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Fibroids and Adenomyosis Fibroids and Adenomyosis

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Unread 04-11-2012, 04:44 PM
Fibroids and Adenomyosis

Several months ago I had my yearly checkup with my regular Gyno. I have had very heavy and painful periods for as long as I can remember and the past two years she has suggested ablation or partial hysterectomy. I did mention to her that I had a bicornuate uterus and asked her if I would be a good candidate for either of those procedures. Her answer was yes. This year during my exam when she was pressing on my stomach, I told her that one area was especially tender and kind of hurt when she pressed on it. She said, "Oh, that's your uterus" and then told me to make a pre op appointment with her when I finished real estate school and went on vaca with my family which led me to believe that there was no hurry. I should probably mention that I've been taking Lysteda to slow the bleeding down every month, just to get by.

Since this Gyno seemed a bit haphazard, I decided to make an appointment with the OBGYN that delivered my youngest child for a second opinion. I met with him and he scheduled an MRI to see what's happening with my uterus. The results were that I had a "myriad" of fibroids and Adenomyosis, which is like Endometriosis, but on the inside of the uterus instead of the outside. My uterus measured 11X11X12 cm and while I've always been told I have a bicornuate uterus, they were unable to determine the shape with the MRI due to too many fibroids, adhesions and attached endometrium cells to the muscle of my uterus. I asked him why they didn't say how many fibroids there were and he said that when there's too many they don't usually bother counting. Not at all what I was expecting, but nothing life threatening either so really I can't complain!

After speaking with him and weighing all my options, I decided to go for the Davinci Surgery partial hysterectomy. We were all set to go for April 20th, until my Dr called me last Thursday and said he was feeling uneasy about his ability to perform the surgery. He spoke to my plastic surgeon who was the last DR to open me up when I had abdominoplasty 7 years ago and the Plastic Surgeon told the OBGYN that he should avoid opening me up, unless it was life threatening. The gyno explained to me that he was concerned with all the adhesions, he might have to open me up during the robotic procedure and didn't want to risk that, so he thought it would be best to refer me to a specific specialist who is also an associate professor, I am assuming with training other DR's in working with the Davinci Surgery procedure.

During all of this, I have been physically uncomfortable and in mild pain. I feel full all the time and have a constant dull pain in my stomach. I woke up this morning with bad lower back pain that I am attributing to my enlarged uterus. I called the "new" DR's office and their nurse who schedules all the appointments will not be in until next Monday and she has to review my records before I can have an appointment and it is likely going to be 4 weeks before I can be seen. If she reviews my records and determines that I am "urgent" then I may get in sooner. I also need to mention that I've had to chase up the former OBGYN's office to make sure they sent my referral to the new DR's office which they finally did a week later. *sigh*

I get that since this is happening to me that's it's not a priority to anyone else, but my stomach is sticking out as though I am 16-20 weeks pregnant and I do not want to leave the house.

Anyway, thanks for listening. I guess I just needed to get this off my chest. If anyone has gone through what I am going through I'd love to hear how things turned out for you. I kind of feel like a freak and have read stories about women who've had hysterectomies and felt TONS better afterwards and I just want to feel well again.
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Unread 04-11-2012, 07:13 PM
Re: Fibroids and Adenomyosis

Hi Sandinmytoes! Love your screen-name. I just wanted to post a reply saying "sorry you are going through all that". Im glad your surgeon was able to refer you along when he felt uneasy abt the procedure. Do you think your old office calling the new office could help @ all. Its crazy if the new office only has 1 nurse who determines "urgency" of patients. Big hugs to you! I understand how restless you are. It felt like forever as I waited for my surgery to get scheduled (and then to top it off I'll have waited 2months when my day @ the castle finally arrives- but im sure it wud've been sooner if he was "worried" or I pushed for sooner).
Just want to send you big hugs & best wishes!!!! You've come to the best place for support, information, & advice!
Unread 04-11-2012, 07:24 PM
Re: Fibroids and Adenomyosis

I'm sending hugs, best wishes and prayers for your upcoming surgery. Kudos to the honest doctor who was uneasy about doing your surgery and referred you to a specialist who was more prepared to do your surgery. God Bless You! He will be with you and your surgeon. I hope you will get in to see this new surgeon soon, and that you won't have a long wait before your surgery.


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