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Pre-op with Crohn's Disease Pre-op with Crohn's Disease

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Unread 02-05-2002, 02:49 PM
Pre-op with Crohn's Disease

I have had Crohn's Disease for 30 years and a colostomy for 14 of those years. Have now been told I need a hysterectomy due to cysts, fibroids and unknown vaginal discharge. Is there anyone anywhere who is in my situation? Need support and am not sure where to turn.
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Unread 02-05-2002, 03:13 PM
Pre-op with Crohn's Disease

Hi butternut!

I don't have experience with Crohn's disease, but I, along with many of your fellow hystersisters have lots of experience we can share regarding our hysterectomies!

I trust you have discussed this at length with your DR, who would be the best person to consult regarding how to best participate in the process and healing of your upcoming hysterectomy. If you have not done so, I believe this will help put you at ease.

Please know that we are here for you; we're happy to lend support any time!

Unread 02-05-2002, 03:16 PM
Pre-op with Crohn's Disease

Hi butternut!

You may want to try a search on 'crohn's' (purple button near top of page) I got several hits, but am not sure if these posts will be of any help for you or not. It looked like quite a few were from the 'Road Less Traveled' forum also, so you may want to try posting a question there as well. Good luck to you, I hope you find some information.
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Unread 02-06-2002, 06:49 AM
Pre-op with Crohn's Disease

Thank you so much; you're right, I checked there are there are some sisters with similar info. I appreciate it!
Unread 02-22-2002, 04:19 PM
I just found out I might ahve crohns

I am so glad that I can accross your thread! I went to my preop yesterday and my doctor postponed my hyst. He thinks that I don't have endo as first thought, but that I might have crohns or soemthing else in my intestines.
I was so shocked. Never in my wildest dreams did I think it could be something there instead of with my female parts. I have been struggling with this since I started my period.
Does this sound normal that not one doctor I have seen has ever mentioned something might be wrong with my back side? I have had 5 surgeries and a child since 1994. Isn't there signs that would lead me to believe something would be wrong there? I am just really confused and don't know what to think!
Thanks for letting me rant!

Unread 03-15-2002, 11:42 AM
chron's disease

Krista: Just got a chance to check my email; this is my first day back at work after my surgery. Chron's disease usually has some very definite symptoms - loose stools, sometimes with blood, weight loss and unbearable pain. A colonoscopy and lower gi series is usually the best way to diagnose. In my case, the chron's disease is in remission, but my prior bowel surgeries caused so many adhesions,and I had a large cyst on my ovary, that my pelvis was a "disaster" (that was the surgeon's word!). I will be thinking of you and hope that everything works out. Please feel free to email me at any time with questions or comments. I would be happy to do whatever I can to help anyone with this painful combination of bowel and gyno problems.

Good luck; let me hear from you.


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