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Why are you getting your hysterectomy? Why are you getting your hysterectomy?

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Unread 04-25-2012, 04:01 PM
Re: Why are you getting your hysterectomy?

Wow! It's so nice to hear I'm not alone in this! I am scheduled for May 22 but almost backed out since I'm so scared...

I've always had problems with heavy periods. After my second child was born (9 years ago) I had periods so heavy that I couldn't leave the house. Major flooding for 2 days and then a full week of a heavy regular period. I got an ablation 2 1/2 years ago and my flow was diminished but still there. Over the last 1 1/2 years the pain has worsened every month to the point that my uterus contracts so hard it feels like labor pains. Even the 800mg of ibuprofin and muscle relaxers I tried didn't help. It also makes having a bowel movement excrusiating. I had an MRI and they found adenomyosis, multiple large fibroids, and polyps. My GYN also diagnosed me with post ablation syndrome. Basically, the uterine lining has regrown behind the scar tissue from the ablation and has no where to go so my uterus contracts hard to get rid of it. No wonder! He also suspects adhesions to my bowel and endometriosis. What a mess! I'm having a robotic assisted surgery and he'll remove everything but hopefully keep my ovaries. I feel very frustrated that this happened!
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Unread 04-25-2012, 05:10 PM
Why are you getting your hysterectomy?

Its lovely to hear everyone explain there problems. Until I read shutterbug's I was beginning to think I was alone! I too have a prolapsed uterus,also bladder also prolapsed bum! I am getting a pelvic floor repair too and a TVT (bladder hammock) as well as a hysterectomy keeping ovaries. Not sure how they happened just crept up on me and have to be fixed. Xx
Unread 04-25-2012, 06:56 PM
Re: Why are you getting your hysterectomy?

Hi All,

I am so grateful to have found this site and everyone here!

I'm getting my hysterectomy because after having a hysteroscopy and D&C, I was diagnosed with Endometrial Cancer "Architectural Grade 1, Nuclear Grade 2, FIGO Grade 1" on April 16. Have been scrambling to get all pre-op tests (tomorrow is ct scan and I'm done) for my gyn/oncologist, whom I have not seen yet but I expect to get an appointment and surgery scheduled next week when all tests are in her hands.

Am 61 and had endometriosis with debilitating pain from my first period on my 13th birthday, two laparoscopies done one in the 80's and one in the 90's to cauterize the endometrial tissues off my uterus, bowel and colon (the second one found over 300 tissues of varying sizes and took a lot longer than the surgeon expected!!!). Only percocet would alleviate my pain prior to the last one. Was on birth control pills after the last laparoscopy (still had some pain but manageable at that point) until I stopped the pill at age 51 and immediately was menopausal. I was in heaven -- no periods, no pain, few menopausal symptoms. 10 years of bliss and then....I started having random spot bleeding recently.

When I got the diagnosis, I wasn't exactly surprised given my medical history and want the hysterectomy done ASAP! Good riddance to it all, I say!

What makes this diagnosis and my pending surgery particularly difficult for me, however, is last year my husband (66) was diagnosed with rectal cancer, had surgery and now a permanent colostomy bag, the cancer metastasized to the liver and he could only tolerate 2 chemo treatments (he almost died from them.). Now, he is terminally ill, on hospice and maybe has up to 3 months to live. No children, hardly any family & they aren't nearby. I picture me recovering in one room while he's dying in another with a "two for one" paid caregiver. We're too young for this! However, I'm fortunate to have his brothers ready & willing to be here to help us both, though, and of course I have some of the most supportive friends one could ever hope to have as well. So I know I will get through this. But the timing sure is lousy, isn't it?

My biggest regret is I didn't have a hysterectomy in my 40s but the ob/gyn then thought it would be too dangerous with a fibroid on an artery that he was too afraid to remove because of the potential of catastrophic bleeding. Apparently I have no fibroids now or polys, thank goodness.

I am SO ready for my female problems to be over. I'm sure some of you can relate to that.

Best wishes to all you hystersisters out there!
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Unread 04-25-2012, 07:21 PM
Re: Why are you getting your hysterectomy?

God Bless you Swimchick and your husband as well. I have been feeling miserable but it pales in comparison to what you are going through. You have stumbled onto a gold mine in this site and there are multitudes of wonderful women who are here for you. Sending nothing but good thoughts your way. Stay strong. I will keep you both in my prayers.
Unread 04-25-2012, 07:24 PM
Re: Why are you getting your hysterectomy?

Swimchick I wish I could give you a big ol hug! Bless your heart that is a lot to bear. You are in the right place, please keep us updated. (((hugs)))
Unread 04-25-2012, 07:31 PM
Re: Why are you getting your hysterectomy?

Thanks for your hugs and prayers pcar68 and LittleStar31! This site is amazing as are all the wonderful women on it. How wonderful that we can support each other this way!
Unread 04-25-2012, 09:27 PM
Re: Why are you getting your hysterectomy?

hi ladies...hope u are all well and the pain isnt as bad today as other days....hugs to u all firstly....

my names Sharon...i am 34 years old i have 1 son who is 6 years old...
why am i having a hysterectomy..i am booked in tohave my hyster on the 2nd may...well...
ihave had endo and pocs for 10 years...i have always had irregular periods always very painfulfor as long as i can remember...i have had 9 laparoscopies in total d&C's excise of endo..holes put in both ovaries, biospises done..curettes, the whole works....in april last year i had a lap done for removal of endo once again...after that lap i just didnt feel right...i was in constant pain...at my 6 week check up with gyno i was still in pain...he told me if still inpain in 2 weeks to come back and see him...wellpain increased to the point i had a trip to the ER...and when i saw him again he pretty much told me i was makin it up and to see him again if i was to fall pregnant....i was shocked to his bedside manner....so i did some investagating into a specialist who specialises in endo thank god he listened....he has been a god send even though all the meds and things we have tried havent worked he has been amazing....lately i have been having pains shootingupa nd down my legs after iwalk for 10 mins im exhausted...and in pain...i have lost 25kgs in the last year and we are currently testing me for ovarian cancer as the docs at my per op were shocked at the amount of weight and such a big loss...the constant pain...it gets to the point sometimes i cant even get out of bed the pains bad...i have been on very strong pain relief...and its not working either....the heat pack is a great thing too...even though i use it alot i am startting to get the marks on my belly form constant use....lol...
im scared about my hysterectomy but im hoping to comeout of this pain free well after all the op pains gone anyway...i want to be able to play wth my son and be a good mum to him...i want to be able to enjoy life againand be a happy person were as at the moment im miserable nad just want it all to go away.....

thanks for this thread its awesome....and im also sorry for all the pain that most of us woman are going through on a daily basis....

hugs to u all from Australia..lol...

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