Help, I am miserable and my hot flashes are day and night. The docs are puzzled! - Page 2 | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hormone Issues (HRT - No HRT) > Hormone and Menopause Central


HysterSisters.com is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators.

HysterSisters.com is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support
Reply

Help, I am miserable and my hot flashes are  day and night.  The docs are puzzled! Help, I am miserable and my hot flashes are day and night. The docs are puzzled!

Thread Tools
  #11  
Unread 10-25-2012, 01:07 PM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Yes E2Me2. Anxiety, hot flashes really bad & heart palpitations! Not to mention the vaginal symptoms to boot! Just awful! Also forgetting a lot of stuff. Oh 6andcounting. I'm wondering about premarin myself. My mom took it for 15 yrs. She did very well on it. Had a hysterectomy at 37 for heavy bleeding. Too bad they did not have ablation back in 83. I have heard its stronger also? Just wondering if it could be a good option for me. I don't want to go any higher than 2 mg.
Sponsored Links
Advertisement
 
  #12  
Unread 10-25-2012, 01:10 PM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Thefibergirl I know what u mean about getting over heated. I get that way. Trying to take even a warm shower when its cold if estrogen is low will throw me into nasty hot flashes! Uuugghh! As well as trying to workout & having hot flashes a lot. I hope u can get some relief soon!
  #13  
Unread 10-25-2012, 01:20 PM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

The confusing thing is that anxiety and hot flashes aren't just associated with low estrogen, they are also associated with sharp fluctuations. Sometimes your estrogen builds up enough that you don't notice them so much after awhile. If not, perhaps a method with a more even release would work better for you.
Sponsored Links
Advertisement
 
  #14  
Unread 10-25-2012, 01:32 PM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Yes, my mom is one of those that has been on it for over 20 years.

She had already gone thru meno immediately prior to hyst, they started her on .625, she stayed on that for years and about 5 years ago went down to .45. Now she's on .45 ever other day.
she is quite healthy for her age and has all her mental capacity too so far. (she's 84)

I, on the other hand, had not gone thru meno and had to start out on a much higher dose and have lowered it some over time.
  #15  
Unread 10-25-2012, 01:34 PM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Well like I said I was doing fine on 1mg for 2 yrs. So yes fluctuations can happen. Now on 2 mg which I did build up to slowly hoping the lower doses would help but did not. I have a very sensitive body. I also was not having vaginal symptoms either before about 2 months ago. I would like to try the estradiol topical cream but had to luck getting my Dr to prescribe it. So for now I'm doing better where I'm at.
  #16  
Unread 10-25-2012, 01:38 PM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Hmmm 6andcounting. I will have to look into it. I'm in the process of getting a new Dr. So I would like to try the topical cream first. Who knows what will work? Body changes all the time so much with peri & meno issues! Like I said I slowly worked up to 2 mg over a 2 month period & finally getting relief!
  #17  
Unread 10-25-2012, 03:54 PM
Unhappy - Help, I am miserable and my hot flashes are  day and night.  The docs are puzzled! Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Thanks for your responses.

No, I would not try "Prem" since I read up on it and it is not the way to go form me and my Doc would not recommend it under any circumstances.

In any event, I just got back from my female GYN and she is out of ideas since we have tried everything in her protocol. She looked at all of my new blood work and said that my Thyroid is fine so she is perplexed. She thinks I have another medical issue because I am the only patient that she has had that does not respond at all to any of the types of BHRT nor the oral stuff. I asked her about the compounding doctors (the Wiley Protocols compounding formal that Suzanne Summers and Robin McGraw take) and she said that they many not work and the processes is not covered by any insurance and is very very expensive ($400 for first visit for most + the compounding formulas) and then $200 for a follow up visit for most unless it is and Nurse that does the evaluation then it is around $180-200 for the first visit.

She sent me to UCSF for an evaluation. So, now I have to wait till the intake appointment person reviews my medical history etc. and then sets up a time to talk then place me with the right doctor in their large mainstream specialty practice.

In any event, my doctor said get ready for a long ride since my issues may time a lot of various trails to see what is going on.

I am still hot and my glasses are fogging up not matter what I do. This is crazy.
  #18  
Unread 10-25-2012, 04:05 PM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Yes, one dr I went to wouldn't prescribe Premarin. She had to go because I needed a dr who could look at what was best for me. Some people do have an issue with the horse part, but I'm not vegan. I eat meat and love my leather purses and shoes.
Not everyone does best with a plant based estrogen.

Good luck on finding something. Perhpas you should think about a little bit of antidepressant while you're working thru it? might help the flashes and sleep etc.
  #19  
Unread 10-25-2012, 04:32 PM
Unhappy - Help, I am miserable and my hot flashes are  day and night.  The docs are puzzled! Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Yep, horse peee is strange.

Thanks for your kind words. In addition to setting up an appoint with the New GYN, I think I am going to talk to my Gen Prac to see about the anti-depressant deal. Several doctors suggested that I take it while figuring my health issues. I am not sure though.

Back to the fans and cold air that really does not help. Yikes!
  #20  
Unread 10-25-2012, 04:44 PM
Re: Help, I am miserable and my hot flashes are day and night. The docs are puzzled

Just out of curiosity, do you have a copy of your lab results for your hormone and thyroid testing? What was your "normal" level of estradiol? Not everyone absorbs the estrogen well while using the patch. My highest level while using the high dosage Vivelle Dot was only 41. Anything below 30 is considered "postmenopausal" and "normal" for a post surgical female. The idea behind replacement isn't to stay in that postmenopausal area of normal, it's to take us up high enough to be asymptomatic.

You said your Dr. has tried everything she knows of? Did she try different doses of the patch? Did she try different forms of estradiol such as a gel, Femring, or oral?

I assumed, as did my Dr., that because I was using the highest dose that it was enough. When she finally tested, it wasn't. All of this messing around took place over several years time. It's not surprising when the Dr. is baffled. They sometimes assume 1 type and dose SHOULD work for everyone since it works on many. Not always so.

I hope for your sake there's nothing else going on. I wish you good luck in your quest.
Reply

booklet
Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions
Register




Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
6 Replies, Last Reply 11-20-2010, Started By SansUterus
3 Replies, Last Reply 10-02-2010, Started By kalimae7371
1 Reply, Last Reply 07-10-2010, Started By rjones4948
15 Replies, Last Reply 06-30-2010, Started By daisyforest
5 Replies, Last Reply 06-10-2009, Started By bliss6307
4 Replies, Last Reply 01-17-2009, Started By highlandsunsets
6 Replies, Last Reply 08-20-2008, Started By Luvmy Coffee
1 Reply, Last Reply 05-26-2008, Started By bamalady52
2 Replies, Last Reply 02-18-2008, Started By jcme
2 Replies, Last Reply 02-04-2008, Started By mo1961
4 Replies, Hysterectomy Recovery (post hysterectomy)
15 Replies, No Uterus - No Ovaries - No Hormones - Managing Menopause
2 Replies, No Uterus - No Ovaries - No Hormones - Managing Menopause
14 Replies, No Uterus - No Ovaries - No Hormones - Managing Menopause
6 Replies, Hysterectomy Recovery (post hysterectomy)
8 Replies, Hysterectomy Recovery (post hysterectomy)
1 Reply, No Uterus - No Ovaries - No Hormones - Managing Menopause
3 Replies, No Uterus - No Ovaries - No Hormones - Managing Menopause
3 Replies, Hysterectomy Recovery (post hysterectomy)
7 Replies, No Uterus - No Ovaries - Yes HRT - Surgical Menopause



Advertisement

Hysterectomy News

December 7,2021

CURRENT NEWS

HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive

TODAY'S EVENTS

Calendar - Hysterectomies - Birthdays


Request Information


I am a HysterSister

HYSTERECTOMY STORIES

Featured Story - All Stories - Share Yours

FOLLOW US


Your Hysterectomy Date


CUSTOMIZE Your Browsing  


$vbulletin->featuredvideos is not an array!
Advertisement


Advertisement