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pathology report ...and other stuff pathology report ...and other stuff

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Unread 01-31-2002, 06:32 PM
pathology report ...and other stuff

I am really just needing to vent here so I apologize in advance. I talked to my doctor today about some of the pain I have been having. He wants to send me to a pain management doctor. In a way I kinda feel like I am getting the brush off from him. Almost like he knows he cant get anymore money out of my insurance since he has done three surgeries including my hyst over a month ago so now he is passing me on. I know that sounds rude and in a way I can understand if there is nothing more he can do. I have nothing in there anymore (well if one ovary counts i do) that obgyn's deal with. I dont know, I am just having mixed thoughts about it. I go in to see him on Monday morning so we will see what happens! While on the phone with him I found out some things that showed up on my pathology report. It upset me that I was not told earlier about them I may just be in a mood though! He found Dysplsia and adenomyosis. Both were shocking to me because I had no idea about either one. I have had a coupleof abnormal paps and a couple of questionable ones in the past but when done again have come back normal. I know its out since he did a hyst so why is it bothering me so much??????? I guess I am thankful it was not anything more it just kinda upset me and I was needing to thanks for hearing me!!!!!!!!!!

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Unread 02-01-2002, 08:50 AM
pathology report ...and other stuff

I don't neccesarily think your doctor is brushing you off- a pain management specialist might be a good idea- although I can understand if you are reluctant to go this route.Why are you having pain at this point though? You should get to the bottom of that, and perhaps you should see another gyn for a second opinion. I'm not an expert on adenomyosis, but my understanding is hysterectomy doesn't eliminate pain in all cases.Your current doctor may or may not be a good communicator- in all fairness he may not have had the path report until a couple weeks after surgery.

I would not take the position that he's "not getting anymore money" that's why he's referring me elsewhere. It's still completely appropriate for gyn visits in the future- you have an ovary, and you probably will have checked for vaginal cancer (though it's rare). And perhaps a diagnosis of adeno warrants future follow up from a gyn.

There are plenty of excellent, caring and responsive doctors around. If you don't like this one, go elsewhere.
Unread 02-01-2002, 08:59 AM
pathology report ...and other stuff

'S Renee,

I know this is a frustrating road that we are all on. I've actually been waiting several months to get into a pain clinic...and I'm really looking forward to it. My docs know that my on-going pain is due to Endo and Fibromyalgia. There isn't a lot that can be done for these conditions in the form of a cure...but there are ways to be in less pain. That's where the pain clinics come in.

By all out another opinion. I know if I hadn't done that, I probably would've ended up in the loony bin It was my other opinion that agreed to have a look see, and that's when they discovered the Endo. It helped me to know 'why' I was in so much pain. The gyn that did my hyst., basically washed his hands of I do know how you are feeling.

Please come here often to vent...cry...receive lots of 'S! We are all on this road together...

It's also possible that you will be feeing so much better in a couple of months. This is major surgery....and it can take 6 months to a year to heal completely.
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Unread 02-01-2002, 09:27 AM
pathology report ...and other stuff

Thanks for hearing me. I feel better today . It was just a really bad day yesterday. My doc I actually like very much. I just heard alot yesterday that I did not know from the path report and it kinda shocked me! The dysplasia and adenomyosis.....I dont know much about either so that is frustrating also. I also have been reading alot about fibro and have many symptoms. I go to the doc (gyn) monday. Should I bring up the fibro thing to him or to the pain spec when I go on the 12th or go to my family doc?

Jude...I too am alot like you my conditions can not be cured and so am stuck with just treating the pain. I am having a hard time dealing with that. The main reason I had my hyst was I thought I would be pain free and now I am being told all I can say!

As far as the adenomyosis, my doc acted like it was no biggie....he said it is very common in women who have had children. He was more concerned and surprised about the dysplasia.

Thanks for your support and input!
Unread 02-01-2002, 10:11 AM
pathology report ...and other stuff

You probably don't have fibromyalgia, but it's certainly appropriate to ask the question of your gyn, pain specialist, or family doctor (who is probably managing your overall health). It's well known that a hysterectomy doesn't always end the pain of adeno (but it is usually the best option available), so I'm surprised this wasn't mentioned before surgery. At any rate, it looks like having surgery was the right decision since they did find dysplasia.

I am so sorry to hear you are in pain. You are doing the right thing in being persistent in getting help. Don't be afraid to ask a lot of questions and seek a second opinion if you feel you need to.

Good luck, and I hope you are feeling better soon!
Unread 02-01-2002, 12:20 PM
Well actually...

My surgeon told me that a hyst was the only treatment for Adenomyosis; since it is contained inside of the uterus. It is best to check this with your own Doctor though...

Endometriosis in another story though. I had it before I had my hyst., and I still have it now.

Sending healing 'S and please let us know what your dr's say....
Unread 02-01-2002, 12:47 PM
Confused about terms???

Adenomyosis is the lining of the uterus intruding into the uterine walls. Once the uterus is gone - so is the adenomyosis.

Endometriosis on the other hand is the lining of the uterus OUTSIDE the uterus (can occur anywhere in the body - literally) and hysterectomy may NOT cure this.

Right? I'm a bit confused about the previous posts .. I'm hoping it was just a confusion in this correct?

Fibromyalgia is a very real condition and they're finding out more about it every day. The current research is indicating that it most definately may have some type of hormonal connection and they do know for certain that menopause (chemical or surgical or natural) creates a state of flux in the body that triggers major flare ups of fibromyalgia (and so does other things) -- here's some reading on the subject (and YES do bring it up to your doctor)

Unread 02-01-2002, 02:49 PM
pathology report ...and other stuff


Oh how I love you! Yes you are correct about the terms. I got a little confused myself when I looked at that other post so did some researching. I didnt think my doc would tell me I didnt have to worry about if it were not yes hun you are correct once again! I did have both (adeno & endo) and doc will start me on lupron mon for the remaining endo on my bladder. So, do ya think I should ask my gyn doc about that fibro mon? I never see my family doc and feel kinda odd bringing up to the pain guy on my first visit (feb 12th) so I was thinking gyn even though its not his specialty. What do you think? Thanks for the reading on it (fibro) its very appreciated! Should I make a list of my symptoms to give him or what? Most of the symptoms I have had forever and just never put them all together as being related to one another. I just dont want him to think I am paranoid. suggestions??

Unread 02-04-2002, 05:29 AM
Yes, I would take a list...

You run the risk of being thought of as "hysterical" just by being female unfortunately. <I know that sounds jaded, but it's been proven in very expensive studies >

So, I would take the list. If it's a doctor worth his salt, he'll see that for what it is: a prepared patient who is not about to waste her time or his!

Good luck!

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