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estrogen after surgery and endo. estrogen after surgery and endo.

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Unread 02-05-2002, 09:46 PM
estrogen after surgery and endo.

I had a TAH, appendectomy, and endo removed from my intestines and colon last week. I am taking a low dose of Estradiol daily. I was at an endo. web site earlier that stated you really shouldn't take estrogen if you have endo because it will grow again. You should give your body 6 months without HRT to make sure all the endo cells die. My hysterectomy was a surprise ( the plan was to remove one enlarged ovary) and had to be done because my endometriosis was so bad and widespread! I really don't want to go through any future surgeries because it regrows. Is anyone else out there taking estrogen and fighting endometriosis? What does your dr. have you doing?
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Unread 02-06-2002, 04:29 AM
On Premerin!!

Hi Lauralynn,
I had my surgery on the 22nd of Jan and started my hrt on the 25th, I'm 35 and had endo everywhere. I heard if it's gonna grow it will grow right after or 6 months after. There seems to be alot of different opinions out there on the subject. But frankly can you see going that long with nothing?? That really scares me!Glad everything is going well for you!!
Take care
Unread 02-06-2002, 04:41 AM
Me too!

Hi Lauralyn,

I too had TAH/BSO on Jan. 8th with severe endo. My DR suggested that I wait until my six week check-up to begin the HRT, but told me if the symptoms became to severe to call him...they were, and I did! I was not sleeping; night sweats; low mood, etc. So he put me on 1mg. of estrace/estradiol per day, and said that we may have to increase the dosage if this did not take care of it...I have also been using natural progesterone cream, and this balances the effects as well.
I was also very nervous of the regrowth of the endo...none of us want to go back through that scene again...but my quality of life and my sanity were important too.
I asked my Dr. what was the actual risk of regrowth, and he said...low!
So...hope this is helpful!

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Unread 02-06-2002, 07:21 AM
Endo and I are well acquainted

I'm now 12 days post-op and have been on an estrogen patch since the recovery room. (which I have no memory of) Anyway, it's a low dose, .05 mg. My gyn and I had discussed this prior and she said that this maintenance dosage will help with the menopausal symptoms and that the likely hood of the endo recurring is minimal. Since I'm still so early post-op, and still having discomfort I guess I don't know whether this has taken care of my problem or not. I'm just glad for no :hot flash: or night sweats. Had to deal with those during my trials of Lupron. Don't care to go there again.

So, so far I am for it, but I reserve the female right to change my mind at any moment.

Best of luck.

Unread 02-06-2002, 07:41 AM
Another point of view..

I, like you, have lived the unpleasantness that endo can bring. It was my decision to do the hyst instead of repeating laparoscopies every few years. It was also my decision to have my ovaries removed and not do HRT. I chose to go this route because I felt that it was the best decision for me.

It is not possible for any Dr. to be sure they got "all of it". It can be microscopic. If any is remaining, which is very possible, it can, though not necessarily, be triggered by estrogen. There are women with a variety of experiences with endo post-hyst on this site.

My decision was to have my ovaries removed and not do HRT because I wanted to give myself the best possible chance not to have a recurrence of the endo. If, God forbid, the endo returned, I did not want to wonder what would have happened if I had not done HRT or had my ovaries removed. It was my decision to do everything I could to deprive any residual endo of estrogen which could stimulate it.

That said, I have been very lucky. I am 4 months post op and have only had minor hotflashes. They are not bothersome and I have been having them since I was 30 anyway. So far, so good. I am aware that I may have to reconsider in the future if I start to have low estrogen related problems.

Each of us, in consultation with our Dr.s, needs to make the best decision for our individual needs/concerns.

Unread 02-06-2002, 10:36 AM
estrogen after surgery and endo.

I too had endo for many years. I am now 7 weeks post op and have been on the CombiPatch since the recovery room. It has worked well. I have not had any hot flashes, night sweats, etc. My doc put me on this patch because of the endo. I was told never to take estrogen alone because of the endo. So far so good. I too didn't want to continue having laproscopic surgeries ever few years because of the endo. I had had enough of them already. I had both ovaries removed.

I wish you the best.
Unread 02-06-2002, 02:35 PM
Endo blues

I'm nine months post op and have been on Premarin 1.25 since the day after surgery. I haven't been feeling too great for several months and tried to believe it was just a long healing process. The last thing I want to hear is the endo is back but I made an appointment to talk about the pain and colon problems. I'll keep you posted.

What started out as LAVH became TAH/BSO surgery due to endo. What a nightmare!
Unread 02-06-2002, 05:06 PM
Caught between a rock & a hard place too

HI Everyone, I feel a little better knowing I'm not facing this type of decision alone. I had my TAH/BSo on 12/9/01 and have gone 8 weeks without the HRT. THe doc said that he couldnt get all of the endo-there was alot left inside of me. I still dont know what to do either. I tried progesterone in the past for the endo and it triggered migraines. And my doc said that the low dose of HRT given to stop the hotflashes wouldnt be enough to stimulate the endo. If anyone can come up with some scientific facts I'd really be interested. God Bless to all of you sisters-Donna

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