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Embolization? Embolization?

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Unread 01-31-2002, 06:34 PM

What about embolization for a big ugly fibroid with blood vessels all over it? Has anybody tried that followed by a myo? I get the feeling that my doc does not like the look of the alien in my belly and would rather take the whole shebang out NOW.
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Unread 01-31-2002, 07:48 PM
Hey lady,

Haven't had that so can't help you, but just wanted you to know that I know there are a lot of sisters who have so hang in there and keep reading. God Bless

Don't think I would want an alien in there either
Unread 02-01-2002, 06:19 AM

ALL fibroids have blood vessels all over them. A UAE is only going to reduce the size of the fibroid, and it may not be a permanent reduction. There are risks with this surgery, as with any surgery. Your doctor knows best, but a myomectomy on a large fibroid inside your uterus (not growing outside) is probably extremely difficult to do, if not impossible. Fibroids often grow back after removal. Why would you want to have 2 major surgeries (UAE and myomectomy, and then probably have a hysterectomy anyway?

It sounds like your doctor is taking the correct approach, but go for a second opinion (or third) if you feel that's warranted. Since you have a rapidly growing fibroid,however, the other opinions are likely to be the same.
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Unread 02-01-2002, 07:20 AM

your cyst as an alien. I did too. I had an ovarian tumor in 1996. It was a dermoid so it had hair, calcification area's that looked like teeth. Sounds gross. I used to joke that the aliens visited me and this was one of their babies!!!!

Anyway, I think the anesthesia and me just verbalizing the alien statement to friends and family made me have a dream, or I should say nitemare!

The dream: I was in bed with my hubby,(our bed was in front of a window) and I woke up and there was a spaceship outside the bedroom window and an alien had me by the arms trying to pull me out of the window and into the spaceship. He was cursing at me for aborting their baby and said they were taking me away. I guess I woke the hubby up (in the dream) and he had me by the ankles trying to pull me back in.

(no longer dreaming)
At this time I woke up, and Im crying and yelling and actually woke Tom up and im yelling about the dream and Im trying to see what time it is and I hit the indiglo on my watch and he starts yelling "Oh my god, it's there beacon". I don't know if he was still have asleep or just joking, I didn't care at the moment. However we are still ROTFL'ing about it!!!!

Just wanted to share. Hopefully I made someone smle and forget about their worries for a moment.

Honest, this dream really did happen though!!

Unread 02-01-2002, 09:51 AM

Where is your fibroid located? I did a lot of research on embolization and it seems to be having good success, but there were some incidences of complication. The complications seemed to be in cases very similar to mine (of course) so I ruled it out. Specifically, I had a very large (volleyball size) degenerating fibroid that was intracavity (smack in the middle of the uterus). Sometimes the very large fibroids that are smack in the middle of the uterus will try to expel through the cervix after the embolization process. I was not a good candidate for myoectomy either as it would have to be an abdominal myoectomy and the fibroid was so large that my uterus would no longer be viable. To top it off, the doctors could not tell if my fibroid was a fibroid. It was very assymetrical on ultrasound with pockets of liquid or something liquid like which is very unusual for a fibroid. So it was tah/bso for me. I could have kept the ovaries, but I had some reasons for taking them.

I had found the names of several doctors with top Manhattan hospitals that you might want to check out. Basically, I found a site (I don't remember how), but it linked through one of the fibroid sites of doctors who performed the procedure. I cross referenced with my health insurance and checked to see if any of the doctors were listed in the Best Doctors book. You should see if you can come up with a list and try to see one of these doctors for an opinion.
Unread 02-01-2002, 07:41 PM

Thanks everybody--I am getting a second opinion on Monday. Mine is apparently in the middle taking up the whole uterus.
Some interesting thoughts came from my friend's daughter, an ob/gyn: Black women have a higher rate of fibroids than other ethnicities. Docs who have a large black practice tend to be more conservative in their approach to large oids. Compensation wise, myos on big ones are not practical--they take twice as long to peel away as doing a tah and it is a lot of work. Since there was no negative pathology in any of the tests that were done, she doubts that anything is malignant even though it is big and ugly.
So I am going to an African woman doctor on Monday who has a good rep as a very caring medic and a large black population clientele. I'm also getting an opinion from a surgeon I know.
What you all say sounds right though. It may be too big to get out and I may be in for a second surgery if it comes back. Also, certainly don't want to look pregnant at my daughter's wedding in May!
If I can get my bunions done at the same time, it may be worth all the trouble. Missing so much work time though is politically dangerous.
Unread 02-01-2002, 09:19 PM

When I was discussing my upcoming surgery with my GYN, I asked about having myomectomy instead of hysterectomy.
I have fibroids and ovarian cysts. GYN told the that the only
difference between a hysterectomy and a myomectomy is that
the uterus (and possibly other items) would be removed in a
hysterectomy. This, of course, is if the hyst is done abdominally.
Have to make the same incision for myo as hyst...

But, as we all have found out.........it's your decision as to what
you want to do with your own body. You are the only one that knows what's right for you.

Take care,
Unread 02-01-2002, 09:23 PM
What is the function of all those parts?

Besides help with procreation, what bodily function does the uterus, ovaries and cervix perform? Are there hormones, musculature, feelings that are affected when the parts are removed?
Unread 02-02-2002, 04:20 AM

I wouldn't worry about missing work time- there must be men (prostate, etc) and women (maternity, etc) who have been out for several weeks at your company. Most likely you are covered under the Family Medical Leave Act unless you work for a very small company. (under 50 employees). You probably have short term disability as well. You appear to be a professional women with specific skills-I doubt you could be fired and replaced in six weeks anyway- it wouldn't be worthwhile for your employer.

I am an electrical engineer who has had a lengthy maternity leave (4 months) as well as a hysterectomy (7 weeks out). I doubt it occurred to my company that I was so dispensible. Years later when I left for a new company it took them nearly a year to find someone with my skills- and I'm sure there was a learning curve for that person once they came on board

While it's true black women have a higher incidence of fibroids, it's not that much higher. I think you got standard advice from your first gyn that a white women would get (I am white and was told the same thing by 2 white doctors about fast growing fibroids). What a relief that the path was normal- probably you don't need to have surgery after all. But if you look pregnant- and it bothers you- you may wish to have the surgery.
Unread 02-02-2002, 10:15 AM

Another tip re:doctors treating non-malignant fibroids. See an ob/gyn who deals with fertility. They handle a lot of these things in women who want to remain/become fertile.

Also, be aware that even with hysterectomy you can bleed a lot. My fibroid was so large that I bled 5 times as much as surgeon expected and he almost had to transfuse me. I can only imagine what would have happened if I had opted for myoectomy.

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