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I'm having a hard time understanding.... I'm having a hard time understanding....

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Unread 04-21-2002, 10:39 AM
I'm having a hard time understanding....

Dear Sisters,

I haven't posted in quite a while....because it seems that I am yet once again coming to terms with living in pain. I know that my problems could be a lot worse....so for that I am grateful.

I just do not understand why the docs can't/and don't seem to want to help me. I've tried to get into 3 pain clinics....all have rejected me, because they specialize in 'injuries.' I know that I will continue the search until I find the right one....but it is so tiring.

For those of you who may not be familiar with my story...here's the short form I had a LAVH/BSO 1 1/2 years ago due to Endo, severe pain...bleeding...etc. I had several laps before this, and tried other forms of therapy, but nothing was working and the Endo just kept on coming back....this is when I decided that a hyst would be the best thing. Afterall, my doc said it was a 99% cure. Boy, am I ever mad at him....I know better now.

Since my hyst., I have had one more lap where a considerable amount of active Endo was found! Since then the pain has remained/increased. My gyn does not want to do another surgery for a while yet (fear of adhesions)....so what are the options??

I also have CFS and FMS....Carpal Tunnel and IBS. The pain most days is unbearable....and I so badly need to manage it better.

I guess my dear ladies, I just needed to vent and ask for 'S I've been hibernating for a while...and I think it's time to let you all know what's been going on in my head.

I keep you all in my prayers....and thanks for listening....
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Unread 04-21-2002, 11:56 AM
I'm having a hard time understanding....

Judester, So Sorry to Hear you are still in so much Pain!! Isnt your Doctor Helping you out with Pain Meds? I hope you will be able to find a Pain Clinic Soon that will take you and Help You! Just wanted to send you some 's Hang in there!
Unread 04-21-2002, 01:59 PM
I'm having a hard time understanding....

Jude, I dont visit this forum very often ( only when cancer concerns is quiet ) but I had a little thought . Not sure you are open to this but...... why not try yoga ? I started just 10 weeks ago and it is so good for some types of pain. Carpal tunnel is one of them. So there you are I sure hope you find a solution soon , in the meantime I will say prayers for you.
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Unread 04-21-2002, 03:59 PM
I'm having a hard time understanding....

{{{{Judester}}}}}I can't stand it when you post. You break my I hate that you are still in so much pain. AAAKKKKKKK, I hope your docs can hear my screams! All kidding aside, I agree with Robin. I have heard from others that yoga helps them so much especially those with CFS and even IBS. I've been thinking of trying it for my IBS. I guess it is worth a shot. Please know that I am always thinking of you and praying, too. Take care.......

Emily s
Unread 04-21-2002, 06:32 PM
I'm having a hard time understanding....

Hi Judester...hate to hear you are in such pain! Just wanted you to know you will be in my thoughts and prayers. Hope you will soon find an end to your pain and a pathway to healing.

Unread 04-21-2002, 09:33 PM
I'm having a hard time understanding....

I am so sorry, I dont understand why you can not get in What about the one Sister who lives near you and sees a Pain Doc that she said would see you?? My heart goes out to you my friend. I dont think I could do it without the relief I do get. Hang in there Judy, my prayers are wth you.....
Unread 04-21-2002, 09:59 PM
I'm having a hard time understanding....

Judester: Thats a real bummer that you are in so much pain- i feel for you sister. Thats too bad about the pain clinics- it must work a lot different up there than it does here. Please dont give up !!
And i know what you mean about the IBS & the Carpal tunnel. Have you tried anything to help with the CP ? I wore braces for over a year but it didnt help- eventually it got to where my hands started going numb while driving my car. Then i decided to have bi-lateral CP surgery & it was one of the best decisions i ever made. No more problems. Somethin to think about.
I do pray that you get some relief soon- lots of 's for ya !!

Unread 04-22-2002, 03:39 AM
I'm having a hard time understanding....


It just isn't fair that so many of us here on The Road have to endure ongoing pain with no answers. I wish that I could take away all of your pain. But since I can't do that, I am here to give lots and lots of s We are always here for you my friend.
Unread 04-22-2002, 06:15 AM
I'm having a hard time understanding....

Hi Judester,

I am sorry that you are not feeling well. If you are still looking for pain clinics you should really try the one at Markham Rd. and Hwy. #7 that I told you about. The phone number is (905) 471-4348. The address is 5954 Highway 7 east, 2nd floor. The doctor to see is Dr. David Shulman as he is the only doctor there I believe that has experience with chronic pelvic pain for women. He is very nice, and is extremely non-judgemental.

Call your GP and see if he/she will refer you. I know you don't drive, but is there anyone that can take you to this clinic? At least get your pain under control. Then you can make decisions on what prcedures you are willing to try.

I hope you feel better soon. I hope we all do.

Sending you lots of 's. Email or call me if you want to.

Unread 04-22-2002, 11:01 AM
I'm having a hard time understanding....

Hey Jude, ya know I can relate sister, and that I"m here for you anytime, anyday.....just holler.....and please don't give up, there is an answer out there we just have to find it, until then here are some gentle hugs just for you.........

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