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Question about lymph nod removal Question about lymph nod removal

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  #1  
Unread 01-21-2002, 05:13 PM
Question about lymph nod removal

When I had my radical TAH in May 2000, they ended up taking more lymph nods from one side than the other because the cancer started to spread.

This wasn't a problem until this past February (2001) when I decided to go back to work. By my 3rd day at work, my whole left leg swelled up .... and it's been swollen since. It's the pits! I've been to the Dr. about it and he basically told me that there's nothing that can be done about it ... just wear compression stockings. They just don't really help much. My legs have not been the same size for 11 months. *sigh* Oh, and every 4 months, I get a skin infection in the leg that's so bad I can barely walk. They just dose me like crazy with antibiotics and it goes away in a few days, but it's no fun.

Now that I've rambled on, my question is ... has anyone else had to deal with anything like this? How do you manage the swelling? It's difficult to find pants that fit my leg, I will NOT wear shorts or short skirts anymore. How do you do it? It's like a constant reminder of the cancer that I now have to live day in and day out with. =(
Any suggestions are greatly appreciated.

TIA
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  #2  
Unread 01-21-2002, 05:44 PM
Question about lymph nod removal

Hi Janet,

I won't be much help, and I really don't have any suggestions either.
I have heard of women who have had lymph nodes removed for breast cancer having something in their arms called lymphadema (sp)...I believe its called. Has your doctor said that this may be the same type of thing as that? It sounds very similiar.

A friend of my sisters who had breast cancer has a special sleeve that she wears to help with this. I believe they can be custom made for each individual and that makes them more comfortable I am so sorry you have to deal with this as I can see where it would be a reminder to you of what you have been through.

Hopefully someone will be along who has some information to share on this.
Hugs!!
Maria
  #3  
Unread 01-21-2002, 08:20 PM
Question about lymph nod removal

Hi Janet!

I'm so sorry you are having this happen, it certainly doesn't sound like a very comfortable situation.

It sounds like Maria may have the right idea, I checked out several sites and there wasn't alot of information easily found but I did run across one article that mentioned more on this condition.

http://cancernet.nci.nih.gov/cgi-bin...rchform:PDQ:#3

I hope you'll find it helpful and was curious, is the Dr you've seen about this your regular Dr or your oncologist? Maybe a different Dr consult may be in order to see if there is something that can be done to ease this for you.

I will be keeping you in my thoughts and prayers and hope you'll soon find some relief.

{{hugs}}

Vicki
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  #4  
Unread 01-21-2002, 08:29 PM
Question about lymph nod removal

Vicki - thanks for the link ... I plan to check it out right now. =)

We are military so I haven't seen my oncologist for over a year ... I've been going to my regular Dr. for this. I'm due for another skin infection to plague me in April. I am definitley going to request to see a specialist at this time. I'm thankful that it isn't really painful ... just very uncomfortable, especially when it gets really swollen.
  #5  
Unread 01-21-2002, 09:48 PM
Question about lymph nod removal

Hi Janet!

Its been a while since I dealt with military Drs but is it possible the oncologist may be able to help you with this or would it require a different specialty.

It sounded from the little bit I read on this that this isn't uncommon, especially as Maria mentioned with breast cancer patients, so I'm wondering if an oncologist may be pretty familiar with this and have some ideas on how to help.

I'm glad to hear that its not painful but still, that doesn't sound very pleasant for you.

Big for you!

Vicki
  #6  
Unread 01-22-2002, 02:06 PM
Question about lymph nod removal

Hi, Janet!

So sorry to hear you are having problems. Ask your doc to go see a physical therapist. Many are specially trained in mobilization techniques to get that lymphedema on the move. And they can fit you with a custom-made compression garment that might be of help to you. Good luck!
  #7  
Unread 01-22-2002, 04:28 PM
Question about lymph nod removal

Vicki ... I'm hoping that when I tell my PCM (primary care manager [reg. Dr.]), that I want to see a "specialist", that he'll send me to an oncologist ... perferable not the one who did my surgery. I wasn't too crazy about him, plus I'm kinda upset that he never mentioned anything to me that I might have swelling problems or anything like this.
  #8  
Unread 01-22-2002, 04:33 PM
Question about lymph nod removal

Jeanine ... Thanks for the suggestion. I never thought about seeing a physical therapist! I considered a massage therapist (I have a friend who was going to school for this and they learned about the lymph fluid thing), and I'm even considering acupuncture. I will ask my dr. if our insurance covers physical therapy though!
  #9  
Unread 01-24-2002, 10:46 AM
Suggestions for the swelling.

Hi there. First of all, I'm sorry you have to go through this. It's never easy. A co-worker of mine had a lymph node removed from her arm not too long ago. After reading your post, I aksed her if she gets the swelling. She replied that she does, and also stated how very common this is. Well, I asked her what she does for it, she told me that she sees a physical therapist for this, and that her P.T. actually specializes in this sort of thing. Please go back to your doc and ask him/her for a referal. I can only hope that our government has good enough health insurance to cover this medical need. Good luck in your continuing recover, and know that you're not alone and that's it's so okay to vent here.

Char
  #10  
Unread 01-24-2002, 01:31 PM
lymph nodes

I know the feeling, my left ankle and behind me knee feel as if there is an elastic band,insect bite or sunburn on them. I was advised to get a lymph massage, eat low fat, moistureise my legs from my feet back towards my heart, be active and when sitting always sit with my feet up, wear compression tights or stockings ( I wear the stockings because only my left leg is bad). Never shave your legs with a raxzor use creams or preferably an electric razor and I can't think what else.
Hop is this helpful
Patricia M
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