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Adenomyosis Symptoms Adenomyosis Symptoms

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Unread 04-12-2012, 01:49 PM
Re: Adenomyosis Symptoms

I'm now 9 weeks post-op and all is well. Went back to work after 5 weeks, and just returned from a week in Punta Cana and was able to swim, walk the beach, and fully enjoy my vacation. For the first few weeks post op I had regretted my decision to do the hyster (did keep ovaries) and not an alternative. When I went for my 6-week check up in mid-March the doctor showed me the pathology report and showed I had Adenomyosis along with many fibroids (the whole reason for the surgery). The doctors had no idea I was also dealing with the Adenomyosis and just assumed that all the pain and symptons i had were from fibroids:
Periods that lasted 8-10 days, Bleeding would soak through a pad and super-plus tampon every 1/2 hour the first 3 days, Clots that were the size of a golf ball.
Cramps during my cycle that would make it impossible to function even with two different pain meds.
Pain in my back. (My uterus was enlarged and tilted back)
Pain with sex.
Now I know it was probably a combination of both. Not to mention I was anemic and had low iron levels. After the pathology report and knowing that Adenomyosis does not go away...I would have continued to suffer from all the symptons had I chosen like Ablation or other alternative methods. Now I don't regret the hyster at all. I still have some swelly belly but that seems to be getting better every week and know that it will take some time to go away.
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Unread 04-12-2012, 02:28 PM
Re: Adenomyosis Symptoms

I never even heard the word adenomyosis until my 2 week checkup. After I looked it up, my symptoms all made sense.

It all started for me about 10 years ago when my periods started coming every 18 days and lasted for 7 or 8. Dr tried me on BC pills and they worked for a few months then I was bleeding right through them.

Last October I was sitting on the couch and started gushing. It never stopped from that point until I had my surgery, nearly 6 months. My symptoms were:

Gushing blood with huge clots
Pain while bleeding
Extreme fatigue

My bleeding was so heavy that while standing, others in the room could hear the clots coming out. Several times I couldn't leave the house because I couldn't get from point A to point B without making a mess. Doctor put me on several different meds and finally found that Megace would at least slow it down enough that I could manage it until surgery.

Nasty stuff. I'm glad it's over!

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