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I have changed my mind.... =o) I have changed my mind.... =o)

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  #11  
Unread 01-27-2002, 10:06 PM
Big Decision

Well, I am going to have surgery tomorrow and haven't changed my mind since I don't have any doubts. Good for you for following your gut feeling about your situation. Best to research further, and try all your options. I have lived with my problems for 10 years, it pays to be absolutely sure. Best of luck.
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  #12  
Unread 01-28-2002, 05:46 AM
I have changed my mind.... =o)

Julie,

Hey you have got to do what is right for you. I'm glad you are thinking this through very carefully because there are other options and if they don't work you can always go have the hyster later. I would hate to think of anyone one getting this surgery done and later regretting it. There would be no going back after it was done.

I tried all the options I could for 5 years. I too put off having the surgery. Now that it is done I am happy. Maybe I would not have been happy the first time a doctor suggested I have a hyster and went and did it. If you can understand what I am trying to say?

Good luck to you on the pill. It helped me for about 3 years.

Sparkler :muscle: Be strong and of good courage!!
  #13  
Unread 01-28-2002, 06:59 PM
I have changed my mind

Julie B.: I am happy that you have come to a decision that feels right for you. Peace in your heart and mind are the most important things when dealing with these types of health issues. I really wish the best for you, and genuinely believe you have made the best choice for yourself. Best wishes and thoughtful prayers to you.

Keep in touch!!
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  #14  
Unread 01-28-2002, 07:46 PM
Update....

Thanks so much to all of you!!!! I talked to my doctor at length today and he is ordering an MRI of all my pelvic organs ASAP! He is almost positive that I have adenomyosis as everything else looked normal during my lap in October and all tissue biopsied came back as normal, so, I will be having that done in the next week and I am also starting BC pills(lo-ovral)tomorrow. He said I don't have to wait for the normal "start on Sunday" method as this is not for birth control.. After 4 months on the BC pills, if I don't have decreased pain and less blood flow, then we will try the laser ablation(although he has explained the benefits and low effectiveness of this procedure to me)and if that fails then, and only then, will I FIRST demand a tissue sample to see if adenomyosis is what I really ACTUALLY have and if I just can't live with the pain anymore or the bleeding gets worse, well, then I may just look to having a hyster after all. I will just feel better and much more at ease knowing that I tried everything else, first. Oh, I also talked to him about the DnC I had in October and although the first couple of months showed NO change in the heavy bleeding, this past cycle was nothing compared to what it has been the last few years(but the pain was just as bad, if not worse)so, he said that the DnC might just now be starting to show it's benefits, but we'll see. I will definitely keep you all updated on my progress and since Toonces said it's okay for me to still come here(thank you muchly )I will come and give you ladies all the moral support you need! And, if going through these other alternatives I might be able to help anyone else out there who might have questions that I could then answer, then I would love to be a help to you! You never know when I might be adding myself to the list of LIW again, but for now I have hope for these other things. Luckily, I have a GREAT doctor who is willing to go along with anything I feel could help me and he does agree that a hyst should be my last resort, so I am glad to know that he really cares about me and isn't surgery happy! I already knew that, but today really showed me just how much he really cares and wants to work with me. He spent 35 minutes on the phone with me and let me ask all the questions I wanted and was patient in listening and never even acted like he was in a hurry to go or anything. We talked and talked and he was just great! Just wanted to share that about him. I've always like that man! LOL Well, I've rambled enough. Thanks for each and every one of your messages and support in my decision AND best of luck and big HUGE s to all of you LIW and others, too!

Lots of love and I'll be around! Thanks again for letting me stay and making me feel welcome! You are all a blessing to humankind!
  #15  
Unread 01-29-2002, 07:59 PM
I have changed my mind.... =o)

Can someone explain to me what "adenomyosis" is? Sorry to be dense.
  #16  
Unread 01-29-2002, 08:35 PM
I have changed my mind.... =o)

Adenomyosis is the presence of endometrial tissue (which is supposed to line the uterus) within the walls of the uterine muscle. Some people call it "endometriosis interna" because like endometriosis, it's endometrial tissue in the wrong place. But it's inside the uterine wall where you can't see it.

Adenomyosis can be in pockets that may or may not show on MRI or biopsy (if you happen to hit the right spot). It can also be very diffuse, spread through the muscle. The presence of the endometrial tissue in the uterine muscle apparently prevents the muscle from working properly, causing cramping and heavy bleeding. Other symptoms may include severe menstrual pain, pain with intercourse or orgasm, and a uterus that feels enlarged and "boggy" in a pelvic exam.

I had only the severe pain, sexual pain, and moderately heavy bleeding--no classic "boggy" uterus. But after my hysterectomy the pathology report came back showing adenomyosis. Often (usually?) this condition is not definitively diagnosed until after hysterectomy when the pathologist has the whole uterus to examine. I hope this helps.

Some women get relief with birth control pills (I did, but couldn't handle the side effects). Otherwise the treatments end up as pain management and often hysterectomy. The good news about adenomyosis is that hysterectomy pretty much gets rid of it if you don't have endometriosis elsewhere.

Good luck to all of you with your surgeries and decisions. This is major surgery and you should not rush into it!
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