Myxoid Leiomyosarcoma | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Special Needs > Cancer Concerns - GYN is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators. is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support

Myxoid Leiomyosarcoma Myxoid Leiomyosarcoma

Thread Tools
Unread 04-07-2002, 10:28 AM
Myxoid Leiomyosarcoma

I'm new here and not real computer savy.
I wanted to know if anyone on the board has had uterine Leiomyosarcoma?
I had surgery last Nov. for uterine fibroids. The doctor who did the surgery was so sure that they were only fibroids that he just removed them and took no other precautions. He left my cervix to which the cancerous fibroid was attached because thinking it was only a fibroid, he didn't see any reason to take it out. He removed my uterus and ovaries. About 3 wks. later he told me one fibroid was a very rare cancer (myxoid leiomyosaroma). This was just a gyn surgeon. He sent me to a cancer gyn surgeon. I have had 33 radiation treatments and will go every 3 mos. for awhile to have a CT Scan and once a year for a chest x-ray. He said this type of cancer is really hard to cure and can show up in my lungs or liver later.
Does any of you know of anyone else and what was their outcome?
Sponsored Links
Unread 04-07-2002, 01:07 PM
Myxoid Leiomyosarcoma

Hi, jmadr!
I was diagnosed with leiomyosarcoma after my hyst last May of 2001. I am not familiar with "myxoid". Prior to the surgery it looked like I had a pedunculated fibroid (one that grows outside and attached to the uterus). But when they went in to remove the fibroid, uterus and cervix, they found that the tumor on the outside was not attached to the uterus but was in the lining of the small intestine ( and I had a CT scan and ultrasound as a diagnostic). The tumor was well localized and they removed it all as well as uterus, cervix and ovaries. After consulting with 2 different cancer centers, both agreed that was the treatment Then labs came back that the tumor was receptive for progesterone. I am taking Megace (Megestrol) as a tumor inhibitor. No estrogen except for Vagifem for vaginal atrophy and dryness. I see the oncologist/gyn every 3 months and had a PET scan done in October with a chest x-ray. I will probably have another in May prior to my doctor's check up. Yes, this is a rare cancer!!! How are you feeling??????
Unread 04-07-2002, 06:32 PM
{{{jmadr}}} and {{{Margie}}}

I found 2 articles on this, but not very much 'real' information, but I will post them here for you just in case there is something that helps you.

I will keep surfing around the net to see if I can stumble on anything helpful to you.

Meanwhile, I am saying prayers for both of you wonderful ladies.


Sponsored Links
Unread 04-07-2002, 07:25 PM
Myxoid Leiomyosarcoma

Thanks to Margie & Kaatie. I appreciate your help.

Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions

Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
5 Replies, Last Reply 06-29-2010, Started By anais
4 Replies, Last Reply 05-10-2010, Started By Riariv
19 Replies, Last Reply 02-04-2010, Started By kbranoff
7 Replies, Last Reply 02-07-2009, Started By peach250
3 Replies, Last Reply 09-17-2008, Started By Aleweast
2 Replies, Last Reply 07-04-2007, Started By jaminicoke
5 Replies, Last Reply 12-14-2006, Started By Marquise
4 Replies, Last Reply 06-29-2006, Started By tillybear8
26 Replies, Last Reply 02-26-2006, Started By LuvCats
12 Replies, Last Reply 11-16-2005, Started By maw
5 Replies, Last Reply 06-24-2004, Started By oneinamillion
16 Replies, Last Reply 05-24-2004, Started By bxhill
5 Replies, Last Reply 01-25-2004, Started By MercyEmm
6 Replies, Last Reply 11-28-2003, Started By noodles8861
0 Reply, Started By RareOne
13 Replies, Last Reply 11-16-2003, Started By savana
1 Reply, Last Reply 02-14-2003, Started By jewie
0 Reply, Cancer: Stories of Courage
10 Replies, Preparing for Hysterectomy (pre hysterectomy)
2 Replies, Hysterectomy Options and Alternatives


Hysterectomy News

July 30,2021


HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive


Calendar - Hysterectomies - Birthdays

Request Information

I am a HysterSister


Featured Story - All Stories - Share Yours


Your Hysterectomy Date

CUSTOMIZE Your Browsing  

$vbulletin->featuredvideos is not an array!