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Here we go again.... Here we go again....

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  #1  
Unread 02-05-2002, 05:21 PM
Here we go again....

Ok, I finally had my appt. today at the University of Minnesota.
I was referred there by my regular gynocologist to see an oncologist because he thought I would need a radical hysterectomy, since the margins after the cone biopsy were not clear.

So, first this female resident comes in, tells me that their pathologist disagreed, and said that all that was left in me was mild dysplasia, and I might not need a hysterectomy after all, maybe just another cone, leep, or just be watched for a while.

Then she goes and talks to the male doctor, who comes in, they both examine me, and he says his recommendation is for a hysterectomy, they both decide I should be a good candidate for TVH, which is fine with me, but here's the KICKER- He then nonchalantly mentions that they'll be taking my ovaries too!

Now this was never part of the deal, I even asked my gyno about that before, and he saw no reason why that would be necessary.
I just said, "No, that's NOT going to happen!" and the idiot says, "see those people out there with their hair fallling out who look like they're dying? That's because they are dying; of ovarian cancer!" I then proceeded to ask him this, "If someone told you that you should have your testicles removed on the off-chance that you might develop testicular cancer, would you do it?" He didn't give me an answer, just repeated his recommendation, and looked at me like, "I don't have to take this abuse from you!", and slipped out the door!

Now, since I don't need a radical, I'm free to have my surgery in my hometown, with my own doctor, or have it down there. I guess I wasn't exactly thrilled with this so I'll probably do it here. When I got home, I tried to contact my dr, but of course no one called me back, sooooooooooo..... here we go again, I just want this over and done with!!!!!!

My 5 year old wanted me to add some
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  #2  
Unread 02-05-2002, 05:52 PM
Here we go again....

Oh Jean,
What a hassle you have been through. It sounds very confusing and so far you have your own gyn who thought a hyster may be the way to go, and the oncologist who agrees.

I must say I don't like the way the oncologist tried to convince you of why you should have your ovaries removed. I wonder if he is aware there are lots of women alive and well and surviving ovarian cancer. His bedside manner leaves something to be desired doesn't it?

So...only the resident has said she doesn't think you need the hyster right? Well....I have to say I love residents. I had one with me from my first checkup with my gyn, right through all my chemo and checkups, as she was with my oncologist after her term with my gyn, and I just think the world of her, and I trust her. But...I guess we have to keep in mind that they are residents who are learning, and they spend X many weeks/months with various specialists, where as the oncologists are truly the cancer specialists. So...you have a decision to make. Do you go with the surgery now, or perhaps seek one more opinion with another oncologist?

As far as keeping the ovaries, that comes down to your own personal decision provided they are healthy. Lots of women leave them, and lots have them removed. Its a personal choice.

Keep us posted Jean, and I will keep you in my thoughts and prayers.
Big Hugs
Maria
  #3  
Unread 02-05-2002, 06:33 PM
Here we go again....

{{{Jean}}

It's hard to hear differing medical opinions. I mean, you want to know what everyone thinks, and you want to hear all of the options, but it's so much easier when everyone agrees.

Now, I want to make sure I got everything straight. Your gyn thought you needed a hyster. Now, was it the female resident or the pathologist (or both) that thought maybe you didn't? And then the male doc (was that the oncologist?) thought you needed one? A question about the pathology--is the pathologist saying then that even though you didn't have clear margins, that you weren't CIN III all the way to the margins, but that instead you were only CIN I at the margins? Just curious, because that's what happened on my vaginal wall. I was CIS in the middle, but at the margins I was VaIN 1. So they recommended no further surgery or treatment, and so far everything has been normal for me.

Well, I wish you luck with your decision-making process. Maria's right. Whether or not to keep the ovaries is a decision only you can make (if they're healthy). I kept mine and it has gone very well for me. I feel just like I always did.

Let us know what you decide to do.

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  #4  
Unread 02-05-2002, 09:27 PM
Here we go again....

Jeanine and Maria! Thanks so much for your posts!

I was feeling really frustrated, and was hoping to hear from someone.
Yes, the oncologist was male, the resident was female, and I have no idea what the pathologist's sex was.

I guess I was just a little shocked that he brought up removal of the ovaries when that was never even discussed before.
Do any of you know if there's any more of a chance of ovarian cancer in someone that has had cervical cancer? Otherwise, I just don't get it!

My other question is this: those of you who have had TVH's, are you glad you went that route? Are there any complications with that type as opposed to TAH? I guess when my gyn sent me down there, he was expecting that they would do a radical, so I was all psyched for a TAH, and now they're talking TVH!

As far as I know, my ovaries are healthy, but if they decide to do a TVH, how would they even know? I'm pretty sure they still work, I'm 43, but I got pregnant less than a year ago! Unfortunately it ended in a miscarriage, but the pathologist's report on the "product of conception", as they referred to it, was found to have no genetic abnormalities, so that was probably not the cause of the M/C.

I'm not exactly sure about the margin thing. The first thing my doc said, was that he didn't get it all because he would have had to remove the entire cervix, and the reason he sent me to the U, was he was afraid there could still be some micro-invasive cancer left, and yes the path. at the U said it was just mild dysplasia at the margins.

THE OVARIES STAY!!!
  #5  
Unread 02-05-2002, 11:10 PM
Here we go again....

Hi Jean, in MHO I say keep the ovaries if they are healthy. As far as I know there is no link between cervical cancer and ovarian ( or that is what my oncologist told me ) I kept my ovaries and they did work very well after my hyster but were put out of action due to the pelvic radiation .

I had a LAVH and had no problems with that procedure at all. You still have to rest as there are many internal stitches .

Before you make any decisions why not make another appt. and discuss all of this with the gyn/oncologist. At least that way everything would be clear to you.
Best of luck with it all and remember we are here always for you
  #6  
Unread 02-06-2002, 04:46 AM
Here we go again....

Hi!
I, too had CIN3. Had a cone...came back just mild dysplasia. ???

I opted for a TVH. I wondered about the ovaries. Even with a TVH, the dr. can check your ovaries out. My dr. did and said they looked fine, so she left them. I feel like I always did. Most of the time, I forget about not having a uterus/cervix.

From my research there is no relationship b/n cervical and ovarian cancer. Completely different cancers. IMHO, keep the ovaries...unless they detect something while their in there.

I hope this interim time goes quickly for you. The waiting is truly the most difficult part!!
  #7  
Unread 02-07-2002, 04:56 PM
My 2 cents

Hi Jean. I just wanted to add to what the other pricesses stated. My doctor also told me that I have no more risk than any other woman for ovarian cancer because of my cervical cancer. I also agree with "keep your ovaries, if they're healthy." When my doc opted to take mine out, because I have cysts that give me pain, I still said no. If they're healthy, why take them out? Well, that was my thinking any way. I sure don't like that oncon's bed side manner. How scary to hear him talk like that. I liked your response as well! I had 3 opinions before my hyst. I felt better having 3 different opinions. And, actually one of them came from Stanford University. That dr. simply told me "well, you want to save your cervix/uterus because you may want more children? well, think of it this way, you could safely have another child, and then in a year may not be there for both your children." I was shocked by this statement. I didn't like hearing it that way. However, it did get me thinking. I had a LAVH. And, I think I healed quicker than I would have w/the TAH. However, like Robyn stated - you still have many internal stitches to care for. You may feel really good sooner, but doesn't mean that you can *do* everything you'd like to. Hope this shared experience helps you somewhat. Good luck to you. And, try not to go stir crazy during the "waiting" period. You're in my thoughts. s

Char
  #8  
Unread 02-10-2002, 05:33 PM
Here we go again....

I had a TVH almost 3 months ago for what was thought to be carcinoma in situ but turned out to be stage 1A cancer. I did not have my ovaries removed and was told that I do not have an increased risk of ovarian cancer. This was told to me by 3 prominant doctors in NYC. One was from Memorial Sloan Kettering which is the leading cancer center in the country.

As for the TVH, I had a very smooth easy recovery. I could easily walk the day after surgery. The anesthesia recovery was the hardest part.

In this journey through medical hell, I too found some doctors who were awful. I had one doctor who told me that I needed further surgery and treatment and then went to 3 others who disagreed. If the doctor told you something that does not sound right, please get another opinion if you can! Good Luck.

Denise
  #9  
Unread 02-10-2002, 08:08 PM
Here we go again....

There are two kinds of cervical cancer--one is caused by the virus and the other is adenocarcinoma, which is rare. If it's adenocarcinoma, there's a link to estrogen levels, so the ovaries would be part of the equation. But it's much more likely that it's HPV, there's no increase in risk. They can tell the difference.

In other words, check with the doctor about the pathology but I bet the big fart doctor was just doing what he always does simply because it's the current standard practice and as insurance. And because he didn't like a patient actually speaking up.
  #10  
Unread 02-11-2002, 10:50 AM
Here we go again....

Trish,
I had adeoncarcinoma and was told that there was no increased risk to the ovaries. I was told that it was caused by HPV 16. Nobody ever suggested that there was any connection to estrogen levels.

-Denise
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