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Can I still be a sister? please... Can I still be a sister? please...

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  #1  
Unread 04-22-2002, 04:09 PM
Can I still be a sister? please...

Hello to all,
A decision has been made not to have a hysterectomy if it can be avoided. After much research and then testing my doctor has decided the surgery is too risky for me due to family history of early deaths caused by blood clotting factors.

They found I have anticardiolipin antibody one of several blood clotting factors that are not tested for on a routine basis. I'm 53, not yet in menopause. Doctor wants me to wait at least 6 months to see if menopause will start. She also assured me, if I could not tolerate my current status she would do the surgery but would prefer not to.

Bottom line...the fibroids are growing, can't have surgery, have to wait to grow older before I feel better...I may never get to be a princess. And, I don't seem to fit anywhere. I'm not pre, not post, did the options, do I still belong? Can I still be a sister for a little while longer?...please, maybe in AGING AND WAITING?

Maralyn
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  #2  
Unread 04-22-2002, 04:11 PM
Yes

Yes... you can still be a sister. I am sorry to hear that you have to wait a while longer per your doctors advice. I hope you continue to come in and post here, as well as use the chat room. We are here for you, every step of the way.


s

Amy
  #3  
Unread 04-22-2002, 04:57 PM
Can I still be a sister? please...

Here is a from me to you
I will be praying that everything will work out for you
and yes you still can be a sister
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  #4  
Unread 04-22-2002, 05:16 PM
MaralynHugs, sure you are welcome to be a sister. Who know the day may come when you

Hugs, sure you are welcome. It is no matter wether you are not pre yet, you by the sounds of it are having problems with the womans dept, so stay read and learn. there may be a day that you need support and we are all here for each other. Hugs Vicki
  #5  
Unread 04-22-2002, 06:50 PM
Can I still be a sister? please...

(((((Maralyn)))))

Aww sweetie, of course you are still our sister!! You are still going to need support, love, and hugs from us....so we hope you do stay with us!

Sending out prayers to you that you start feeling better. Make sure you continue with your Dr and stay up on all of your visits with her, she sounds like she's really looking out for your best interest.

And to where you fit in......you fit in right here with us!! Surf the entire site, there really isn't "one place" any of us "fit" into. Be a social butterfly and read and post everywhere!

Hope to see you in the Chat Room (hint, hint, hint ) Best of luck to you dear sister!

Love & Hugs
  #6  
Unread 04-22-2002, 07:49 PM
Can I still be a sister? please...

I'm so sorry that you are facing this delay. I don't know very much about blood clotting disorders, but I hope someone will be along soon who does.

I'm sure you and your doctor have thought this through, but I would also suggest a second opinion if you haven't had one. Perhaps a specialist could shed some light on other surgical options for you.

In any event, whatever you decide, you are ALWAYS welcome here. You are a Lady In Waiting and we don't put an expiration date on the "waiting" part!!

We are here for you 24/7. Keep searching for information and maybe you will find some good answers and some relief. I sure hope so!!!



Karen
  #7  
Unread 04-22-2002, 08:52 PM
Can I still be a sister? please...

Wow, Maralyn,

What difficult choices you're faced with. I completely agree that you are a sister and that as fun as the little titles are, I'm pretty sure none of them were created or are used to exclude anyone - I'm pretty new to the site, but all of the experiences I've had here have been full of warmth and an overwhelming effort to include all women who are faced with difficult gynecological issues.

That means you, sistah!

Cecee
  #8  
Unread 04-22-2002, 08:56 PM
thanks



Hey thanks for the support. I do like hanging around. I've watched 3 months of sisters go to the castle. It's neat to see them come in, in a hurry to learn and watch them go through the decision, question process and then the anxious waiting and finally a surgery with relief for the first time in years.
I alway felt sorry for us because we had to put up with so much, just because our bodies are made to reproduce. I've changed my opinion because of this site.
I'm very proud that I am a woman and so proud of the courage that I see here each day. I really do believe we are the stronger sex. Thanks for keeping me.

Maralyn
now, if I can only find the courage for the "CHAT ROOM"!
  #9  
Unread 04-23-2002, 03:53 AM
Can I still be a sister? please...

Dear Maralyn,

I am sorry that you have been told that a hysterectomy would not be safe for you at this time, if a hyster is the only option to relieve your pain and discomfort. I want to add my encouragement to the suggestion that KarenL has already made - that you seek a second opinion and perhaps a referral to a specialist in blood clotting disorders.

It sounds as if your doctor has done some very careful research, but a second opinion is always good when considering major surgery.

I will be keeping you in my thoughts and prayers, and hope that someone with more information will come along to help.

And I know what you mean about chat rooms - I do well to talk to one person at a time, let alone lots of people talking all at the same time - I can't keep up!!

's

Karen
  #10  
Unread 04-23-2002, 04:23 AM
Can I still be a sister? please...

Girlie! You will always be welcomed here! Always!

I'm sorry you had to put off your surgery and you are in pain and discomfort. It's hard to be in limbo. I have been there, not easy.

Why not get another opinion or 3. Maybe another doctor knows more about blood clotting and how you can still have the surgery safely.

And we are the stronger sex for sure!

Sara
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