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Petrified and about to crack... Petrified and about to crack...

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  #21  
Unread 05-01-2012, 08:40 AM
Re: Petrified and about to crack...

I was terrified, too. It was awful, and I told only a small number of people. One blew off my concerns and just didn't understand. I will say the catheter didn't bother me at all and I had a good and easy experience despite my fears. At the end I thought, all my worries for just this? But beforehand I feared everything, I won't even list them in case it gives you more to fear. But not one came true, I'm happy to say. They are real concerns and you never know who will have issues so nothing anyone said before helped me. Ativan did help me, you might tell your Dr xanax isn't working, maybe a different dose or drug would help. Also I had only a weeks notice so less time to be fearful, and I didn't know how to prepare at all. If you have any questions we can help with, do ask. We are here for you.
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  #22  
Unread 05-01-2012, 09:03 AM
Re: Petrified and about to crack...

  Quote:
Originally Posted by greyown View Post
I was terrified, too. It was awful, and I told only a small number of people. One blew off my concerns and just didn't understand. I will say the catheter didn't bother me at all and I had a good and easy experience despite my fears. At the end I thought, all my worries for just this? But beforehand I feared everything, I won't even list them in case it gives you more to fear. But not one came true, I'm happy to say. They are real concerns and you never know who will have issues so nothing anyone said before helped me. Ativan did help me, you might tell your Dr xanax isn't working, maybe a different dose or drug would help. Also I had only a weeks notice so less time to be fearful, and I didn't know how to prepare at all. If you have any questions we can help with, do ask. We are here for you.
Thank you Greyown! That's helpful to hear. It's hard to imagine making it to the other side at this point but part of me knows it's possible. I may call and ask about Ativan then. Sadly, the only thing that calms me is an alcoholic beverage. It wasn't mentioned in my pre-op package although I had to stop my NSAIDS for two weeks. I go to pre-op appt Thursday so I figured I'd ask then. I'm surprised it didn't mention alcohol. Maybe they will say I blew it and I will say forget the whole thing.
  #23  
Unread 05-01-2012, 05:52 PM
Re: Petrified and about to crack...

Hey for those of you about to go to surgery, remember it is never too late to talk about concerns or ask questions. You can do so at your pre-op (there are some lists of questions on here which are good to go over) but even on the day of surgery, if my experience holds true there are pre-op talks with admission nurses, your anesthetist, surgeon etc before you go in for the surgery - last minute questions/concerns can still be addressed there. As my admission nurse said to me, 'you will only ever do this once; we do it all the time, so of course you are nervous, but you can ask anything and there's probably nothing we haven't come across before'. I found (having had 2 surgeries close together) that asking all the questions, speaking all the fears beforehand was really great for the wake up recovery when you are disoriented and perhaps in some pain and in a foreign environment - having nothing left to ask means your head's not spiraling and obsessing. Hystersisters help so much too - there are no dumb questions!!
PS: I know I've said this before but I am so glad I did this - better each day (& just 8 days post-op now...)! Keep positive. It helps!
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  #24  
Unread 05-01-2012, 06:09 PM
Re: Petrified and about to crack...

iwrbotb

My pre op instructions said no alcohol for 72 hours prior.

  #25  
Unread 05-01-2012, 06:30 PM
Re: Petrified and about to crack...

I had the same fears. You will know everything, there is nothing unknown. You know why you are having the surgery for starters. Is it laparascopic, or abdomen?? That makes a difference on what you can expect. This was my first surgery, and I had the same fears. the nurses talk you through it, and your doctor will fill you in. Have a list of questions available by next thursday. Go to Pre-op to view lots of information to prepare you. I will send you a private message on my experience from beginning to end, ok.
  #26  
Unread 05-01-2012, 07:04 PM
Re: Petrified and about to crack...

I'm almost 7 weeks post-op now, and can relate to everything you are going through. At first, I was very private about what was going on with me. I told my husband, of course. Then I told my supervisor, since I was going to be out for a few weeks. Then I attended an out-of-town training, and ended up going out to dinner with one of my co-workers. I ended up telling her all about it, and she ended up telling me all about her marital problems, and by the end of the evening a lot of the mystery and fear about the whole situation was diminished. We have the right to privacy, and when I talked to the admin person for filing the paperwork for FMLA, she said I didn't even need to tell my supervisor. But I had to coordinate with a lot of people to make sure miletones on my projects were either done early, postponed for my return, or delegated during my absense, and I found it easier to just say, "I'm going to be on medical leave for 6 weeks..." I ended up telling just about everyone that I was diagnosed with endometrial cancer and would be on leave for surgery. The upshot of this is that I was included in two different prayer circles, I had people who sent me flowers or cards, and my co-workers brought me care packages with homemade food for the first two weeks post-surgery.

I'm sorry to be so wordy. I found it really helped me to know that I had two different prayer groups that were including me, and to have friends who were giving me moral support. It meant more than I ever would have expected when my co-workers brought me care packages. So it might help if you are able to talk a little with some of your friends, co-workers, people at church if you are a church-goer, or friends in any other circles in your life (quilting group, mall walkers, or whatever) and let them know what is going on. This will at least give them a chance to show you support and any support can help lessen the fears.

Now some simpler things you can do. First, you can expect to be relatively stupid for the first week or two after you get home. By this I mean you get tired very easily, and anything that takes mental energy will be hard to do. So if you have anything you can take care of in advance, do it. I made sure our income taxes were done before going into the hospital, and that helped a lot. I would never have managed afterward!

Plan for the hospital. Plan a simple suitcase with toiletries, comfy loose sweats to wear home, maybe some cheerful baggy pj's to wear in the hospital, etc. I had a small tote bag with me too, that I could leave beside the bed with my hair brush, tooth brush, etc., so I could just reach down for it rather than rummage through my suitcase.

If you take any regular medications, make sure you have a list with you. Ask about every medication they give you, what it is, what it is for, and what dosage. I take medicine for my thyroid, and the first morning I was brought the wrong dosage. It was close enough, although a little less than my usual dose, so I knew I would be okay taking it. The second morning they didn't bring it at all. When my doctor showed up, I asked permission to take from my own prescription, which my husband had with him.

Make sure you husband knows what medications you are taking, what they are for, and of any allergies you have to medications, latex, food, etc., so he can help watch out for you.

In the hospital post-surgery, don't be afraid to call the nurse for things you want or need. If you are running low on ice water, or want juice or crackers to munch on, call and very politely ask for what you need. Keep an eye on the clock and when it is time for your pain meds, if the nurse doesn't come around, call and ask her when she'll be bringing them, don't wait until you are in pain and in tears. I went out of my way to be courteous to the nurses, and they were all very nice to me. After I got disconnected from the IV and catheter, if I wanted something, I walked down to the nurses station to ask for juice, ice water, or whatever, and they were always happy to see me up and walking.

As for the fears about surgery itself, I don't know what to say. I was terrified. I'm not young, and I am overweight and not what I would consider a good surgical candidate. But I knew it had to be done, so I tried to relax and let the medical staff take care of me. I wasn't aware of just when I actually went under, and I don't remember anything about the recovery room. I remember waking up in my room, with my husband there, and being very groggy. I was definitely happy to wake up alive! Fortunately with modern medicine, there are many tools and skills to keep us alive if something goes quirky during surgery. Knowing this doesn't necessarily help with the fears, any more than hearing safety statistics will erase fears of flying. But at least part of your mind can know that the outcome is almost certainly going to be good.

I hope all goes well for you. Lots of hugs!
  #27  
Unread 05-01-2012, 08:17 PM
Re: Petrified and about to crack...

Iwrbotb, I cannot explain to you the sigh of relief that I got after I read your post. I as well am freaking out. I have to have the abdominal cut it's not so much that I am worried about that I have had two c-sections so I know the incision is the same. But I am also sure the pain does not compare seeing as they are removing organs not a baby. I think you reading through the post will help ease your mind a bit it has definitely helped me alot. I also have a lot of people around me telling me I am going to be fine not to worry nothing is going to happen quit stressing about it. I also feel the same way as you basically wanting to say switch rolls with me and then tell me how you feel. Nobody understands exactly how you feel except for people that have experienced it. I know you are nervous but I am sure that once it is over you will be like man why did I stress so much. Im sure I will also be saying the same thing lol.I know it is scary but honey just realize you are NOT alone in this. I am also terrified when hearing the words can cause death but you gotta think that can happen with any surgery. There are always risks and there is always risk walking out your front door and getting in a car you just never know.. Technology has come a long way and im sure you will do just fine.. Sorry i'm rambling... But I wish you the best of luck sweety..When you feel well enough make sure you get on and let us know how everything went.. I know I will be finally happy when mine is over the short term pain I deal with afterwards will be nothing compared to what I have to deal with everyday and thats what im looking forward to...
  #28  
Unread 05-02-2012, 08:04 AM
Re: Petrified and about to crack...

  Quote:
Originally Posted by Angel2012 View Post
Hey for those of you about to go to surgery, remember it is never too late to talk about concerns or ask questions. You can do so at your pre-op (there are some lists of questions on here which are good to go over) but even on the day of surgery, if my experience holds true there are pre-op talks with admission nurses, your anesthetist, surgeon etc before you go in for the surgery - last minute questions/concerns can still be addressed there. As my admission nurse said to me, 'you will only ever do this once; we do it all the time, so of course you are nervous, but you can ask anything and there's probably nothing we haven't come across before'. I found (having had 2 surgeries close together) that asking all the questions, speaking all the fears beforehand was really great for the wake up recovery when you are disoriented and perhaps in some pain and in a foreign environment - having nothing left to ask means your head's not spiraling and obsessing. Hystersisters help so much too - there are no dumb questions!!
PS: I know I've said this before but I am so glad I did this - better each day (& just 8 days post-op now...)! Keep positive. It helps!
Thanks Angel2012! That's very comforting. I go for my pre-op tomorrow and I have a list a mile long. The support here is outstanding and I fully intend to "pay it forward" from the other side.
  #29  
Unread 05-02-2012, 08:05 AM
Re: Petrified and about to crack...

  Quote:
Originally Posted by cathb911 View Post
iwrbotb

My pre op instructions said no alcohol for 72 hours prior.

Thank you. I guess that would be safer
  #30  
Unread 05-02-2012, 08:07 AM
Re: Petrified and about to crack...

  Quote:
Originally Posted by ladybug2634 View Post
I had the same fears. You will know everything, there is nothing unknown. You know why you are having the surgery for starters. Is it laparascopic, or abdomen?? That makes a difference on what you can expect. This was my first surgery, and I had the same fears. the nurses talk you through it, and your doctor will fill you in. Have a list of questions available by next thursday. Go to Pre-op to view lots of information to prepare you. I will send you a private message on my experience from beginning to end, ok.
Thanks again for the extra info! I'm having LAVH, laparascopic assisted vaginal. I hope that doesn't change while I'm under.
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