Help, I am miserable and my hot flashes are day and night. The docs are puzzled! | HysterSisters
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Help, I am miserable and my hot flashes are  day and night.  The docs are puzzled! Help, I am miserable and my hot flashes are day and night. The docs are puzzled!

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  #1  
Unread 10-24-2012, 04:25 PM
Unhappy - Help, I am miserable and my hot flashes are  day and night.  The docs are puzzled! Help, I am miserable and my hot flashes are day and night. The docs are puzzled!

I had a partial Hyst. back in 2000 and since then I have had years of hot flashes, night sweats, not sleeping due to the hot and cold sweats all night, over heating during the day etc no matter if I have physical activity or not. I get up and my entire body is hot and sticky. I'll be sitting down and then my body gets so hot that I have to start peeling off clothes. It will be cold outside (60 degrees and I am still hot). I have taken two major hormone tests 2009 and 2012 and they do not reveal any abnormal hormone levels. I have tried the Vivelle patch for over a few years with no reduction in my symptoms. Prior to that I was on the Clamira patch and I had some reduction in symptoms.

The doctors can't figure out what is wrong. I thought it was my prescription heart medication Diltiazem (2012 for heart problems -HBP) that might be kicking my heat up but they could not find any connection, then I thought it was the Metoprolol (took 2011-up to mid 2012 for heart problems - HBP) and the doctors said that there is no drug connection.

Both my General Practitioner and my GYN can't figure out what is wrong. I am loosing my mind, and I can't focus or concentrate on anything anymore. Yikes. Does anyone have a suggestion for a female hormone specialists in San Francisco, CA (only)? or does anyone have any on-line resources that I can research for this problem.
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  #2  
Unread 10-24-2012, 10:27 PM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

I just wanted to reply and say I hope you find what is wrong. One thing I have read in many hormone books wether you've had a hysterectomy or not. Just cuz the test say estrogen is in normal range it may not be for you. So maybe you need more estrogen? It sure sounds like it. I'm the type of body that needs lots of estrogen. No I have not had hysterectomy but I have had major issues with low estrogen since I was 42. I am now 47 with some fibroids & looking into myomectomy. Recently I had terrible hot flashes,mood swings, no feeling down south & hard to have orgasm. I was taking 1 mg estradiol pill for about a year. And was even on .5 at one time. I had to up my estrogen to 2 mg & use an estring for vaginal use. My estrogen totally went soooo low. Sounds like u need more estrogen & to find Dr that can help u find the best method to get that estrogen in your system. I hope u find relief soon
  #3  
Unread 10-25-2012, 06:56 AM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

I'm puzzled at your doctors puzzlement.

To me, it sounds quite obvious that your not absorbing the estrogen from the patch which can happen.

If he's hesitant to give you orals because of whatever your heart issues are, then ask for Estrogel and see if it gets better...or FemRing.

I agree with DebCats...testing can be tricky. What you see is not always what you get.
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  #4  
Unread 10-25-2012, 09:38 AM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Hey 6andcounting! Yes testing is tricky. I know there is a supposedly "normal" range. I doubt I would fit in it at all. Finally my hot flashes have stopped after upping estradiol to 2 mg. I seen many of your post on estrogen use. It can also be tricky! What may work well for one person does nothing for another. I even tried estradiol pills inserted vaginally. Worked for about a week & then things just got worse. My body responds best to taking a full dose of my 2 mg. Splitting the dose makes more symptoms. Go figure.
  #5  
Unread 10-25-2012, 09:47 AM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

If you inserted the1mg. pills vaginally, your level likely went extremely high. Very high estrogen causes as many symptoms as low does. I took the 2mg pills for years once per day. I now have to split them. We are all unique in our hormone needs!
  #6  
Unread 10-25-2012, 10:01 AM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

No I didn't insert a 1 mg pill vaginally. That's too much. It just didn't work to get enough thru my system. For whateve reason splitting doses at this time my body just sucks up all the estrogen it can & cries for more.
  #7  
Unread 10-25-2012, 11:27 AM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Do you mean you end up with anxiety and hot flashes?
  #8  
Unread 10-25-2012, 11:38 AM
Unhappy - Help, I am miserable and my hot flashes are  day and night.  The docs are puzzled! Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Thanks everyone for responding. I am sleep deprived and fuzzy headed, and feeling tired when I get up in the AM since I am not getting sleep due to major heat flushes. I can't really exercise since I get way to over heated and start feeling bad. I can do some, = getting fat. Even walking makes me Hotter than heck. It feels like my blood is boiling all over.

I am going yet again to my GYM (Female) and will take all of my meds list and see if there are any interactions. Wow, I looked at all of my GYM bio id. replaced prescriptions and I have been miserable since 2007. Also the insurance that I can afford no longer covers Vivelle, or Clarmira and only covers the oral and some patch that burns my skin. So, this is crazy.

In any event, I am going to check into the TS Wiley method. I know my insurance won't pay for any of this as most of the doctors etc. who are into the integrative TS Wiley method don't take most insurance if at all. Most doe the SuperBill method or only take cash/credit cards. I am desperate. I looked at Suzanne Summer's love for the TS Wiley compounding method and think I'll have to try this (lots of money out of pocked.). Most doctors charge $400 for the first visit and then $200 per additional visit. One doctor even charges $25 for email communication (really)!.
  #9  
Unread 10-25-2012, 11:47 AM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Be VERY VERY careful about that! The doses of hormones that are prescribed are extremely high. Many women have ended up very sick due to the fact that the progesterone that's in excess is stored in fatty tissue and takes an incredibly long time to process out of your body. Do yourself a favor and do a google search on excess progesterone. I'm one of the women who ended up with a Dr. who had me drowning in progesterone. It was awful!
  #10  
Unread 10-25-2012, 12:57 PM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Did you try Premarin? Not advocating; just wondering since it's tried and true and many women do well on it.
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