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Surgery 5/1: possible adeno and endo Surgery 5/1: possible adeno and endo

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Unread 07-15-2012, 07:44 AM
Re: Women that have adenomyosis HELP!

Did u have abdominal or vaginal hysterectomy with adenomyosis?
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Unread 07-15-2012, 12:03 PM
Re: Women that have adenomyosis HELP!

Originally Posted by ang7925 View Post
Did u have abdominal or vaginal hysterectomy with adenomyosis?
Hi sweetie! I had a TDvH. My doc removed my uterus through my vagina.

Wow. This thread sure speaks to me. Here's my story... Going into surgery adenomyosis was never mentioned. I had most of the symptoms mentioned here - severe cramping, passing lots of blood clots, life long menstrual issues, heavy periods that lasted 7-10 days, and daily pain, pelvic pressure, awful bloating, and lower back ache as well as random leg issues, rectal pain during BMs, and irregular bowels during my periods. I was diagnosed with a tilted uterus in 2001 and stage I endo in 2009 during a routine tubal. Never, ever was it mentioned that the problem might be my uterus. Maybe it being tilted was to blame for some of the cramping. At this point I had given birth to three beautiful kiddos with great pregnancies. I was told at my PP/post-op check that once things were unbearable for me we'd go ahead with a hyster. Fast forward three years and my cycles and daily issues went from here and there to constant. Pain so awful at times that I wanted any narc med to just make it stop. This prompted me to make an appointment because my quality of life was drastically affected. Looking back I realize that for about 4 years I had lost interest in doing much at all - swimming, concerts with my hubby, etc - I was a total home body because of discomfort I wasn't even aware of at all times. I had reached the point when I didn't even really process any pain and when I did it was so severe that I couldn't do anything but cry.

During my annual, well... I had been naughty so it was three years, and talk to the doc appointment my GYN wasn't 100% with a hyster. She wanted to try medical treatments first before making the drastic choice. She did tell me that if a hyster was what I wanted then she'd do it but she wanted to rule out other easily treated conditions first so we scheduled an ultrasound.

During my ultrasound they found ovarian cysts, a severely retrograde tilted uterus, and that my endometrial lining was really thick but otherwise things looked normal. These things took my doc from preferring to do medical treatment directly to a hyster. There was nothing seen diagnostically that could tell her what was going on and she did not like what was going on with my cycles. Next one the list was a biopsy to rule out cancer. Boy oh boy the C word is scary. She wanted to do this so that if I did have endometrial or uterine cancer she could get the lymph nodes the first time in instead of me needing a second surgery. Well, the biopsy came back normal and boy I was miserable that night. Fast forward again... I figured my hyster was for endo, cysts, and yucky periods. I also worried that she'd get in there and find nothing of real significance and I would remain with no real answers and it wouldn't have been worth it.

When I woke up from surgery I noticed that the pelvic pressure and pain that I had been living with daily was gone. My back ache was gone. I was completely floored. I didn't realize until that moment just how much pain I had been in every day for who knows how long. Of course at this point I still didn't have any answers. All I knew is that she didn't find anything in there really unexpected, according to my husband, and that the surgery went well. Instead of the 2 hrs like she thought it took 3 hours. I'm still not sure what the extra hour was for.

At my 3 week post-op I learned that I had very minor endo. It has spread some from when I was diagnosed but it hadn't progressed beyond superficial stage I and was mostly on my uterus So... it turns out that the problem was my uterus - I had submucosal adenomyosis. She wasn't even going to do a path until she saw it. I even had a ton of extra veins going to my uterus to feed that bad boy. Hopefully all of this means that I should do very well in the future.

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