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PCOS and Hysters PCOS and Hysters

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Unread 03-21-2012, 07:15 PM
PCOS and Hysters


Im not sure Ive put this in the right spot or not.

Im waiting for my surgery date to have a TAH.
I was wondering if anyone else has PCOS and what theirs was like post hysterectomy?

Its something I forgot to ask the doctor about it (there wasnt much going through my mind once I saw the surgery forms and realised exactly how real the situation is now).

Im not having my ovaries removed and I know that PCOS is ovary based rather than uterus but was wonder if the hysterectomy helps it in any way or if hormone treatment might be more successful post op. Drs have tried me on the pill before to help straighten out my hormones but I bleed the entire time Im on them (thanks to Endo).

Sorry for the questions!

Lastly, its ok to be scared right?
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Unread 03-21-2012, 09:20 PM
Re: PCOS and Hysters

Of course it is okay to be scared...this is MAJOR SURGERY! You are loosing a very intimate part of you, something that has made its presence known to you (fort better or worse) for decades. Now that is being taken away. Being frightened of this is normal, and being emotional about this is normal. We are here to support you, and help you through this.

Regarding the PCOS. I cannot answer your question. Maybe someone else who has experience with this will see the post and respond.

Unread 03-21-2012, 09:37 PM
Re: PCOS and Hysters

I'm 2 weeks post-op and so far so good.I kept 1 ovary and I have PCOS and if you are keeping your ovaries you shouldn't need any hormone treatment. There is always the chance that the ovaries will fail and you will need hormone treatment.
Usually a big part of PCOS is insulin resistance. Are you on any meds for that? You may want ask to ask your doctor about hormone testing now before surgery so you can see what your levels are.
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Unread 03-21-2012, 09:42 PM
Re: PCOS and Hysters

Hi Ruby, welcome! I love your name!!

As you can see, I have not had my surgery yet, but have had PCOS for 18 years now( since 15). Back then, they had no real idea what PCOS was. As the years have gone by, they have come to understand PCOS as it is, an endochrine-based disease, more than gynecological.

Many women have the cysts on their ovaries, as just one of the many symptoms, but a hysterectomy, even complete, will never fix the root problems. Have you many cysts on your ovaries? Pain with them? Know that that will not be fixed, only the complete removal of them would. I have chosen to remove my right ovary, because that is the main one for pain as well as constant cysts. PCOS alone was never deemed enough for me to have a hyster at 33, but now with, endo, adeno, and a large fibroid, we are going ahead. yay!

Have you been checked by an endochrinologist for your thyroid functions, which, for us, are much more than just TSH test? Mine is just now getting figured out, even after a GYN said it was borderline. My Endo. doc informed me, borderline is not acceptable for PCOS gals. Also, adrenal function?

In our future, PCOS cysters can also face heart issues and blood sugar problems. These issues are only now being brought into the light, that PCOS is not primarily a GYNO disease.

good luck in all you do!
Unread 03-21-2012, 09:47 PM
Re: PCOS and Hysters

Oh, yeah, I have also had a hate-hate relationship with BCP! It has never controlled my bleeding, and I just love to hate them!! lol!

Also, know that you are not alone in the fear... I swing from fear to joy on a daily basis!
Unread 03-21-2012, 10:06 PM
Re: PCOS and Hysters

Im honestly confused on what I have.
Originally I was in private health and seeing a fantastic Dr who explained things so simply and explain what tests were for, he was the one who explained that I have PCOS and have about 4 cycts on my left ovary and 1-2 on my right, he showed me all the scans and pointed it out.

Sadly I dont have private health anymore so have spent the last few years shuffling around public health where I rarely see the same Dr twice and they seem to have a new diagnosis for me every single time.

Ive had heaps of ultasounds which confirmed the cycts are still there and my god can they be painful! Ive been to ER 3 times for passing out from ovulation pain (when I do ovulate). I have had tons of blood tests done but no one has ever really explained what they were testing for.

All I know is on one visit I was told "You have PCOS, lose some weight and you should be fine."
It wasnt until I kept going back with lists of other problems theyve discovered endometriosis plus a string of problems with my cervix (my cervix is now just a thick layer of scar tissue and it takes them about an hour to find it properly in pap smears).

The only time HRT has been mentioned is if I should go into early menopause which I have a family history of.

Its so confusing! Sometimes I want to yell at them and say Im only 24 Im not a dr I have no idea what youre saying please tell it to me in stupid terms!
Unread 03-21-2012, 10:18 PM
Re: PCOS and Hysters

Hugs Honey!!

I totally understand! Like I said, THEY have only just begun to understand what PCOS is. From your U/s, that sounds just like it. Mine looked like "a sack of marbles". But, they probably checked your testosterone levels as well, which is a sure sign, elevated levels. That is why we can be prone to acne and excess hair.

That is horrible about the healthcare system! But, I really Strongly recommend an endochrinologist, if you can be referred. Having all that seen to can be the root of it all.

As for them telling you. "loose weight, it'll fix it", are you KIDDING me?!? What an insensitive, stupid comment!! grrrrr! that is all I have to say on that!

Your other issues will surely be fixed by hyster, but I am afraid your ovaries will still cause issues.... I hate to say it. That is why we decided to remove the worst and leave the best

again, hugs to you! send me a message if you have any need!
Unread 03-22-2012, 04:43 AM
Re: PCOS and Hysters

Thanks for the replies!

Its hard to tell what symptoms Im getting are from the PCOS and whats from the endo and fibroids, I guess I wont really know until post surgery.

My mum, ever so supportive, once I told her the news that Im getting the decided went into planning mode on throwing my uterus a goodbye party. She is trying to find out how we can make a 'Pin the cervix on the uterus' game to play. She had a hysterectomy 2 years ago for extremely endo and fibroids and hasnt been happier, she recovered so fast Im just praying I have her recovery rate.

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