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Unread 01-14-2002, 09:01 PM

Wow, this sight is so good for me! I too have been diagnosied /c fibroids. Somewhere btw a 4-5 month pregnancy is how enlarged my uterus is with the fibroids. Both my ovaries are cystic and I am schudeled for LAVH-BSO on 1-29-02. I am having doubts that surgery is the answer but more and more I can relate to others and similar symptoms. Heavy periods every 15-17 days, lots of clots, bloating, diarrhea, extreme fatique, cramping all the time, painful intercourse---yes it is time to change my life. My presurgical visit with the hospital is this Thursday, preop exam next Wednesday and then surgery the 29th. Okay I am ready! Thank you Hystersisters!
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Unread 01-14-2002, 09:24 PM

I was just diagnosed with a fibroid that is 5 inches. My symptoms were a lot of the above. Heavy, clotty, long periods and feeling bloated and uncomfortable. I also have had incontinence for 10 years. Coincendently the same legnth of time they estimate my fibroid has been the size it is. I didn't complain and just figured if I kept doing kegals it would get better, never figuring it was anything but weakened pelvic floor muscles. Now that I know what has caused the problem for so long I realize how uncomfortable I've been and have just gotten good at ignoring my body. I see a specialist the 24th. In the meantime this site has been wonderful. I'm learning all the right questions to ask my GYN.
Unread 01-14-2002, 09:40 PM

Hello Peggy, all I can say is that I felt a lot better after my surgery. I had mine in 1983 after being on the pill for ten yrs. I had fibroids the size of grapefruit and thank God they were not cancerous. I had irregular peroids and looked like I was 4-5 months pregnant. I was tired and weak all the time. When I went for my can imagine how painful it was.I know you're wondering if you are making the right decision but all I can say is I felt better after my surgery. I had a daughter that was10yrs at the time..I wanted one more child at the time but being healthy to take care of m daughter was more important. I have been on premarin O.625 since then. God be with you in any decision that you make. Feel better soon. Diane
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Unread 01-14-2002, 11:57 PM

I have a very large fibroid, about the size of a five month pregnancy. During my long frequent periods my abdomen would get very distended.
My other symptoms include very heavy periods for the past 10+ years, getting increasing longer and more painful over the years; really really REALLY heavy bleeding with huge gross clots - ewwwwww! - which caused extreme pain for about an hour before and when they were passed; low back pain; sharp pain in the area of my right ovary (doubling over kind of pain); abdominal pain all the time, even on those rare days when I wasn't bleeding; a very heavy feeling in my lower abdomen and a feeling of fullness in my vagina. My lower abdomen is so tender that it hurts like heck when the smallest of my three cats (about 7 pounds) tries to climb up on me to cuddle. And it hurts if my abdomen is palpated, if I lie on my stomach, or if I wear clothing with a fitted waistband.

Also anemia - very bad! And debilitating permanent fatigue as a result. Shortness of breath, muscle pain, I often have felt as if I've been hit by a Mack truck or something similar.

I'm in the process of getting ready for surgery right now, and I hope to have it in a couple of months. Good luck to you! Be sure to have everything checked out medically and properly diagnosed.
Unread 01-15-2002, 06:57 AM

Hi Cathy
About 4 years ago I just started getting very heavy periods, and I used to very all my life, have periods so mild I didnt even know it was coming.
Now because I hadnt had a pap in 9 years at that point
I was worried about cancer and other things as my periods got heavier and more clots etc, cramping and coming every 3 weeks. An ultrasound at that time showed a fibroid on the uterine wall about the size of a golf ball. I tried bcp for a couple years, but it only got worse, then I was referred to a gyn. Meanwhile I had developed gallstones (completely unrelated) and had surgery for that so I opted to postpone the hysterectomy.
The bleeding got heavier to the point where I had day 2 which I nicknamed "hemorrhage day" but it really was! After checking my hemoglobbin before one period, it went from 105 (normal is 120-160) to 88. I was also experiencing a very annoying clear fluid discharge. Right after a period this discharge would be pinkish with miniscule clots in it, gradually turning less pink. This discharge which I eventually found out was NOT urine would come in "floods" any time. The flooding of this stuff increased gradually over the past 6 months. The week of Christmas I had to discontinue all my "bleeding pills" in preparation for my Jan 7 surgery, I had the WORST period of my life. I swore I was in labour! The bleeding was extensive and cramping was horrendous, and after that stopped, the clear fluid (we call it fibroid-aide ) or "serous fluid" was soooooooo heavy I was soaking 8-10 overnight thick pads a day for the last week prior to surgery. I found out after the surgery that my fibroid had grown the size of a huge orange or small grapefruit and had prolapsed from the uterine wall into my cervix hanging by a thread. My cervix was dilating, so I actually truly was experiencing real labour pains my said. He said I must have been in horrible pain the past month and that I was going to feel soooooo much better and that it was very gratifying to do this surgery for me. I was able to keep both ovaries, though he said he "popped" a few superficial cysts from my left ovary, and I've kept my cervix.
I am soooooooooooo thankful I didnt wait for summer (like I wanted to) for this surgery! I would have literally passed that fibroid! I cant imagine the horror that would have been. Though said there would have been so much blood and pain I'd be rushed in for emerg. surgery.
Fibroids are rarely cancerous but extremely pesky!!!!!!!!

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