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Pelvic Organ Prolapse Complications & Recurrent Prolapse Pelvic Organ Prolapse Complications & Recurrent Prolapse

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  #1  
Unread 09-03-2012, 11:44 AM
Angry - Pelvic Organ Prolapse Complications & Recurrent Prolapse Pelvic Organ Prolapse Complications & Recurrent Prolapse

Need some HELP!! This is a long painful story; please read till the end. Last Halloween 2011, following a diagnosis of pelvic organ prolapse stage 3+ I underwent a laproscopic supra cervical hysterectomy,sacrocolpopexy and cystoscopy.

The day after surgery I complained of vaginal burning and told it was from the catheter. One week later I had horrific abdominal pains (childbirth was easier and more rewarding) and told it was bladder spasms. Given pain pills and flexerall muscle relaxers. Saw the surgeon 6 weeks post op, pains continued, return for pelvic floor physical therapy and back to work.

Pains continued and are vaginal and rectal (feel like I'm sitting on a rock). I am living on Miralax since surgery too. Saw surgeon in February(4 months post-op). Did MRI and said she has never had seen these problems post-op. Really?? Sent to a gastro doctor for another opinion. Diagnosed with levator ani syndrome. Heavy muscle relaxers, PT and on disability from work for 2 months. Miralax dosages 2 x day. Prior to surgery never needed this product. After 2 months gastro doctor recommends pain management. Surgeon has dismissed me and I wouldn't go back anyhow. PT agrees there is no progress.

Summer 2012, being treated by pain management and have a new uyrogynecologist. Following colonoscopy and cystoscopy (which were ok), now being told I should be on estrogen cream, gelnique for bladder spasms. (and why didn't my original surgeon prescribe this instead of flexeral?) In addition, I now have a paravaginal defect lateral cyctocele prolapse stage 2. And oh by the way, as for the rectal pains, during the original surgery a nerve may have been impacted; thus leading to the rectal pain. New doctor is planning to fit me with a pesary; did the original surgery so I wouldn't need a pesary. I will probably have surgery to fix this issue at some point.

Did I mention I continue to work full-time and spend my days either sitting on a donut cushion or standing at my desk. Started yoga for relaxation.

Soooo, has anyone else had complications like mine, or as my original surgeon said, she hasn't seen someone with my issues. She told me I'd be doing great 5-6 weeks post surgery.

I'm only 57 and now I am almost a year from my initial surgery. I knew the surgery would not be a walk in the park, but this is beyond. Sorry to vent. Frustrated and I hurt!
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  #2  
Unread 09-06-2012, 07:51 AM
Re: Pelvic Organ Prolapse Complications & Recurrent Prolapse



Do a search on here, I know we have had past members with the same diagnosis but not sure they are still posting. Feel free to vent here as well.
  #3  
Unread 09-07-2012, 09:40 AM
Re: Pelvic Organ Prolapse Complications & Recurrent Prolapse

Thanks so much for your response to my posting. I'll take your advice and search the site. Last time I looked I didn't see anything. If you ask my original surgeon, I'm the only one she has heard of with my problems.

I continued to research my issues and found a new Dr; really great and wants to find a way to fix my pain and prolapse problems. Did tell me this will take awhile, particularly since I am dealing with issues from the first surgery and now have the 2nd prolapse.

Thanks again.
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  #4  
Unread 12-17-2012, 05:15 PM
Re: Pelvic Organ Prolapse Complications & Recurrent Prolapse

  Quote:
Originally Posted by rsc5660 View Post
Need some HELP!! This is a long painful story; please read till the end. Last Halloween 2011, following a diagnosis of pelvic organ prolapse stage 3+ I underwent a laproscopic supra cervical hysterectomy,sacrocolpopexy and cystoscopy.

The day after surgery I complained of vaginal burning and told it was from the catheter. One week later I had horrific abdominal pains (childbirth was easier and more rewarding) and told it was bladder spasms. Given pain pills and flexerall muscle relaxers. Saw the surgeon 6 weeks post op, pains continued, return for pelvic floor physical therapy and back to work.

Pains continued and are vaginal and rectal (feel like I'm sitting on a rock). I am living on Miralax since surgery too. Saw surgeon in February(4 months post-op). Did MRI and said she has never had seen these problems post-op. Really?? Sent to a gastro doctor for another opinion. Diagnosed with levator ani syndrome. Heavy muscle relaxers, PT and on disability from work for 2 months. Miralax dosages 2 x day. Prior to surgery never needed this product. After 2 months gastro doctor recommends pain management. Surgeon has dismissed me and I wouldn't go back anyhow. PT agrees there is no progress.

Summer 2012, being treated by pain management and have a new uyrogynecologist. Following colonoscopy and cystoscopy (which were ok), now being told I should be on estrogen cream, gelnique for bladder spasms. (and why didn't my original surgeon prescribe this instead of flexeral?) In addition, I now have a paravaginal defect lateral cyctocele prolapse stage 2. And oh by the way, as for the rectal pains, during the original surgery a nerve may have been impacted; thus leading to the rectal pain. New doctor is planning to fit me with a pesary; did the original surgery so I wouldn't need a pesary. I will probably have surgery to fix this issue at some point.

Did I mention I continue to work full-time and spend my days either sitting on a donut cushion or standing at my desk. Started yoga for relaxation.

Soooo, has anyone else had complications like mine, or as my original surgeon said, she hasn't seen someone with my issues. She told me I'd be doing great 5-6 weeks post surgery.

I'm only 57 and now I am almost a year from my initial surgery. I knew the surgery would not be a walk in the park, but this is beyond. Sorry to vent. Frustrated and I hurt!
I had cystocele and rectocele repair on October 11, 2011 but I the doctor did not perform a perineal repair to stich those much needed muscles together for support. I than had another surgery for the perineal repair and those muscles were finally stiched together. Now I have a recurrent rectocele and I believe it is because when the perineal repair was not done following the repairs and because at the time I had my 2nd surgery it had already been 5 days since having a bm and I told the nurse on the day before surgery and the doctor on the morning of surgery. Finally on the 7th day I could not take it anymore and my husband made up all kinds of homemade remedies for me to go... I was in the bathroom for 2 1/2 hours in agony trying to go.
  #5  
Unread 12-18-2012, 04:10 AM
Smile - Pelvic Organ Prolapse Complications & Recurrent Prolapse Re: Pelvic Organ Prolapse Complications & Recurrent Prolapse

This is so tough to deal with, had my pre-op yesterday for cystocele revision, this repair was good at 3 months post-op, then failed during the 4th! So I know how you are feeling, think now acceptance has arrived to a certain degree, I just hope that eventually we can all get some kind of feelings of normailty in our lives instead of being continuously affected by surgery. Please keep updating on how you are 'getting on' x C
  #6  
Unread 03-15-2013, 04:22 AM
Re: Pelvic Organ Prolapse Complications & Recurrent Prolapse

I find post op the nurse don't care if you open your bowels, they give you peppermint tea how is that going to help. My specialist gave me movicol it softens it making it easier. The worst thing is sitting on the toilet that long after having a repair.
  #7  
Unread 03-22-2013, 07:14 AM
Re: Pelvic Organ Prolapse Complications & Recurrent Prolapse

  Quote:
Originally Posted by wesisters View Post
I had cystocele and rectocele repair on October 11, 2011 but I the doctor did not perform a perineal repair to stich those much needed muscles together for support. I than had another surgery for the perineal repair and those muscles were finally stiched together. Now I have a recurrent rectocele and I believe it is because when the perineal repair was not done following the repairs and because at the time I had my 2nd surgery it had already been 5 days since having a bm and I told the nurse on the day before surgery and the doctor on the morning of surgery. Finally on the 7th day I could not take it anymore and my husband made up all kinds of homemade remedies for me to go... I was in the bathroom for 2 1/2 hours in agony trying to go.
I have similar situation. had prolapse repairs 4.5 weks ago- and no perineum repair so rectocele is the same. I am having the perineum surgery in about 10 days. I am recovered msotly from hysterectomy and vag suspension. i am sorry to hear of your troubles, I too am worried and upset this was not part of my original repairs!!
  #8  
Unread 04-07-2013, 04:27 PM
Re: Pelvic Organ Prolapse Complications & Recurrent Prolapse

What does a Rectocele feel like? I'm very uncomfortable with my prolapsed bladder when my rectum is full. Could I have a rectocele too?
  #9  
Unread 04-07-2013, 06:54 PM
Re: Pelvic Organ Prolapse Complications & Recurrent Prolapse

Its when your bowels push into back of of vagina and perineum as the bladder pushes into the front with cystocele.
  #10  
Unread 04-10-2013, 08:14 AM
Re: Pelvic Organ Prolapse Complications & Recurrent Prolapse

I have had surgery for prolapse three times. I have an excellent doctor now who finally "fixed" the problem by using "pig" tissue instead of mesh for a sling. So far that has been good. However, I do understand about the bowel problem and the medical staff not telling you about going after surgery. I went five days without a movement and then was in agony. The only thing that helped was Magnesium Citrate. You can buy it anywhere and I had to drink the whole bottle, but did get relief. A few years later, I began having pain and discomfort again and thought that my prolapse problems were back. Finally found a doctor who diagnosed me with IC and put me on medication. I'm doing okay now and hope to continue without having to go through anymore surgeries for this. I can well understand your frustration at not knowing what is causing all the pain or how to treat it. I do hope you've found answers by now.
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