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Feel down -- need some hugs Feel down -- need some hugs

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Unread 04-03-2002, 08:38 AM
Feel down -- need some hugs

Hi ladies--

I'm feeling down and I need some hugs. I'm so worried that I'm going to have to go on the IV chemo again at the end of this month if my CA-125 doesn't start going down. The medicine that they are talking about (Doxil) sounds scary to me -- I won't lose my hair (even though that is not a big deal) but I will get blisters on my hands and feet and in my mouth. Yuck!!!!!!!! I just don't know if I can do this anymore. To top it off, I got a call from my boss today -- for the past five months, I've been going to work for two weeks, then I've been off the next two weeks for chemo because it makes me so tired. She said that I'm not in danger of losing my job, but she has been in touch with Human Resources and I'll probably have to talk to them about my being gone so much. I can't help being gone -- I'd rather be at work, but if they start giving me grief, it will be terrible. Have any of you been in this situation? I guess I'm just having a bad day...

I love you all,

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Unread 04-03-2002, 09:11 AM

Remember--not everyone gets the problems with Doxil IF you have to go to that--some do not and those who do, from my Acor.org board have found stuff to help and that using ice while getting it helps a lot. So we'll think positive that things will work on the current chemo and that you'll get that drop. As for the job--are you covered under the Family Leave Law? They can't mess with you if you are. Also, are you unionized? I was covered under FLA and was unionized and they didn't mess with me.
Unread 04-03-2002, 10:23 AM

I am praying for an army of angels to come and take care of you, sweetie. God is on this one, so give Him time to comfort you through this.

Wishing you a peaceful heart.


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Unread 04-03-2002, 10:45 AM
Feel down -- need some hugs

s s Cyndy

It always warms my heart when I see a post from you Cyndy.
I'm so sorry to hear you are feeling down. Hopefully you won't need the doxil, but if you do, you will be up for the challenge. You are just too young and still to new in this fight to ever consider giving up. Like it says " In There's No Place Like Hope", your cup may be full, but your saucer is far from splashing over.

I agree with Margaret. People are icing their hands and feet while receiving Doxil with good results. One young woman in my support group did develope the blisters on hands and feet. They were very treatable with ointment and she continued teaching kindergarten.

I am so sorry about your job situation. That family leave act worked against me during chemo. The hospital where I worked for 29 years let me go after being out for six months. My onc refused to let me work anywhere near a hospital during chemo. My heart literally broke. They were kicking me when I was down. I had to come to the conclusion that it was a business office decision and in no way connected to the people I loved. That same hospital has since hired me back with all my seniority in tact, but it still hurts when I think of it. The nurses where I work are not unionized.

Keep in touch Cyndy. You are always in my thoughts and prayers.
And remember, you can do this!!!!

Unread 04-03-2002, 01:06 PM
Feel down -- need some hugs

Cyndy, I am so, so sorry to hear that you are feeling so low. You cant give up, you have come this far and even though it seems like there isnt an end to this, there will be. God has surrounded you with His angels and they are there looking after you.

I am praying so hard for you Cyndy. love and hugs and more love coming all the way across the Pacific ocean
Unread 04-03-2002, 02:11 PM
Hi Cyndy

Just wanted to send along some extra 's. Cuz we just can't get to many.
I hope a little miracle comes your way and the treatments are easy and the HR folks are human.
Unread 04-03-2002, 02:18 PM
Feel down -- need some hugs

{{{{{{{{{{HUGS}}}}}}}}}} all around for Cyndy!!!!
Keep your chin up Cyndy, do not get down on yourself.
One day at a time. You will get through this...you'll see.
Prayers are with you!!!!!
Unread 04-03-2002, 08:27 PM
Feel down -- need some hugs


Sending some more positive thoughts and prayers your way. I hope that you won't have to even address this issue and that the treatment you are now on does the job. One day at a time as Val said, just one day at a time but always towards the same goal.

Love ya hon!


Unread 04-04-2002, 06:19 PM
Feel down -- need some hugs


Just adding my 's and to those above. Hang in there! You can do this!

Try not to worry about your job too much. I'm sure they all know you would much rather be in perfect health and working everyday. And one day you will be--they'll just have to be patient for a little while longer. Crossing my fingers that they are understanding for you.

Take care, Cyndy.

Unread 04-04-2002, 06:31 PM
Feel down -- need some hugs

I am so sorry that you are going through this.

I am a Human Resources Manager, and I agree with the advice about the Family Medical Leave Act. If you qualify, you have protection under the act for 12 weeks during a 12 month period every year. This can be intermittent leave as well. They have to reinstate (or cannot fire your for attendence) and they must continue your benefits as if you were working full time.
You may also use the "magic words" ACCOMMODATION to the HR Dept.(THis strikes fear) You may want to say that you are requesting accommodation for your disability. THis accommodation is for a flexible work schedule. Cancer can be considered a disability under the Americans with Disabilities Act.

Since I have chemo brain, check this out with your state bureau of labor and industries or other employment rights department within your state. I can't guarantee anything I say makes sense right now!

I am praying for you. Hang in there warrior!

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