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Surgery 5/1: possible adeno and endo Surgery 5/1: possible adeno and endo

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  #31  
Unread 05-01-2012, 12:31 AM
Surgery 5/1: possible adeno and endo

  Quote:
Originally Posted by Angel2012 View Post
Thanks positivegrace - it is such a journey but i feel so positive about it all and so much better after getting rid of the sick organ that my uterus had become...i hope other sisters here will feel the same when they either find something to manage their adeno or have the hyster. Its a very debilitating condition once its chronic. Take care of yourselves.
It sure is a journey. Just like the rest of the ladies, I'm ready to get to the destination.
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  #32  
Unread 05-01-2012, 12:48 AM
Surgery 5/1: possible adeno and endo

  Quote:
Originally Posted by jmkkkgreer View Post
Some days I feel very depressed and don't even want to get out of bed. I am very involved with my kids, so that isn't always an option. My pain level is so bad sometimes, I am living on Ibuprofin and the heating pad. Being a stay at home mom, I am the one who takes care of our house hold and the kids extra activities. With this condition sometimes I feel like I just can't keep up with everything and this bothers me. If my digestion isn't affected, my pain level is so intense that all I want to do is stay in bed. But I press on most days. I hate feeling like this and can't wait for my surgery date to get here. June 13 and I am hoping that things will begin to improve. If there is anyone else out there that has to similar issues, please share, I love feeling like I am not alone in this and there are others who understand the whole spectrum of pain. Thanks!
Sorry to hear you are getting depressed. There are others of us out there. I know what you mean about feeling like you just can't keep up with everything. It's so frustrating. Sometimes the cramps, pain and nausia were so bad you've got ibuprofen in one hand holding your heating pad with the other while you vomit, clean yourself up and get the kids where they need to be. I even started putting hand warmers in the front of my jeans on my tummy while I did what was needed. I hope you've been able to find someone to help you while you recover. Have you been able to reach out to other parents who will be able to help you get the children around? Wishing you the best and hoping your surgery and recovery go well.
  #33  
Unread 05-01-2012, 12:53 AM
Surgery 5/1: possible adeno and endo

  Quote:
Originally Posted by Endowoman2010 View Post
Recently I found out tHAT I have developed focal Adenomyosis (confirmed by MRI) also have stage 4 endometriosis(since 2008) and both ovaries were removed 3 yrs ago...had many other treatments also
Long story short... I had 5 abdominal laparoscopys, 2 D&c and NOVASURE ABLATION mostly due to endometriosis... I went into menopause and started HRT about a year ago..
In february I was diagnosed with eosinophilic colitis..
I also have many bowel symptoms and I am not sure if it is the Endometriosis, Adenomyosis, or often times it is the colitis..
U may want to see a gastroenterologist just to make sure there is nothing else affecting your bowels
There is no cure for Adenomyosis except hysterectomy.. So get a second opinion, make sure u know all your options ..
Best of luck to u ... Take care
Bless your heart, you've really been through a lot. You will be in my prayers. I think everyone should get a second opinion.
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  #34  
Unread 05-01-2012, 02:57 PM
Re: Women that have adenomyosis HELP!

  Quote:
Originally Posted by Abagayle View Post
I had my hyster on Tuesday. My doctor said my uterus was large and boggy, definite adenomyosis. If you're still doubting that you have adeno and would like some sort of reassurance that this is the right decision for you, then ask for a transvaginal ultra sound. I had one and it showed that my uterus was the size of a 12 week pregnancy, which led my doctor to the adenomyosis assumption. An ultrasound can also rule out fibroids and other such potential problems. I felt much better about my decision to have a hyster after I discovered that my uterus was enlarged. That made me think I had a real problem causing my symptoms.
Just to let you know that you can have all the adenomyosis symptoms and not have the trans-vaginal ultrasound show it. I'd had the symptoms for years- heavy bleeding, cramping, the other symptoms described on this board: leaking of the bladder, pressure when having a bowel movement, feeling bloated and moody, etc. I had a trans-vaginal ultrasound 2 years ago in my prep for the NovaSure Ablation to end the bleeding- the lining was thick, a had a very small fibroid, but uterus was normal sized. Then the symptoms started again and I had another trans-vaginal ultrasound in mid February- the fibroid hadn't grown, the lining had grown back, and the uterus was still normal sized. I had my TVH on 4-25-12, and in those two and half months, my uterus had more than tripled in size. The doctor said it was the largest she had ever removed. Point is, my symptoms were showing LONG before they could diagnosis it, and the pathology from the hysterectomy confirmed I had it. Most women who have adenomyosis only get their diagnosis AFTER the hysterectomy, like I did, but I fully believe I'd had it for years based on the symptoms I had. A trans-vaginal ultrasound 2 months before my hysterectomy still didn't show it.
  #35  
Unread 05-01-2012, 04:02 PM
Re: Women that have adenomyosis HELP!

My adeno didn't show up on my trans vaginal ultrasound either but my gyno believed I had adeno due to my symptoms my entire menstral life as well as enlargement of my uterus during exam. Mine was not confirmed until the doctor got the pathology report in after my surgery. I'm just glad I don't have to deal with that any longer. Now if we can just get my horomones & PMDD straightened out I'll be happy.
  #36  
Unread 05-03-2012, 11:51 AM
Re: Women that have adenomyosis HELP!

@ Beyon Blessed, i am so sorry u are going thru all of that, and i wish u well for ur upcoming surgery. i want to thank you for your post though, because almost all of your symptoms are me to a "T", and i have to talk to my dr. today about what kind of surgery wer are going to do. i am in pain all the time, as embarrassing as it is, i have the pee problem. i never related it to anything though. i cough and its like a flood raining down even after i just went to the bathroom. it has gotten worse. i am going to bring all of these issues up to my dr. here in couple of hours. i am ready for some kind of relief. just wanted to thank you again for posting about your experiences. HUGS
  #37  
Unread 05-03-2012, 01:48 PM
Re: Women that have adenomyosis HELP!

  Quote:
Originally Posted by carolina_gurl View Post
@ Beyon Blessed, i am so sorry u are going thru all of that, and i wish u well for ur upcoming surgery. i want to thank you for your post though, because almost all of your symptoms are me to a "T", and i have to talk to my dr. today about what kind of surgery wer are going to do. i am in pain all the time, as embarrassing as it is, i have the pee problem. i never related it to anything though. i cough and its like a flood raining down even after i just went to the bathroom. it has gotten worse. i am going to bring all of these issues up to my dr. here in couple of hours. i am ready for some kind of relief. just wanted to thank you again for posting about your experiences. HUGS
I had the pee problem pre op as well. My doctor told me my adenomyosis had made my uterus so large and heavy that it was sitting on my bladder and squishing it like a water balloon. She assured me post op that my bladder problems would be gone. She was right. I am 4 weeks post op and there is no leak when I sneeze or cough. Also the constant dribble of urine I used to have is gone now.For the past 3 years I used to wear panty liners 24/7 because of the constant dribble.
  #38  
Unread 05-07-2012, 04:07 AM
Re: Women that have adenomyosis HELP!

I had Adenomyosis and fibroids. The only way I could cope with having periods i.e. get out of bed to go to work was to take some blood clotting pills cykokapron. That helped.
  #39  
Unread 05-07-2012, 08:58 AM
Re: Women that have adenomyosis HELP!

I have severe endometriosis, adenomyosis, fibroids and cysts on my fallopian tubes. My endometriosis has progressed well up into my abdomen, they said I have basically an upside down T of adhesions and endometrial tissue. I was diagnosed with the endometriosis at 17 shortly after I went into the service but did not find out about the adenomyosis and fibroids until 09". I am having my hysterectomy on Friday to get rid of all this. I can't wait to get rid of all this pain. I have three week periods, the first two are literally practically lived in the bathroom because I use both a super tampon and heaviest absorbency pad and still overflow that within 30-45 min. I am tired of having to plan my life around this. And even when I am lucky and don't have the constantly heavy bleeding I am cramping. I have lived on percoset for the last few years and am looking forward to not living on that stuff anymore. I know the healing won't be fun but I figure it cannot be anyworse than what I have been through the last 11 years, right? Here's to hoping everyone finds relief!!
  #40  
Unread 05-07-2012, 06:21 PM
Re: Women that have adenomyosis HELP!

  Quote:
Originally Posted by mpwifey View Post
I have severe endometriosis, adenomyosis, fibroids and cysts on my fallopian tubes. My endometriosis has progressed well up into my abdomen, they said I have basically an upside down T of adhesions and endometrial tissue. I was diagnosed with the endometriosis at 17 shortly after I went into the service but did not find out about the adenomyosis and fibroids until 09". I am having my hysterectomy on Friday to get rid of all this. I can't wait to get rid of all this pain. I have three week periods, the first two are literally practically lived in the bathroom because I use both a super tampon and heaviest absorbency pad and still overflow that within 30-45 min. I am tired of having to plan my life around this. And even when I am lucky and don't have the constantly heavy bleeding I am cramping. I have lived on percoset for the last few years and am looking forward to not living on that stuff anymore. I know the healing won't be fun but I figure it cannot be anyworse than what I have been through the last 11 years, right? Here's to hoping everyone finds relief!!
11 years is well and truly long enough. I wish you so much luck with the surgery, hope they manage to cut/burn all endo, release all adhesions and that the hysterectomy goes smoothly for you. In my experience the healing is a completely different thing to the illness - even the pain (which is at times considerable) is different, as its healing pain, not disease pain, and therefore is working toward the positive. Coming slowly off heavy pain killers and seeing an end in sight for all pain killers is such an exciting thing. just be sure to really clear the decks for yourself before the surgery so you give yourself the best healing environment and the longest time possible to heal - it really can take 6 weeks or longer, and the more you allow space to heal properly the less likely things will go wrong. Best of luck.
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