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pelvic congestion syndrome/ Prolapse pelvic congestion syndrome/ Prolapse

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Unread 03-11-2012, 09:10 AM
pelvic congestion syndrome/ Prolapse

Hello to all. I was curious if anyone on here has Pelvic Congestion Syndrome?? I am scheduled for a TVH on March 27. I guess my question is, did the surgery help with the issues that come with PCS. And also was the able to do a TVH, or will a LAVH be needed to see the veins. Any info. from anyone would be great! Thanks in advance!
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Unread 03-11-2012, 09:27 PM
Re: pelvic congestion syndrome/ Prolapse

I am sorry you are dealing with this.

I wish I could answer your question, but I cannot as I have no experience with PCS. Hopefully someone with PCS will see your post and respond.

Unread 03-12-2012, 12:22 AM
Re: pelvic congestion syndrome/ Prolapse

Here is an article we have about PCS you might find helpful: Pelvic Congestion Syndrome - Is Hysterectomy the Answer?

There are options besides a hysterectomy for treating PCS and PCS may not be cured with a hysterectomy as it can depend on which veins are involved so for some the hysterectomy is successful, for others it is not. You might find this article informative:

Have you had a second opinion yet, possibly from a urogynecologist for your prolapse issue and a doctor who specializes in treating PCS?

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Unread 03-12-2012, 07:26 AM
Re: pelvic congestion syndrome/ Prolapse

Thank you, And no I haven't gotten a second opinion, as I have NO insurance. I kind of "lucked out" with the way they diagnosed and decided to fix my problems. See, I have been having the same issues for years. Varicose veins so bad in my legs that they burst, itch, and ache. I have one that runs across my butt, right where you sit. and another one that is forming across the other cheek. My right foot is almost purple and blue from different sorts of veins, and recently my left foot has become numb over the top. Irregular bleeding, CRAMPS, no sex with my husband in over a year ( hurts too bad). Just tons and tons of stuff that is effecting everything from sitting to standing.
I understand that a second opinion is important to alot of people, But in my case, I am just excited about the possibility that it might work to fix some of this, Maybe it won't fix it all, but I am praying, that it will at the very least help me feel somewhat better.
Thank you again for the article. This site is something awesome, as are the people on it!
Unread 03-24-2012, 08:18 PM
Re: pelvic congestion syndrome/ Prolapse

I had a TLH on March 7 for Pelvic Congestion Syndrome. I had ovaries and uterus removed and some veins cauterized as well. I did keep my cervix. At just over two weeks out I am feeling so much less pain. I needed to take vicodin every 4 hours to endure the pain prior to surgery. I have not had pain meds or OTC relievers for over a week. I was able to work half days last week even, but did sit so much more. I hope that your surgery will take your pain away.
Unread 03-25-2012, 01:27 AM
pelvic congestion syndrome/ Prolapse

I have PCS and am having a hysterectomy on March 28th to treat it as well. I've actually tried multiple embolizations and coils placed with no relief. Best wishes on your surgery! See you on post op.

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