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Hysterectomy due to endometriosis Hysterectomy due to endometriosis

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  #1  
Unread 01-14-2002, 03:09 PM
Hysterectomy due to endometriosis

Has anyone had a hysterectomy just because of endometriosis? I have been reading all of these messages and I am wondering if I am doing the right thing. Most of my pain is during my period with only a few days of really bad bleeding. The pain the rest of the month is uncomfortable but bearable. Should I wait till it's not. I had a tubal 5 years ago so I know I don't want anymore kids. My lapsoscopy in Dec. the Dr couldn't get all the endo because there was so much so he cut the nerves but appartently that didn't work too well because there was no difference in my pain 1 month later.

Just in need of a little advice.
Tracy
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  #2  
Unread 01-14-2002, 03:40 PM
Hysterectomy due to endometriosis

TracyH,
I had endometriosis, adenomyosis and some tiny fibroids. Once my doctor got inside he was amazed at the extent of the endometiosis and adenomyosis of the uterus. I am just one year post-op and feel so much better. You may wish to get a 2nd opinion from another doctor. Obtaining a 2nd opinion may put your mind at ease. I do know that I did the right thing.

Hugs,
Patty
  #3  
Unread 01-14-2002, 03:53 PM
I did

Tracy:

I had stage IV Endometriosis. Yes, I had a hysterectomy because of it alone. But let me explain. I had very large (7CM) cysts, called endometriomas, on each ovary. I had scar tissue and endometriosis everywhere. My ovaries were engulfed, and were stuck to the pelvic sidewalls. I never knew I had it until my "lap" in May. I was starting to have some apin from this at all times of the month, although not severe. I had been trying to get pregnant, so the news was devastating. But, it boiled down to this- since there was no way to get pregnant, no way to remove the cysts without the ovaries, I decided to do what was best for my health. Endometriosis can get very bad and spread to a lot of weird places, causing havoc in your body. I just wanted to get rid of it the only sure way. At least, I hope it's all gone. Sometimes, they do miss some. I don't know how bad yours is, or how treatable. Unfortunately, mine was too advanced to really treat when I finally found out about it. Yes, it was an agonizing decision. I suggest you read all you can about endometriosis, and get several opinions. I got 3. By the way, I did very well in my recovery. The surgery was not as bad as I had anticipated. Good luck with your decision. Please keep us informed!!
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  #4  
Unread 01-14-2002, 05:48 PM
Hi Tracy!!

I really think that pain even bearable pain is something you shouldn't have to have if there is a way to relieve it. Have a 2nd or 3rd if it will put your mind at ease. I waited 15 years too long. I suffered all those years and I could cry when I think of the things I went through and didn't have to. I had a tubal after my DS he is the only one I have and could have. So children wasn't my excuse it was just I didn't want to have surgery.

God Bless and read and research. Talk to your DR. and
  #5  
Unread 01-14-2002, 06:55 PM
Hysterectomy due to endometriosis

I too, am going in (on January 23rd) for a Hysterectomy for endometriosis. I am tired of the painful periods, heavy bleeding and terrible backaches. My Doctor was very receptive to this procedure to alleviate my pain. I trust him 100% I am worried that I will have other issues to deal with, once he goes in and see's what's going on. I have painful bowel movements and pain during sexual intercourse. I also feel like my hormones are out of whack! I am nervous, but confident, that I have made the right decision about having this surgery. The rest is in God's hands!
Good luck to you!
  #6  
Unread 01-14-2002, 08:42 PM
Hysterectomy due to endometriosis

Hi, Tracy.

I've only just discovered this website and read your post tonight. I am scheduled for a TAH/BSO on February 20 for endometriosis. I was first diagnosed 16 years ago when I had severe, incapacitating pain. A year later, I had my first child, and 4 years later the disease started to return. After my son was born a year later, I really had very few complaints. Over the last 10 years, I would have a period or two of severe pain maybe once or twice a year. Last year, I went in for my regular exam and my dr. said my ovaries were significantly enlarged. After two ultrasounds, we determined that they were 3-4 times their normal size. He then did a laparoscopy and found that the endo had spread to my diaphragm, was on my intestines, near my liver and the ovaries were attached to the pelvic wall. All this and no pain for quite a long time now. Strange disease. I was given an injection of Lupron Depot in November and will have the surgery in Feb. It's strange to think about it since I'm relatively symptom free, very healthy otherwise and feel pretty darn good most of the time. But the dr. says he's looking out for my future since the endo has spread so far outside the pelvic area.

Anyway....I've been with my dr. for 20 years so I trust him with my life. But if you're at all unsure, do get another opinion, just to put your mind at ease. I never thought I'd be getting a hysterectomy...I've always been healthy, but this disease is not picky as to who it attacks.

Best of luck to you,

Michele
  #7  
Unread 01-14-2002, 09:13 PM
hard decision...

I had my TAH(kept left ovary) on 12/28 NOT because of endo but because of adhesions. After my surgery I was shocked to find out that my doc found endo while he was in there on my bladder. I have never had a problem with endo before and hope that it wont become one. My doc says I will probably have to go on Lupron therapy to treat that endo. Just keep in mind he might not be able to get all the endo by doing the hyst....your right very hard decision....they really dont know until they get in there! Good luck!!! Keep us posted.
  #8  
Unread 01-14-2002, 09:55 PM
Hysterectomy due to endometriosis

Hello Tracy,

Well I am going in at 8 am today(although its only 10 pm here yet..lol) for a LAVH for endo. Yes so far thats all I am suffering from, I have had several ovarian cysts in the past but nothing compaired to the pain from endo. We, my Doc and I, have been shuffling the hormones/steriods around as well as various pain meds for yrs now. Although I'm frightened of "going under the knife" Im certain this is the best answer for me at this point.

But you have to make the right choice for you. As with any procedure there are pro's ad con's. If you don't think the good out weighs the bad I say talk to other doc's. Make sure this is something you really feel is the best option for you. There are many alternatives available if you are willing to try them.

Good Luck and keep us posted...
  #9  
Unread 01-15-2002, 07:28 AM
Hysterectomy due to endometriosis

Thank you everyone for your advise. I get my surgery date today. Hopefully I won't have to wait too long. I trust my Dr. He's been my Dr. for 13 years or more so I am comfortable with his decision. Hearing from all of you has helped lot too.
Thanks
Tracy
  #10  
Unread 01-15-2002, 08:27 AM
Hysterectomy due to endometriosis

Hi everyone, I have a friend with stage 4 endo and she is having problems finding the right dr to perform her hyster. Did anyone have a specialist, or did all of you have a regular obgyn?
She has been seen by a fertility specialist (because of his knowledge of endo) but they didn't "click". He told her a uro/gyno wouldn't be able to help her but that might be just ego talking. She has adhesions on her colon and prob. bladder also. I would appreciate any suggestions.
Good luck to Tracey on her decision. It can be one of the most difficult choices a women can make. For me a hyster was the right decision but everyone is so individual. Best wishes for the wisdom to make the right choice for you.
Tam
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