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Unread 05-02-2002, 06:12 AM
sniffle. sniffle. Finding a new Gyn

deep sigh......few tears.....some fluttering in the tummy....

Spoke with my gyn's nurse yesterday. Asked her THE question :"I've decided I want to keep my cervix. Does Dr. K perform supracervical hysters?" Her reply? WHY would I want to keep it. The only women they ever see ~with~ their cervix are the really old ladies who didn't know any better & that's how hysters were done when they had them. It's just not done that way now.

Okay. Guess that answered my question. She wanted a detailed list of WHY I wanted to keep I gave it to her (gyn already has it). She's going to 'check' with him & call me back. Angels, I just don't have a good feeling about this guy anymore. The trust is gone.

DH & I feel like we're back to the drawing board & still on the search for a gyn that really wants to work ~with~ us instead of just 'doing their job - the simplest way.'

I'm so disappointed. I've been on this female-organ-merry-go-round before & somehow, if DH wasn't supporting my position on this 100%, I'm so worn out by it that I'm close to saying - 'whatever you want, Dr. K - just take it all." But DH & I did that before & lost a child...............

I know that's not right - it's MY BODY - MY decision. But I'm so anxious to get that scary ovary out & take care of all this discomfort & stress. My surgery with this guy was scheduled for June 4. sigh.

I'm so uncomfortable, everything is so swollen - just days before my period to start........ & was so excited that this would be my last flood. Could be part of my high emotions.

Just needed a good stress-relieving cry last eve & DH obliged. sniff. sniff. I'm gonna go find some Kleenex now.

I got a good night's sleep & I'm planning on calling my main physician right away this morning. There's GOT to be some good GYN out here somewhere in Kansas that will do a supracervical!!!

Thanks for listening. sniffle.

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Unread 05-02-2002, 06:29 AM
sniffle. sniffle. Finding a new Gyn


Girlie, you get as many opinions as you need to feel comfy with this surgery. Now this is just my opinion, but I don't talk to nurses or receptionists any longer. I ask for the doctor to call me back. I have had too many instances with the nurse or receptionist saying things the wrong way. I want to hear it from the doctor! So why not call them back this morning, ask for him to call you asap and then, say have a nice day to the nurse. Remember she is telling you HER opinion on the surgery. How do you even know if she is speaking is what the doctor believes? Or, if she has been through the surgery?

It's okay, I had 4 opinions. This is major surgery, a life change.

I'm here if you want to talk!

Unread 05-02-2002, 06:37 AM
sniffle. sniffle. Finding a new Gyn

Robin sweetie ~ 's for you. I sort of understand how you feel. I am military and just as I find a good GYN either I move, or they do. I just had my TVH on 4/23 and the GREAT gyn who I have been seeing will be leaving in June. I wanted to bust out in tears. She is such a great doc and so well known in the hospital here (especially post-partum, L&D and the O.R. ) When I had my TVH, the nurses were commenting on how sad they were all going to be to see her leave. All the nurses and other staff that she has worked with are trying to get together and throw her a party before she leaves. I have been seeing this same gyn for going on 3 years now. She has always listened to me, done what I asked (most the time) and never gave up hope on me. Prior to the hyst, I had been seeing her pretty constantly. I have had chronic pelvic pain, dyspareunia (painful intercourse), suspected microscopic endometriosis, uterine prolapse (would explain the painful intercourse ~ like something was being bumped). I also have been on a multitude of birth control pills, 2 laprascopic procedures (one removing an adhesion on my right fallopian tube in Nov 00; another removing right ovary and appendix in Dec 01). This doc has never given up and always been so nice to me.. might I add this is very so not like military doctors.

It is important you find a doctor that understands how you feel and is going to work with you. It's your body, like you said. If you are wanting to keep your cervix and this doc isn't willing to do that for you then maybe it's time to look for another doctor. Try asking your primary physician for a referral for another gyn or you can try calling a local hospital. Some have a referral service. I see you are in Morland, KS and that is a small town. I don't know where abouts you are located exactly ~ like in relation to Stormont Vail in Topeka, but they have tons of services there. If you can't get a referral from your PCP, then try calling Stormont Vail and checking to see if they can help you out.

I wish you all the best with whatever happens. Let us know what happens.
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Unread 05-02-2002, 06:49 AM
sniffle. sniffle. Finding a new Gyn

Hi Gadget Girl.....

How do I know the nurse is speaking what the doctor practices? Because when we consulted with Dr K & we asked about keeping the cervix (this after discussing multiple other related topics for at least 15 minutes prioir) he leaned back in his chair, looked me square in the eye & said 'BAD idea.' When I asked why? (I'm a 'why' kind of a person....) he said: "risk of cancer." Any other opinions I brought up were 'hooey'. When I finally related this to my main doc - he wondered if K had learned how to do the procedure.......................

& Yes, Amy - we live in a TINY town in the rural northwest corner of the state. We were traveling 2-1/2 hours to Dr K & now are looking at 4 hours to Wichita or 5 hours to Topeka or the KU Med Center on the eastern side of the state.

I seriously think I would be more in control over my anxiety about all of this if there wasn't the risk of cancer looming over me & that right ovary.

sniff. sniff. I need another tissue.

Also, my general physician is very progressive (think Northern Exposure) & he listens & discusses any research I bring to him about anything. He agrees that there's no reason why I shouldn't keep my cervix (being only 34 & for the multiple reasons I gave him) & he will refer me to anywhere I want to go. He also has many contacts that can expedite the appointment....

Thank you for being there - I'm driving my DH & my dearest friend (who's 9 hours away - thank goodness for internet & e-mail!) a bit batty - but they both understand.


Thank you!

Unread 05-02-2002, 11:13 AM
sniffle. sniffle. Finding a new Gyn

Hi, Robin-

There is definitely mixed info out there on keeping your cervix and the risk of cancer in leaving it in. It sounds like your gyn is very much on the "lose it" side. Ultimately, though, it is your body and your decision.

Sounds like a good idea to talk to another doc or 2, get their opinion, and then choose what doc you want based on your level of trust in them. It may be that one of them will feel you shouldn't keep your cervix, but will be willing to do things as you want them done anyway, and you'll still have trust in them.

I think it's very important to feel confident in your surgeon!

Unread 05-02-2002, 11:22 AM
sniffle. sniffle. Finding a new Gyn

I had surgery on 3/20/02. I opted to keep my cervix, MD was very supportive said it is support for pelvic floor and bladder. He said if you have not had abnormal pap it is safe to leave cervix. I had been to 3 other doctor's before i found this guy. I did not feel i had enough trust in the others. My advice would be if you are doubting this guy get another opinion. It is your body! Do not let him force a procedure on you that you do not want. I know this procedure takes alittle more time(per my md) but he was willing to comply with my wishes. I wish you good luck in whatever decision you make. I am glad you hae a wonderful supportive husband.

Wishing you well

Unread 05-03-2002, 10:59 AM
sniffle. sniffle. Finding a new Gyn

On leaving the cervix in for support reasons:

There are gynecologists who believe you will have MORE, not fewer problems later on with support because the uterus and cervix are one organ; removing part of it (the uterus) sets you up for problems later. I have no idea whose view is correct.

I'm a little suspicious of the nurse's comment "supra's aren't done anymore, only old ladies had them'. If anything, they seem to be MORE common today because some women are concerned with the role of the cervix in sexual satisfaction. And my mother and aunt, who qualify as 'old ladies" both had their cervixes removed with their hysts. It was done decades ago by a doctor who graduated from medical school in the 1920's.
Unread 05-03-2002, 12:46 PM
sniffle. sniffle. Finding a new Gyn

It's all so interesting. Hard to decide which way to go. I am currently leaning toward leaving it...theory is - I can have it removed later if problems develop - but can't put it back if there's problems that way.

The fear of cervical cancer is not palpable enough, for me, to have it removed.....if my fear of cancer would rule my body...I'd have my breasts colon....etc.

I do tend to see the logic of the 'pelvic support theory' - but also know that if the cervix is removed, then everything would be 'sewed up', if you will.

& yes, I thought the nurse was a bit too flippant & uninformed to be talking to a patient that way. Also bothered me that the Doc himself didn't call me. I haven't been able to even discuss this issue with him. He shut me off in the office before we could even get anywhere.

Ah.....but he's not the ONLY doc & his theory & methods are not the ONLY ones out there.............loved it when the nurse was surprised to hear I would be getting a second opinion...& NOT from one of his local peers, but from a teaching physician in yet a larger city.

Thanks for the input!!!! oh yes - to see the 'rest of this chapter' check out my 'Found' post.

Unread 05-06-2002, 03:17 PM
sniffle. sniffle. Finding a new Gyn

Hi Robin!
I know this is a very confusing and distressing time for you. I've been on that "merry-go-round" too, and I do sympathize. I just want to share my experience with you and hope I don't confuse you even more!

I was scheduled for a supracervical hysterectomy on April 22nd. I had decided to have a SAH, because I was concerned about support of the bladder, vagina and rectum, and a little about possible shortening of the vagina and healing of the top of the vagina. The last concern seems to be more of a problem with a vaginal hysterectomy, since the stitches are on the outside (at the top of the vagina), rather than internal. I also have a good friend who had a SAH, and was very happy with it. She kept both ovaries, and never had a "mini-period". I am also at very low risk for cervical cancer. My doctor did say that removing the cervix after someone has had a hysterectomy is "the worst". So, you need to weigh your risk of cervical cancer. Women who have had multiple partners are at much higher risk than women who have not.

Even though I am much older than you (46), I also decided to keep my ovaries if they looked o.k., because I didn't want to have to deal with the hormone replacement issue any earlier than I had to. I could have tried a LAVH, but since my uterus was 10-week size and I haven't had any vaginal deliveries, my surgeon wasn't sure he could do it that way. I wanted to make sure he could see everything well enough to make sure all my other organs stayed put, and nothing else got damaged.

So, I went into surgery expecting a supracervical abdominal hyst. I came out with a total abdominal hyst. (TAH - they take uterus and cervix), because my big ol' fibroid was distorting my cervix so much, he couldn't save it. However, he did say that he had to do very little cutting of the utero-sacral ligament (which holds things in place down there), so I shouldn't have any problem with support. He also said there should be very little, if any, shortening of the vagina. Also, all my stitches are on the inside. I am only 2 weeks post-op, and so far my recovery has been going very well. I don't think he needed to manipulate my bladder much, because I was able to pee the day after surgery, and even though I go a little more often now, it's not terrible. My colon is working fine, too. I'll find out how things are healing in the vagina at my post-op exam tomorrow. I'm not upset about the final outcome, because I know he had no choice, and so far it looks like none of my fears have been realized.

My opinion (for what it's worth) is that you should do what you feel is best for YOU. It's very important that you go into the surgery feeling confident about your decision. I was very fortunate in that I had a surgeon who listened well, gave me information, and pretty much let me make up my own mind. I also did LOTS of research, and went for a second opinion with someone who was not in my insurance plan, and therefore I knew wasn't just trying to get my business. Your surgery date is almost a month away. You probably still have time to get a second opinion before you would need to cancel that date. And if after a second (or third) opinion, you feel better about going with a different surgeon, then do it! It's YOUR body, and YOU have to live with the results.

Good luck!
Unread 05-06-2002, 05:05 PM
sniffle. sniffle. Finding a new Gyn

Hi Carrolle!

Thank you so much for the boost...I have found (check out the 'found' thread) another gyn...a little farther away (4 hours instead of 2-1/2) & we go see him tomorrow.

He was my gen phys's teacher on C-sections, etc & remains a teaching physician. He has told my gen phys that even though he doesn't completely agree with the reasonings for keeping the cervix, he's willing to listen to my side & do what makes me comfortable -barring any health risks.

On that front, my gen shared with him that my only partner is still my current partner & I was the first & only for my hubster too.

Minimal risk of cervix cancer here - even checking out my past Paps & family history - so that's not a real concern for me.

My biggest concern was the fact Dr K would NOT discuss keeping the cervix. Big door shut - period. NO! That's not the best way to handle a 'why' person. I may end up without my cervix, but you know what - it's MY decision - NOT my doctor's 'just because'.

THANK YOU! for taking time to post!


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