are you having your hysterectomy?
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  #2  
Unread 03-07-2012, 08:17 PM
Re: Why are you getting your hysterectomy?

I started having abdominal and pelvic pain during and after intercourse about a year ago. I kind of blew it off as I had recently had a hemorrhoidectomy (removal of both in- and external hemorrhoids). I must mention that I have always had severe cramps and very heavy periods. Even on the pill my periods were very heavy. I was constantly exhausted when I was on my period. Over the last year my period would last anywhere from 1 to 3 weeks. Sleep seemed to be the only activity that I was really able to have. My family doctor tried changing my pills, however, that didn't help. Then around Christmas time, I ended up in the ER as my pain was so severe I couldn't sleep or even walk w/out assistance. The internal and external ultrasound showed what appeared to be a large cyst on my ovary. The ER doc sent me to an OB/GYN that recommended I change my pills again and see if after 6 weeks I see a difference. After 3 weeks I ended up back at the OB/GYN only to schedule the exploratory laporscopy. What an eye opener that was! My ovaries are crystal clean, however, I have a fibroid the size of a lime on the left side of my uterus. My doc did offer to treat me w/ a variety of hormone therapys. I declined and and decided to go for the partial hyster.
My husband has been FANTASTIC!!! Prior to my surgery in February we discussed the possiblity of a hyster (full and partial). He offered and provided me with the support I needed to recover from that surgery and to make the decision to have the hyster. I am the step-mom of 2 great teenaged boys. I do not have any biological children. That was something I was always 'on the fence' about (I'm also bi-polar and on meds for that, and have an ectopic kidney which would/could have complicated a pregnancy.)
I must admit that at this point I am looking forward to being able to have sex with my husband and not having to take a pain pill prior. I am looking forward to being able to enjoy life w/out having to worry if I'm still bleeding or if I'm going to start. I'm looking forward to being able to function all month long and not having to sleep for 10 hours a day for 1-3 weeks a month!
Well that's my story....
  #3  
Unread 03-07-2012, 08:27 PM
Re: Why are you getting your hysterectomy?

I'll be having my surgery in May for prolapsed uterus, suspected Adenomyosis and rectocele repair. I feel like post tubal ligation syndrome is to blame for this stuff. While none of this is life threatening, my quality of life is going downhill quickly. I've become a slave to my lady business.
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  #4  
Unread 03-07-2012, 08:58 PM
Re: Why are you getting your hysterectomy?

I have CIN II and had 2 LEEPS...still a bad pap 3 months after clear margins. Only over a 2 year span...came outta no where. Kind of felt displaced here for a while as most of the sisters have pain, cramping, problems while I had no symptoms. Guess what? I still feel the same emotional pulls to losing my uterus...shes been good to me, for better or worse protected my 3 babies. Sad but thankful I have insurance and had good healthcare to find this on routine exams...so sorry for all those sisters who have to figure out how to pay for this it just is not rigt! Anyway...thats my story. Going in 3-14 and willing my body to see this as not a big deal...want to bounce right back. One thing I would like to mention...am having DvH and my dr gave me a 6MONTH NO SEX talk and about fainted at my preop. Have not read many stories about this time frame and want to get the word out!!! Vaginal cuff dehissance...have read some sisters have 12 weeks timing but a lot don't. Lap surgeries have 3-4% chance of vcd while abdominal is 1%...its the sutures and no fix right now. So, dr says you want no complications? No sex 6 months. As I get closer, think this is a small price to pay. Hubby and I have been joking around that it'll be like high school again. Now that I have had time to process (3 months) I do believe I am ready. Small control group of family and friends...6 days and counting.
  #5  
Unread 03-07-2012, 09:19 PM
Why are you getting your hysterectomy?

Hi! Thank you for starting this thread.
I am new "here",just signed up last night. Here goes:
I got my first period, uneventfully, @ age 12. Around the 3rd or 4th one I started having problems with horrible cramps, heavy bleeding with clots (although I thought those were normal @ the time), & even episodes of fainting. I missed 1-5 days of school each month depending on when.it started. My mother was someone who never had any problems with her periods so she didnt really understand & felt like I was exaggerating. When I moved away to college I went to a clinic to get birth control pills because I had heard they could help. I was so grateful for that clinic! The pills helped regulate things a bit, but pain was still very bad each & every month. The clinic MD ordered a couple diff kinds of pills but didnt really change much. Fast forward to post college. I moved 1500 miles away from family for a great job opportunity. Within 1 month of starting the job (as a nurse) I underwent emergency surgery for appendicitis & a very large ovarian cyst. I woke from that surgery in 1997 with lots of pelvic pain. My surgeon & I wrote it off as surgical pain even though he had discovered EXTENSIVE scar tissue during the 'scope (he actually thought I was lying to him when I told him I hadnt had abdominal surgery before!). After a couple of months he accussed me of "drug seeking" & my mother was convinced I was "just depressed" bc i was living so far from "home"- um, NO. I was due for an annual gyn exam & found a great doc. When I went over my gyn history & the problems after my appendix he said "i wish I had been in that OR. I would put $ on the fact that you have endo". Well, after trying a couple more different birth control pill doses he suggestedhe do an exploratory laparoscopy. We did- it was just abt 1yr after my appendix. He found extensive endometriosis, & return of adhesions, & resected the ovary bc of endo & cysts. I felt less pain for abt 8months. I went back & saw his partner (he had retired). The partner did a scope @ 1 yr after the endo diagnosis- found lots more endo (excised every spot each surgery) & lots of adhesions. Again, felt pretty good for abt a year- he then told me there was nothing more he could do for me & I would "have to learn how to deal with (the pain)". Saw a diff gyn in town- 1 who I had heard thru the grapevine that he "specialized in endo treatment" (ya, later I found out that was not the case!).
So, this is now the 3rd surgeon that does surgery & cleans out the endo & scar tissue that is tying me up inside. I took a 6month course of Lupron inj bc I was still young & single & felt I had to continue being "conservative" (lupron was AWFUL for me! Surgery was never easy, but people understand when u feel bad after a surgery-cant really explain lupron to people). I believe it was 2002 when things headed downhill even faster for me. The "typical" pain I got was getting worse. I ended up in the ER multiple times over the weekend & bc of this his partner had me admitted & told me another surgery was likely. My doc came in that monday am- pretty mad. He said "we are going to go look, but I know there wont be anything there". The pain on the left side where they had previously operated on my ovary was awful. Went to surgery. Woke up SCREAMING in pain. Was told he found "just a bit of endo but took the left ovary & tube just in case thats the cause of the pain" (no, I had NOT consented to that). I couldnt stand or sit for more than a few minutes bc pain was now WORSE. To shorten this a bit- 3 months later I was seen by the head of Gyn @ Mayo Clinic. He 'scoped me & found the surgeon had removed the ovary incorrectly & there was "surgical debris" that was stabbing me inside whenever I stood or sat long. He DID find endo as well.
Went back where I was living & changed docs (actually tried taking legal action but the lawyer said it wouldnt be easy- so dropped it).
New doc ended up doing surgery twice over the next 2 yrs. He said ge found "rare endo in strange places" & said if I was truly serious abt wanting a family it was likely "now or never". I did get preg through donor insem (was still single & looking) & had my miracle baby in '05. Shortly after she was born pain returned ( I had felt the best in years while I was pregnant- even increased my hrs @ work back to full time. Had been part time since the screwed up surg.). Went back on the pill & ended up moving back closer to family.
My emergent c-section ended up leaving me with added nerve pain. Im VERY FORTUNATE to have a wonderful, compassionate doc here that understood I still wasnt ready to "let it all go" just yet. He ended up doing a surg in 06 & 08 to clean out endo & adhesions AGAIN, despite being on the pill. We have tried all conservative options @ this point. He was pretty sure back when I saw him for my 1st appt that I likely have adenomyosis along with nerve pain from endo implants. Ive seen him & a pain specialist for a few years now without the huge improvement I need in regard to pain. I am not able to work- which is not what I had planned when I brought my princess into this world to a single mom. Ive now started having more problems w breakthru bleeding despite continuous bcps & even added progesterone. As I updated my gyn abt bleeding on the phone 2wks ago he paused & then said " I think it may be time that we really consider you & your uterus parting ways. It hasnt been kind to you & its definately time to ve considering getting rid of it". We had talked abt a hyster several times, but he knew I wanted to hold off as I am still looking for "Mr Right" & I didnt want to do that search not being able to have a baby with mr right when i DO meet him. It has been a very hard 2 wks. My mother has the "i told u to have that all taken out a long time ago" attitude. & one of my best friends points out how I am "barely able to care for the child (i) have- so just get it all out!".
I was so happy to find this group last night! Most of my friends are being very supportive, but they havent "been there". I look forward to being able to help/support my "sisters" on here now & after (as the site says) I have become a "princess".
If anyone has held on to read all this- you are an absolute Saint! Thank you all for being a part of this site! I look forward to being an active participant!

Big hugs to all! We will all come out stronger on "the other side of the castle"! Long live the princesses!
  #6  
Unread 03-07-2012, 09:32 PM
Re: Why are you getting your hysterectomy?

I have ways had bad pms and bad cramps. Periods not heavy much bit had severe cramping in left ovary side. Had an endomeyrial cyst wrapped around my ovary. Dic said he could remove cyst and that ovary or all. I opted for all because my 30 year old cousin(I'm 38) had uterine cancer and our grandma died of ovarian cancer. I wanted it all out at one time so I wouldn't have problems later. Doc Found I had a bad case of endometriosis while they were doing the hystetectomy.
  #7  
Unread 03-07-2012, 09:38 PM
Re: Why are you getting your hysterectomy?

bleeding after meno pause,
HAH, Maybe I am still ovulating
Not happy
COne biospy came back pre cancer. Had a polyp. on cervix.
If I can sneak this in here, I am a wreck tonight.
Not prepared, at all.
Cancelled via e-mail, then changed my mind and said I will come in.
BUT I want to talk to the SURGEON FIRST.
Bringing sis in law,
Plus I am leaving my 91 year oldmother here with son Sis in law will be popping in.
Mind is not at rest, at all.
  #8  
Unread 03-07-2012, 10:01 PM
Why are you getting your hysterectomy?

Hi "Minimouser"![
Sending you wishes for peace with yourself for your decision. & for peace so u can get some rest. You should be able to speak with your surgeon before! Big Hugs "sister"! Id go in for u if I could- mine isnt scheduled yet & driving me crazy. What type of surgery are you having? Im likely having a DaVinci assisted hyster w cervix removed. He is hoping to leave my 1 ovary, but it all depends on how much endo & where.

Best wishes for a speedy recovery & quick return to a happy healthy life after!

UOTE=Minimouser;3705310]bleeding after meno pause,
HAH, Maybe I am still ovulating
Not happy
COne biospy came back pre cancer. Had a polyp. on cervix.
If I can sneak this in here, I am a wreck tonight.
Not prepared, at all.
Cancelled via e-mail, then changed my mind and said I will come in.
BUT I want to talk to the SURGEON FIRST.
Bringing sis in law,
Plus I am leaving my 91 year oldmother here with son Sis in law will be popping in.
Mind is not at rest, at all.
[/quote]
  #9  
Unread 03-07-2012, 10:28 PM
Re: Why are you getting your hysterectomy?

Feel better just ate first time today.
late with the Fleet.
Still not ready, ready,
  #10  
Unread 03-07-2012, 10:30 PM
Re: Why are you getting your hysterectomy?

Hi Ace !
Waiting is rough,
I hear your surgery is one of the better ones.
For me, a good old fashioned, TAH.
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