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Always in pain Always in pain

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Unread 04-07-2012, 11:54 AM
Re: Always in pain

My surgery is set for the day after yours, and it can't get here soon enough! I have pretty much constant pain, along with nausea/bloating/irregular bleeding. I actually had to leave work early on Thursday and spent the rest of that day and Friday in bed or on the couch. I'm somewhat better today, but still feeling pretty funky.

I do have pain meds to take, but I hate taking them because they give me jello brain, plus as my surgery date draws nearer I'm afraid they won't work as well post op. The joys of our "darned if you do and darned if you don't" situations...we're almost there!!!
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Unread 04-07-2012, 12:28 PM
Re: Always in pain

wow... within two days after having my endometrial biopsy done, they had my surgery scheduled for April 16th, go in from my preop on the 12th... why are they waiting so long on ya'lls, or did they rush mine.. my uterus is severely enlarged. and i have a massive fibroid tumor.. my pap and endometrial biopsy came back clear. so not sure why the rush now...

but yes.. i'm in almost constant pain these days.. it started at first just a couple days during my period. then my entire period.... then at time in between, now all the time... and since they've started messing with it, it seems like i feel it more too.
Unread 04-07-2012, 08:57 PM
Re: Always in pain

Wow, I am glad to know I am not alone. My LAVH is scheduled for Monday. I always seem to have pelvic pain, this strange fullness, tugging and pulling and cramping. Im gassy and bloated and always have the urge to pee! I have 20 fibroids that they were able to count. I really hope on the other side of this all of these symptoms will go away!!
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Unread 04-07-2012, 11:14 PM
Re: Always in pain

Hi future s
Unread 04-07-2012, 11:22 PM
Re: Always in pain

Hi future sisters I too was just abt to post something along these lines- & funny thing is my date at the castle is May 9th for a dTH. It was an especially rough day pain wise here. We drove over an hour to visit my friend & her family for an early Easter dinner. Its very hard for me to sit that long because it aggravates my pelvic pain. I am scheduled for my surgery bc of endo, possible adeno, & irreg bleeding. I also have had a couple different diagnoses re nerve pain from damage caused during an emergent c-sect & a laparoscopy that was performed by (who I now know to be a quack) surgeon years ago. Ive been on narcotic pain meds for years & am SOO looking forward to moving on with my life. Today I didnt dare take my medicine @ my friend's house bc I didnt know when we would be heading home & I was the 1 driving.
I hope each of you is feeling even a little bit better tonight. Its just barely over a month left for a few of us!
Big hugs & wishes for comfort for each of you!
Unread 04-07-2012, 11:45 PM
Always in pain

Originally Posted by trbl View Post
why are they waiting so long on ya'lls, or did they rush mine..
Hi "trbl", I am so happy you didnt have to wait too long . Not sure why scheduling is what it is with our future sisters but I know im pretty bummed its so far off for me. My surgeon is a specialist in different kinds of pelvic pain & does many surgeries. Apparently I finally agreed to this at an extra busy time for him. I'll have waited a little over 2months from the time they scheduled it & when it finally happens. I have been with this doc for abt 6yrs & he has done 2 prior surgeries on me. I know if I had called him & mentioned how far off the surgery was scheduled he likely would've tried to get me in sooner. I just decided to take the extra time to really think things through. A hysterectomy has been mentioned in the past as AN option & now it seems like the only option. Ive had a hard time wrapping my head around it as I am "young" (37) & still single. I also am taking the time that I have been given to try to "convince my body, brain & heart" that this WILL fix me & give me my life back. My doctor also (as someone prev posted) isnt saying it will take care of all my pain. Its good I have some extra time to "get ready" bc I need to have it in the back of my mind that even if it doesnt completely fix things that I will be much better. (Im scared if it doesnt fix me "enough" that I will slide into an even deeper darker place than I am in already).
Ok, sorry abt the LONG post!!! Pain meds & sleep deprivation can mess a princess-wanna-be up .
Unread 04-08-2012, 05:31 AM
Re: Always in pain

I want to thank you ladies I felt so alone and confused, I'm 33 and am the firt in my family who has done a hystorectomy and feel they can't fully understand my emotional pain.
Unread 04-08-2012, 09:57 AM
Re: Always in pain

Bxsister- I am the same- noone in my family has had a hyst, nor has anyone had more than regular "tolerable" cramps since my maternal grandmother (i sometimes wonder, why'd it have to come up in ME?). We all are so lucky to have this site- a community FULL of women in the same boat, even if for different reasons (cancer, pain, bleeding, physical "abnormalities" that cause problems, etc). I am so happy to have this group to turn to (and offer a shoulder or "help" when I can). Lets all lean on each other & get through to the other side together! <3. Have a goid weekend!
Unread 04-09-2012, 08:11 AM
Re: Always in pain

Hi Bxsister - I totally get where you are coming from. You and all the other women who have responded to you are experiencing symptoms so similar to mine!

I know it sounds cliche, but it really does make you feel better to know you are not alone. I also have multiple large fibroids, as well as cysts. The pain, pressure, and pulling/tugging has gone from manageable to intolerable. Heat wraps, pain meds, and natural sleep aids have all become the norm. Bleh.

I'm hoping to have surgery within the next two to three weeks - they will be scheduling me today. Good luck to you, Bxsister! And sugarandspice, you are so right - the pervasive pain makes the decision much easier.
Unread 04-09-2012, 08:48 AM
Re: Always in pain

Ms Scout- let us know when you get your date... I hope you dont have too long to wait. Best wishes!

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