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Hysterectomy due to endometriosis Hysterectomy due to endometriosis

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Unread 01-15-2002, 09:45 AM
Hysterectomy due to endometriosis

My Dr is my regular OB/GYN.
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Unread 01-15-2002, 10:11 AM
Hysterectomy due to endometriosis

Hi Tracy:

I too had the surgery because of endo (also had a number of very large ovarian cysts and had removed one ovary earlier). But, it was still a choice - the dr. wanted to try Lupron, but because I had had two children and the endo had always returned immediately after I stopped breast feeding, I thought that Lupron would only be a temporary solution.

Like many of the others who have posted, I too had adhesions everywhere and the dr. had to do some careful work to save my urether. It has only been a month and I'm pretty confused about the hormone/no hormone thing (no hormones right now - feel fine) but I don't have the endo or the fear of ovaries that grow things.

be well,
Unread 01-15-2002, 10:18 AM
Hysterectomy due to endometriosis

I had a wonderful Doc who I was with for a long time and he got cancer and left his practice. This put me in a desperate situation knowing all the problems I had. He referred me to 2 docs. The first just wanted to do a hyst right off (this was before anything else had been tried) that did not sit well with me. So I go to this "so called" specialist. This guy was unbelievable and had no bed side manner. There was no way I was letting him touch me. Finally, a friend referred me to her doc and she had problems too so I went in to see him and we had instant chemistry. He is no specialst just a obgyn. I dont think you ness. need a "specialist" to find the right doc. It is just a matter of how you relate to the person and if you agree on a treatment plan. Good Luck!
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Unread 01-21-2002, 05:40 PM
specialists too

In response to the question about having a specialist for this surgery. I had stage IV endo. Since it was so widespread, near the bladder and bowel, my ob-gyn who did the surgery had a bowel specialist and urologist to assist him.
Unread 01-24-2002, 05:14 AM
Hysterectomy due to endometriosis

Hi, Tracy,

I'm having a TAH because of endo I've had for almost 10 years, been on pain meds forever. I'm ready to do it. I've had two laporscopies, but it keeps coming back stronger and stronger. I was supposed to have it done tomorrow but DR. cancelled. I'm 34 and have two children 11 & 9. I can't deal with the pain any longer and feel its for the best. My OB would not even touch me because he knows I'm in such pain. I've heard that after it's done, you feel like a new person. I'm praying for that. Good Luck!
Unread 01-24-2002, 05:57 AM
Hysterectomy due to endometriosis

I will be having a hysterectomy because of endometriosis in the next coming months. For me the endometriosis has really progressed. I had an MRI and CAT scan showing I have a mass of it on my colon too, so I will have a bowel resection with my total hyst/BSO. I think everyone situation is different, and getting a second opinion would be great to ease your mind. I know for myself that I have suffered so much and for so long trying to avoid a hyst, but for me it has finally come to "I have suffered enough and can't go on like this any longer." Sometimes in between our periods or pain cycles, we think, "well this isn't so bad, I think I can handle this and don't need that hyst." Then we get a period or a pain cycle and we are thinking, "why didn't I have that hyst and have it yesterday!" I hope you get that second opinion and you will have peace with whatever you and your doctor decide
Unread 01-24-2002, 06:58 AM
Hysterectomy due to endometriosis

I'm glad you asked this question! I am in a very similiar situation and I'm having difficulty deciding if "I'm bad enough" with endo or not. Most days, I am very aware of ovaries due to mild pain and then there are times where I'm ready to perform my own surgery! The number of days of my "awareness" of my ovaries in on the increase and then, there are those times when I sneeze or move just the wrong way and a knife stabs me. Overall, I pretty much have become an over the counter pain junkie! In any event, about 5 yrs ago I had a lap & D&C. Since then, I've done Lupron. In hindsight, I think its just a bandaid and kind of delays the inevitable. I can tell that my pain has "spread" throughout the last couple of years and it consumes most of the month. I still function but my quality of life is not quite the same because there are days when I just don't feel well and can't exercise or don't feel like "walking around too much." I just went for a second opinion and he too, advises a TAH/BSO. I haven't scheduled it yet because I'm leary.... but the more I read the post-op posts, etc., I'm gaining the strength to make the big decision. Hang in there. I don't think I've helped you all that much but we sound like were quite a bit alike. I'm starting to wonder if I remember the last time I really felt good! Ask yourself some questions like that....When I did, I started to think that maybe the result will be worth it!
Unread 01-24-2002, 09:07 AM
Hysterectomy due to endometriosis

It does sounds like we are in exactly the same situation. It is comforting to know I'm not alone. I had a laproscopy on Dec 17 that did nothing to help with the pain but I didn't want to jump right into a TAH, so we tried that first. I was so nervous when we decided to go ahead with the hyst. This site and reading about everyones experiences has made me comfortable with my decision. Now I just wish I didn't have to wait another month to get it over with.

Unread 01-24-2002, 09:47 AM
Hysto due to Endo

I am having one April 1st (What a day to do it on!) because of my stage 4 endometriosis. Mine in causing me to miss 1 or 2 days of work a month because of the pain, and the heavy bleeding I have also made me anemic, so I have to take iron supplements to even be within the low end of the "normal" iron range of the blood tests. Endo is a progressive disease, so it can get worse with time. Both my older sisters has hystos because of endo. One of them had the endo lasared, but it came back so she had to have a hysto anyway. My insides are literally glued together now, but luckily it has not penetrated the bowel wall. There is pressure on my bladder, so I urinate a lot, including having to get up at night to go. Lupron offered me some relief in 1997 and 1999, and I took again in 2001, but it wore off much faster and nothing shrank as hoped. Even my cysts are as big as before. SO this procedure may indeed get you relief from the endo. Even bearable pain is a drag--my one sister says that I will just feel so great to be pain-free!
Good luck to you!
Unread 01-24-2002, 11:07 AM
Reply to Tracy

HI Tracy,
Sounds like we are similar cases. I too had a lap done in mid Dec. My doctor had found a 7 cm cyst on my right ovary. Once inside he discovered endrometriosis so bad he did not feel comfortable trying to remove it at that time. He drained the cyst to help until he could schedule my hysterectomy. I too did not know I had endrometriosis until my lap. I tend to tolerate pain pretty well so when I would have a painful period I would just "bite the bullet" so to speak and keep going. I read later that it in not uncommon for women with the worst cases of endro to not know they have it until something else, such as a cyst requires a closer look.
Anyway, my Dr and his staff went out of their way to help me get my surgery scheduled ASAP...not because he was in such a rush but because my Hubby is in the Navy and is scheduled to deploy for 6 mos. in Feb but had been told to be prepared to go sooner!
Surgery was Jan 3, the day a major snowstorm hit. (Well, it was major for this part of the country!) Anyway, 2 surgeries before me cancelled so, I got to go in early and was in my room watching it snow out the window early that afternoon. I bounce back really quick and have had to remind myself to take it easy and not push it. Tomorrow I go for my 3 week check, I'm afraid he's going to say I can go back to work!! I don't wanna!! *LOL* Having too much fun surffing the web and watching Home Improvement shows and catching up on some craft projects! Bottom line, I'm feeling great, was only in the hospital two nights and then came home where my wonderful hubby was able to take off 2 weeks to be with me. I DO wish I'd found this board BEFORE I had my surgery, it's nice to have people to talk to about what you are going through.

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