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Neuralgia llioinguinal Neuralgia llioinguinal

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  #11  
Unread 05-27-2002, 09:13 AM
Neuralgia llioinguinal

I also would be very interested in anything that might helps this, usually as Kim says they give you shots of long lasting anesthetic with steroids but I'm allergic to lidocaine so I can't have them.

while everyone is quick to say that I have a trapped nerve none of my dr's have suggested what I can take to make the pain better
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  #12  
Unread 05-28-2002, 06:22 AM
Neuralgia Llionguinal continued

Treatment that I've received to date from the pain management specialist:

Shots...a lot of them....sorry I don't have the names of the medications here to be specific but will nonmedical words may be best anyway. My first treatment was at the end of February= 8 shots. Two to deaden the pain the region for the six noncortizon (sp) shots too. I had immediate relief right there in the doctor's office. The pain medication for the shot treatment lasted several hours and I was warned that when it wore off that the pain would come back with a venegance as the brain would be looking for it...it did about midnight but I got through it. I also received medications..neurontin 300 mg 3 times a day...(for me...it is like having two glasses of wine so and I haven't been able to add the middle of the day dosage though they say the effects will wear off?...I'm still on the neurontin to day and was told that I will have to have lab work as side effects to the liver have to be monitored) also I received "vioxx" 5o mg a nonsterodial anti-inflammatory to use instead of the 1200 mg of ibuprophen that I had been using (have discontinued the vioxx and take the ibpuprhoen when I need relief even though I'm at risk for stomach problems because it works...). This treatment reduced my daily pain from a high of 7 to a low of 2 and most importantly allowed me to sit at my desk and actually get some work done...
my pain is limited to the traditional sitting position...other discomfort as a result of that but I think of them more as side effect to the "main" problem....after 4 weeks pain begin to slowly return.The second treatment was first part of May. again 2 shots to prepare for the next 7 shots !!! THE SHOTS HURT....the pain shots and the treatment shots very much like going to dentist...
the second set of shots were injected closer to the nerves that they believe are problemmatic..the Llionguinal and the Lliohypogastic..(I find a picture on the internet back in February that you may want to try http://anatomy.med.ecu.edu/ha/ha/figs/135/350605.htm)
The second set of shots DID NOT provide the relief that the first set did. I do have some relief (3/4 pain #) but I gotta tell you...I have never been an easy bruiser like some people and the bruising that I get from the shots make me feel sorry for myself...there is pain from the actual shots too...and the cost is phenomenonal !!!
Before I go back to the pain doctor...I'm going to explore "alternative" treatments...I will do everything that I can to avoid those shots again....I have gone to a chiropractor...he thinks that with all of the pushing around in there that the nerve may need to be adjusted...I felt really good after his first treatment and I will continue those treatments to see if it continues to make a difference be returning...I am also going to an acupunture physician to determine if there is help available.
Now that I have provided way more information than you probably wanted...hope that it may help you with your options..please keep in mind that I am not a physician and have no medical education whatsoever. I offer my experience to you in an effort to be informative so that you can take control of your treatment ...God bless you.
  #13  
Unread 05-28-2002, 08:57 AM
Neuralgia llioinguinal

thanks so much for all the info

The more I have the better, my dr says I'm not a candidate for the shots due to my allergy to lidocaine, I wish I could find out if they could use something else?

And no one has mentioned neurotonin to me at all, I wonder if it would be worth a shot to see if it helps with the "trapped nerve pain"?? I also have left sided bowel adhesions so no ones' sure exactly where the pain is coming from

thanks again for the help and I wish you luck with your treatment too!! 's!!!
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  #14  
Unread 05-28-2002, 02:02 PM
Thank you!

Thanks for all the information. I am also on Nuerontin with vicodin. I do not get any relief with ibuprofen! Believe it or not, I don't get side effects like I am drunk or anything. I just am not too happy about popping those pills all the time. So, I really appreciate your feedback. I am printing your response out so I can talk to my Dr. about the options you have had. Also, the regimen I am on is not working as well any more. That is frustrating. I guess I am building up a tolerance. I do have to lift a lot and am physically busy throughout my day. So, that makes it harder. Thanks-
  #15  
Unread 05-28-2002, 03:18 PM
neuralgia llioinguinal tingling?

I think I have something similar to what you describe and was wondering if anyone has tingling along with the pain. Mine started a few months after my surgery and is on the left side. I also get tingling along my leg with pelvic pain. Any help you can give me would be appreciated.
Donna



Gidge,

has any of the dr checked you for a disc problem? I have similar pain and symptoms and I have a herniated disc. I know you don't need one more thing but I thought I might mention it. I have followed your threads and my prayers are with you. I wish you could find a dr not on strike to help you. Donna
  #16  
Unread 05-28-2002, 03:57 PM
Neuralgia llioinguinal

hi,
i just wanted to get in on this thread...i have the groin pain, stabbing, dull, etc. i've seen my gp, gs, gyn and tomorrow an orthopedic dr. this is driving me nuts. and thanks for all of the detailed posts. i'll be looking for whatever anyone finds out.
  #17  
Unread 06-08-2002, 05:04 AM
Neuralgia llioinguinal

When I saw your post, I had to reply to it. Having had two more surgeries following my TAH/BSO in Feb. 2000. One in April 2000 to have my faschia unstuck from the allergic reaction to vycril. And in Sept. 2000 for colon adhesions and have a surgical hernia repair done. Through all of that, I still had the most horrific nerve pain in my groin area and it went over the right pubic area and down to the top of my thigh. I had the sucker blocked a couple of times . And finally in Feb. 2001 my only option left was to have it destroyed by alcohol injection. It took a month for it to completly work. But I finally had blessed relief. I still have pain on occasion, but that's because of the dense scar tissue I have. And my ob/gyn said that it doesn't take much to tear scar tissue. But when I do, in less then a week it settles back down to a dull roar. I didn't read the rest of the posts to your post. But I hope you can find some hope and relief. nerve pain is the absolute worst. I recommend that treatment. Best of luck.
  #18  
Unread 06-08-2002, 05:16 AM
Neuralgia llioinguinal

P.S. This procedure can also cause tissue damage, but, I thought with all the dense scar tissue I have any how, what would it matter. The procedure is done in an OR room. And done much the same as a block. And I was cautioned that it might not work . Or last for a year (as nerves do rejuvenate) and have to have it done again. But, it's now been 16 months. My pain management Dr. is the one who did this. I think it's relatively new. And I do live near Boston. I would ask your pain management Dr.s about this. It worked for me, and I'm not so easy to treat normally.
  #19  
Unread 06-09-2002, 08:35 AM
Ditto

Ditto to much of the above.

I found relief with medication combining
Zoloft with Elavil. Elavil has been found
to be effective in relief of neurological pain.
When combined with an ssri it helps generalized
pain.
Not everyone does well on these medications
so personal research and talks with
the doctor are good precautions.

I also had digestive problems, upper GI
all the way down into the colon that
were also causing some of the "mystery"
pain.
We actually found that addressing some
problems in the lower end changed some
long standing upper GI problems for me.

turned out that I was not eliminating well
and "things" were getting stuck.
I had emergency surgery to fix a lower
bowel problem and they found me so
so horribly backed up that the surgeon
couldn't even get everything from the
bottom up.
We then had to do things from the mouth
into the gut to get every thing clear.

Currently I am on anti spasmodics for the
GI problem with a med that addresses
the whole digestive system and taking
a nice little lax. new on the market that
makes everything slide from start to finish.
Very gentle stuff. You don't even know it's
working. the ssri's have been found to also
address digestive problems as the seritonin
has something to do with the digestive tract.

Getting my bowel issues addressed and
the medication have made things do a turn
around.
All Pain is much much better

My progress has been slow up until now.
I'm 10 weeks and still healing.
  #20  
Unread 06-10-2002, 06:04 AM
Neuralgia Illioinguinal continued

Ladies, thanks very much for making the time to reply to this thread. Information is helpful and very much appreciated.
In the last two weeks I have found some relief. Went to a chioropractor and acuptunure physician. Am going to explore all alternative options available in an effort to avoid those painful shots. PLan to give the alternative methods a month to determine how effective it is or ....Improvment has been enough to be encouraging and to allow me to get more work done at the office....so we'll see. Scheduled to see the pain doctor soon to discuss these treatments. Will keep posting in an effort to gather more information/options and to share with others. Thanks again.
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