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30 yrs. old with lots of questions, fears, etc. 30 yrs. old with lots of questions, fears, etc.

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  #1  
Unread 02-22-2002, 03:29 PM
30 yrs. old with lots of questions, fears, etc.

Hello everyone! I hope to get some good feedback from people here because I have so many questions & fears concerning this issue.

Here is my story:

I am 30 yrs. old with 2 children, both born by c-section. I didn't have any problems after my first c-section, but had a tubal after my 2nd one and have been having problems for about the last year & a half. My tubal was 4 yrs. ago.

My problem is that from the day I start my period & for 2 weeks after (after ovulation) I have horrid pain around my ovary on my left side, so much so that it hurts into my hip. I went to my GYN and he said that I have endometrial scar, which is like endometriosis around scar tissue from my 2 surgeries. His recommendations were:

1) go to a pain therapists & just try to live with it
2) do a laproscopy & see what's going on
3) do a hysterectomy

It freaked me out to say the least. I do have 'hot flashes & night sweats for 1 week before my period & bad PMS, so I feel like I've only got 1 decent, good week during each month. My cramps are getting worse too, I'm having to take 5 Tylenol within a 2 1/2 hr. period just to get some relief. I am scared about having a hysterectomy, but there is no way I can deal with this kind of pain for the next 15-20 yrs. until I go through menopause.

Has anyone else had this?
Should I have him leave my 1 ovary that doesn't hurt? Shouldn't he just take everything while it's done?
Does HRT increase cancer risks?

What do you all think? This isn't the way I want to live my life until menopause, but I never thought I'd be thinking of a hysterectomy at the age of 30. I'm finished having children, so that isn't a concern, I'm just SCARED.

Any opinions would be welcome! Thank you very much.
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  #2  
Unread 02-22-2002, 04:00 PM
30 yrs. old with lots of questions, fears, etc.

Hi Marlow,

I'm glad that you have found hystersisters and wanted to welcome you with a big . I'm so sorry that you are having pain so much of the time.

A hysterectomy is a big decision and is major surgery, and only you and your doctor can decide what's best for you, but you have certainly come to the best place to ask questions and do research.

Have you been to the Hysterectomy Options and Alternatives forum yet? Here's a link to it https://www.hystersisters.com/vb2/for...p?s=&forumid=4

You also might want to post your questions in the post-op board as there may be ladies there who have had similar symptoms.

Please be sure to let us know what decision you end up making.

Karen
  #3  
Unread 02-22-2002, 04:22 PM
One good week a month

Hello there Marlow

I would like to welcome you to hystersisters. This is an awesome place for support and information

I understand your fears. They are with out a doubt very warrented.

This surgery is more than a physical one. It can be and usually is very emotional as well.

I understand the "One good week a month" I've been there. I had Adenomyosis which caused me to have cycles every 2-3 weeks with raging pms that made my family just cringe when it hit. Also having very heavy bleeding, passing blood clots, cramping from front to lower back and down into my legs (mostly right side due to huge ovarian cyst). I took this for 5 years and enough was enough for me.. I would also like to add i feel good now my life does not revolve around my pain anymore

This is something you have to find peace with. Working with your Dr on your options.

I am 5 years older than you. I was able to keep both ovaries. From all i have read. If they or even one is healthy and no ricks of keeping them and you still have a lot of years before menopause then it is best to keep at least one. They pump out a lot of stuff that is good for your long term health.

I am sure there are tons more things i can share with you but i have drawn this out long enough LOL

If you ever need to talk, have questions, or just vent you are welcome to pm me and my AOL IM handle is Shell6766

Take care and be well
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  #4  
Unread 02-23-2002, 11:47 AM
30 yrs. old with lots of questions, fears, etc.

Hi Marlow. I can understand your fears and frustration. The past six years of my life were controlled by my pain and bleeding. I was diagnosed with IBS when I was 25 (about 3 years after I had a tubal) I was even under the care of a gastro specialist for the past 3 years due to the IBS.
I had several fibroids that my dr felt were the problems of the heaving bleeding etc. I tried everything to avoid having to have a hysterectomy but she finally told me last July "it was time to cry wolf" or learn to live with and try to manage the pain. We decided to remove my ovaries also due to a history of cancer in my family and the fact that I had had 4 precancerous polyps removed from my colon. I had my surgery on 9/6/01 (40 at that time) and it is so wonderful to be pain free. My dr removed about 10 lbs of scar tissue during the surgery and feels this was what was causing most of my problems. To be perfectly honest if I had to do it all over again I would try to keep my ovaries only because I have had so many issues adjusting my hormomes.
There are so many different opinions on HRT, I finally decided I have to trust my doctor on this. I still read tons on the subject and keep a list of questions to ask her.
I have not taken an medication for IBS since my surgery and the gastro dr feels my problems were because of all the scar tissue.
Having a hysterectomy should never be an easy decision and it can only be a decision you and your dr make. I can say it was the best thing for me and I'm glad I did it. I was scared to death before hand and did all kinds of things I laugh at now (having a willing will, donating my own blood, etc) but they were very serious issues to me at the time.
You have found the best forum to discuss your fears and frustrations though.
  #5  
Unread 02-23-2002, 04:46 PM
30 yrs. old with lots of questions, fears, etc.

Hi Marlow,

I'm glad you posted a topic like this. I too had 2 C-Sec's as well. I'm having the same pain during ovulation. It's my left side as well and now for the past few months, my left hip is hurting me. Sometimes I try standing and stretching it. I hyper extend it out on that side. Ouch! I can't feel it when I try to touch it and pin point it. It hurts when I get up and walk. About a year ago my lower back just ached so bad and feels so stiff. Now that pain is in my hip as well.

I had a sonogram that didn't show a cyst. It won't show endo from what I can understand. I think you probably have endo. I did hear that endo loves to connect and grow off of scar tissue. I have a feeling my ovary has basically grown together with everything!

My right ovary doesn't seem to bother me, so I'm going to definitely keep it if I can. My Doc is doing a TVH. She's taking the Uterus and Cervix. I'm almost tempted to just have her go through my belly. I want to make sure she sees everything as I don't want to have to go down this road again.

I have heard so many women tell me, since I'm done having children like you are, go ahead and clean house!!!

Yes, you are young. I'm 36, but at 36 years old with pain, I felt and walk like an 80 year old woman. I don't think you want that!

Take care and I hope you can make the right decision for you!

God Bless

Tracy
:
  #6  
Unread 02-23-2002, 04:57 PM
Thank you

Thank you all for your replies! I truly appreciate them.

TracyK, that is the first time that I've ever had anyone with the same symptoms! I also had a vaginal ultrasound done during the time I was in pain & it showed nothing, no cyst just a little bit of fluid around my ovary, but she said that was because it was during ovulation.

I too walk around like I'm 80 yrs. old during this time!! It does hurt to stretch the hip area & when I lay down I can feel a lump on that side of my c-section scar that isn't there on the right side.

I just feel so overwhelmed with all the information that is available here. I'm thankful for it, don't get me wrong, but my head is spinning with all the information!LOL

I'm worried that if I do have a hysterectomy & leave the 1 ovary that I'll be constantly worried about getting cancer on that one ovary.

Also, I read on one of the posts about hyst. affecting orgasms & that has freaked me out! Does it really???? I've never heard of that & it just adds another "what if" question to my long list.

Tracy, please keep me up to date on how things go for you.

Thank you all once again, & keep the information coming, it is very appreciated!
  #7  
Unread 02-23-2002, 06:38 PM
30 yrs. old with lots of questions, fears, etc.

Marlow,

I too have gone through much of what you are describing.

I had a tubal done about 6 years ago. Most of my problems started within six months of that.

It all started with a sudden pain on my left side. It would hit me suddenly, and usually when I was getting up or if I sat down too hard. It would hit so hard that all I could do is just stand there, take shallow breaths, and pray it would go away soon. It was always around my ovulation time, and while I cramped with ovulation beforehand, I had never experienced anything like that.

It progressed to spotting with the pain, sometimes a lower backache too. Over time, my abdomen started swelling immensely, the pain wasn't just a short stabbing pain, it became drawn out to weeks at a time. Any change in pressure on my side would make it so bad that I would actually get dissy. Recently I did actually pass out with this, very scary.

I no longer spot, I straight out bleed like a stuck pig, bright red blood. I am now anemic, I stay exhausted from fighting the pain and trying to take care of my kids at the same time.

It is always the same side, always the same spot, about the size of a half dollar. And always very, very sensitive to pressure.

I know what you are going through with that. It isn't easy to live a life surrounded in pain 3 weeks out of the month. Heck, after a while you begin to really appreciate those few days you get a break from the pain.

The doctors ran just about every test you can imagine on me. I was even told at one time I had cervical cancer,,,,at 26!! Turned out to be a mistake in the tests, but still. It has taken me so long to just find a doctor that wasn't telling me it was all in my head, or just give me demoral and send me home. I found a doctor that was in shock at the amount of time I had spent in pain. He wasn't willing to send me home with yet another narcotic. Or try birth control pills,,,,,again.

I hope that you can find one that knows how to clean his/her ears out and listen to his/her patients too.

Feel free to email me at anytime if you want to talk.

Nakona :usflag:
  #8  
Unread 02-23-2002, 08:42 PM
30 yrs. old with lots of questions, fears, etc.

Hi Marlow!

Keep on reading and reading these posts. They are so incredibly helpful and all of these brave women have great insight.

Just a bit on my history. I'm not sure what you have had done so far. Maybe this can help you make your decision. I've had 3 laporoscopies. I had my first one when I was 15 to remove a grapefruit size cyst. Then another lap when I was 18 and they found nothing. My Doc told me that after I have children, most of this would just flush out. Yea right! Sex has always been painful unless I'm liquored up or something! I had a lap 3 years ago. They did find some endo, but that was zapped. I actually had different symptoms then. I was extremely bloated and hurt all the time in that area. My periods weren't too bad tho, thank god!

Last June I really noticed that my lower back ached really bad. I went to a chiro, then an acupuncturist to no avail. Then I started reading about endo and cysts and stuff like that on the internet. I was surprised to find out that most of these women experience low back pain and achiness. I then called my doc and wanted to see her. I was surprised that when I mentioned back pain, they were very familiar with it. Now, the pain has gone to my hip. Very strange. I get up from a chair and it takes me about 5 - 10 steps to gain my composure to walk normal. I only have between 3-5 days a month to where I feel 'ok'. There may be a day I feel pretty good. That is considering my back hurts alot, but not debilitating. I'm not sure if you experience this or not. Kindof funny actually......I have to sit on the chair or toilet in order to put on my socks and underwear. It's that partially bending over that I cannot do!!!

At this point of my life, I just want to feel good. I'm very physically fit. I do work full-time, but manage to get to the gym during lunch. I haven't been going because I feel like crap. That bothers me alot. You know, after 30 you still want to look and feel like your 18?

Honestly, a Lap will definitely found out what is going on within your body. The only thing it will NOT do is cure you. A Lap is exploratory surgery, that's it. If there is endo, they may zap it, but chances are, it will come back again! For me, I'm done having children (3) and I just want to have a healthy lifestyle back. Especially for my husband! I think my right ovary is ok and I do want to keep that if I can. I really do not want to start any hormone treatment. I want my body to do that naturally.

I'd love to hear back from you Marlow.

I want to send you extra 's!!!!!

Tracy K

:

where are you from???
  #9  
Unread 02-24-2002, 04:59 AM
30 yrs. old with lots of questions, fears, etc.

Reading all of these posts sounds just like myself for the past 20+ years. One year after my second child my doctor suggested a tubal or a hysterectomy due to pain, heavy bleeding, etc....(you know the story) but at 22 years of age who's ready for something like that. Well if I'd known then what I know now (44) I would have saved myself a lot of pain and heartache. I am now 3 days post op and feel so much better . I was about to start before surgery and the pain from the surgery is nowhere near what I've had before. The leg pains, back pains, etc... are gone. Make sure you find the Best for you. For me it was a long time finding one who would just listen to what I had to say and tell me what the problem was. Well that's long enough for now. If you have any questions or just need an ear feel free to email me or send me a post. [email protected]

Barker
  #10  
Unread 02-24-2002, 06:12 AM
30 yrs. old with lots of questions, fears, etc.

Dear Marlow, I know exactly what you are talking about. I also have horrible pains in my left ovary. My dr. said he didn't see anything wrong with that ovary in the US so he will leave them in when he does my hist. I also have prolapsed uterus and cervix and he suspects adenomyosis because my uterus is enlarged and soft(kind of like jello). Anyway, I will have to ask him about my ovarian pain because I know there must something wrong with the left one. It used to hurt just when I ovulated, but now it's all the time. My DH and I were finally able to have int. the other night and the next day I was in so much pain, I had to start taking pain killers again. I am 32 and have 2 children an not planning anymore. Right now, I have a few good days out of the month and I tired of having to deal with that. I don't want my ovaries gone, but if the left one is bad, I don't want to keep it and still be in pain. I've never felt my right one so I assume it's good.
Have you tried the chatroom yet? It's great. My ID there is elsigirl. Anyway, this is long enough. Good luck with your decision.
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