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4 weeks post-op and peeing my paints 4 weeks post-op and peeing my paints

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  #1  
Unread 04-24-2012, 09:16 PM
4 weeks post-op and peeing my paints

if you have got 5 mins have a read...i know its long but its my story

On the 14th of February 2012 I had a hysterectomy and to the best of my knowledge my operation went fine, I was told by the surgeon that the hysterectomy was straight forward and apart from me bleeding out on the table everything went well no nicks no cuts everything went well.

My recovery plan was to follow the doctors’ orders and pretty much do nothing for 6 weeks which was not a problem with me as I only had 4 weeks paid leave and any more time off was a finical killer.

I gave myself a great head start after 8 days I left the hospital and I went to my parents’ house and then from there I went and stayed with a friend, my house is full of teenagers and at the best of times is stressful so staying away for the first 3 to 4 weeks was the best thing for me to do and thus gave me the very best chance of recovering.

Recovery was a long process and I didn’t realise the pain would be as bad as it was but I was handling it and after 4 weeks I was starting to see the light the pain had eased and I was feeling really good until one night it all turned to ****.

My journey has just began

I was into my 4th week post op it was around 5pm on the 16th of March I was walking down my hall way at home when suddenly out of no wear liquid starting running down my legs at first I thought I had peed my paints and maybe it was something that happens but then it happened again I couldn’t control it and it was coming from my vagina not my pee hole, by the end of the night I was a mess I knew something bad was wrong I had read stories about things being nipped and not notice I knew they had cut my bladder no question about it I knew. I slept with a towel between my legs that night tossing and turning all night long thinking I was going to wet the bed.

The next day I made a doctor’s appointment with my GP I had to wait 2 days before I could see him so I spent the week end on the internet querying my symptoms crossing my fingers in hope it was an infection deep down I knew my worst nightmare was about to unfold after a lot of research I come to the conclusion that I had a vaginal fistula created from a nip to the bladder then joined together with a stich to my vaginal wall this making the vagina and bladder one, Resulting in uncontrollable urinating from the vagina a miscommunication between the both.

I was convinced and by the time I got to my GP I had worked myself into such frenzy I was sick. I explained my symptoms to my doctor in return he made me have a pee test gave me antibiotics and a referral to see a physiotherapist. 3 days later I went back to get my test results the pee test was fine so no urine infection was present. He insists that the physio will help even though the pee was coming from my vagina not my urethra when I told him my thoughts he said try the physio and see how things go.

I didn’t even call the physiotherapist I knew what my body was doing I knew not only can I pee from my urethra and with no problem at all that now I could pee uncontrollably from my vagina and that was a major problem I couldn’t control the pee not even pads could help all I could do was wait until I seen my gyno for my 6 week check-up which was in a week or so.

Around the 5th week post op I’m messed up emotionally I feel very hard done by and I want answer along with results I need help…the constant leakage from my vagina was getting worse a packet of pads per day many pairs of undies and sleepless nights later was starting to takes its toll, physical and emotionally I am worn out.

27th march my 39th birthday and I finally get to see my gyno, I had been over the way I would act when I seen her in my head many times when my name was called I could tell this wasn’t going to go the way I hoped. I sat down and she asked me how I was, I lost it I totally lost control of my emotions. I told her what was going on and what I thought I had a fistula, I was full of knowledge regarding fistulas hell I researched pages and pages of information, peoples stories, doctors reports and I think this shocked her when I told her what was my diagnosis in fact she commented on me goggling symptoms and said that’s the worse case. I hoped onto the table legs spread and she stuck the camera up for a look she, I apologised for the urine leaking from my vagina. The out come from this visit is come back next week for a test involving blue dye a catheter and a large med oh and try not to stress we will get to the bottom of it and fix it, it will be ok.

the 29th of march a few days after my last appointment and around 6 weeks post op, I’m walking around the hospital filled with blue dye, if there is no blue dye on the med then its not a fistula, if the blue dye is on the pad then my urethra may be damaged, 2 hours later the med was over flowing blue dye. The out come to this visit was to be told that yes I got cut and that I need a urethra gram to determine were the cut was. So on the 3rd of April the day before I return to work I’m back at the hospital another catheter inserted and more fluids dripped into the end of it to show the bladder full, I lay on the table the x-ray machine moving back and forth taking pictures, all I could see is stuff going in and coming back out a hole leaking into my vagina, I cried and cried.
The nurse called the gyno and was told that nothing would be done until after Easter and I should call back then.

I called and called and on Wednesday was finally called back with an appointment to see the gyno.
2 days later I’m once again waiting to see the gyno, my name is called, I go in and someone else is sitting there apparently she helps with my gyno she said she was in a meeting and would pop her head in soon. We start talking and it hits me this woman is telling me I need to travel interstate to get fixed, I was shocked I remember saying “send me where”. I’m now having trouble thinking so much was going on, when and how who pays who goes why, why, why then, I told you so I said from the ****ing start what was going on **** hello I’m peeing from my fanny .
Oh and by the way come back Monday for a CT scan.

At first I was only going to post my story on one of the many fistula websites I had come across, I had read a lot of forums about woman in the same situation as me in hope of some good news from woman that had read my story and maybe some advice, guidance or just conversation, then I decided I couldn’t stop writing that I wanted my thoughts my sadness and everything in-between documented on a daily bases so I have decided to keep a diary some where I will scribble, babble and talk about my days living with a fistula.

I will post this on several forums and it will be the first pages of my diary.
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  #2  
Unread 04-25-2012, 08:56 AM
Re: 4 weeks post-op and peeing my paints

I am so sorry you have had to go through this. Thank you so much for posting it. It angers me that you were put through all these tests and waiting. I would have thought one call to the doctor would have resulted in you being sent immediately to the emergency room, being admitted, tested, and operated on in a day or 2 at the most. I absolutely can not even comprehend that you have waited and waited, all the while being scared and having urine flowing constantly.Am I to understand you have been flowing urine uncontrollably out of your vagina since March 16 and nobody has fixed it yet? If that is the case this seems like total incompetency on your GP and GYNO both . I wouldn't want either one of them to be in charge of fixing this problem at this point. M advice is call a specialist immediately, or better yet have all your record released to the hospital,go to the emergency room and insist they look at your records, run more tests, and find you somebody competent that can fix this issue immediately. This whole thing seems crazy, and the emotional trauma your unnecessarily being made to endure and anguish for all this extra time is unforgivable. I pray that you get this resolved quickly and that you don't have an emotional breakdown before it is resolved.
  #3  
Unread 04-25-2012, 11:46 AM
Re: 4 weeks post-op and peeing my paints

What she said!!!!!!! I can't believe the roller coaster they have put you on! I hate how they have patted you on the head and told you it's all in your head and go away....least way that's the way it seems.

May I ask, where are you from? I know things can vary from country to country on even getting you in to see somebody. I'm not so sure I wouldn't have been sitting in their waiting room leaking on their floor insisting I needed to be seen.

I hope you have somebody to "hold your hand" through all this.

Hugs
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  #4  
Unread 04-27-2012, 07:54 AM
Re: 4 weeks post-op and peeing my paints

thank you for your kind words, i'm from Darwin Australia and i have one option i must fly to Brisabe to have my op..
i fly on the 8th of may and stay untill they t
give me the ok.
i have ti leave my family my job and friends all because the doctors stuffed up. i'm lost, im scared and am finding it very hard to keep face. my days are getting harder im wet all the time. i can not see the light at the end all i see is pain.

my poor family, my kids OMG i have to leave them....i sure do hope i make it back home.
  #5  
Unread 04-27-2012, 08:07 AM
Re: 4 weeks post-op and peeing my paints

I am so sorry for all your going through. I'll pray that all goes well for you. Please keep me posted after surgery so I know your ok.
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