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I am new here and scared for my mom !!! I am new here and scared for my mom !!!

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Unread 05-19-2002, 12:24 PM
I am new here and scared for my mom !!!

Hi everybody,

I am a scared daughter of a mom who recently went through a simple hysterectomy ( with removal of ovaries and tubes ) for, as we were told by the doctors, a cervical cancer PT1 / Ia.

My mom was operated in Germany on April 15, 2002 and is still in a rehab clinic - tomorrow, six weeks post-op. Her surgeon and her OB/GYN told us ( I talked to them on the phone ) that no radiation / chemo is needed.

However, in this rehab clinic, she was examined 5 weeks post-op by a Ph.D./OB/GYN who, apparetly, was not very happy that she just had a simple hysterectomy. She had a pelvic exam, recto-vaginal, Pap-smear and he also did the colposcopy and took a tissue for biopsy( he is, probably, suspecting something !).

My mom was, initially, supposed to be discharged tomorrow, but since the results are not going to be in, until Tuesday/ Wednesday, her stay in this clinic was extended.

Can someone tell me, what will happen next, if they found more cancerous cells in the vaginal canal - will she have to have a second surgery or radiation.

Thank you all for your replies.

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Unread 05-19-2002, 02:03 PM
I am new here and scared for my mom !!!

Hi Lana, I am not sure of medical procedures in Germany so I can only tell you of what happens here in Australia.

When the gynaecologist found that there were still abnormal cells on the vaginal wall he first of all tried laser therapy. This is the usual procedure .

If this doesnt work ( as in my case ) the next procedure was for me an upper vaginectomy where a small disc of tissue is removed for sampling. Then radiation can be used ( internal , external or both ) Chemo is sometimes used .

Treatments used, depend on alot of things - the Dr, the patient, the stage and spread of cancer.

I sure hope you Mum is ok . She is fortunate to have you caring for her. Please ask us any question that you may have and we will always try to help. x x
Unread 05-19-2002, 05:31 PM
To Robyn

Robyn, thanks for your reply !

Could you tell me if the upper vaginal hysterectomy is a big procedure - I can imagine that it is not as big as the abdominal hysterectomy, my mom went through.

Also, could you tell me what is the schedule/ intervals of your follow-up exams and what kind of tests do you have ?!

When was your first post-op exam ? Was it that early, as in my mom's case ( 5 weeks post-op ) ?!

Sorry, for so many questions - but I am trying to obtain as much information as I can, since we don't know anybody from our friends and/or relatives to have gone through this nightmare !

Just to mention, my mom also had a mammogramm ( the first in her life - she is 69 now !!!) and they've found two small cysts which were declared as benign. I still think, she should follow up on that, as well. Do you know, how often, though ?!

Many thanks for your patience and advise,

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Unread 05-19-2002, 06:07 PM
I am new here and scared for my mom !!!

Hi Lana,

the upper vaginectomy is not a big operation. I was put under a general anaesthetic and the procedure took about 1/2 hour. They remove a part of the vagina, depending on how much is affected , depends on how much they remove. This is then sent to pathology to be tested , to see if the margins are clear.
In my case the margins werent clear so I had radiation , just to be on the safe side.

My first post op check was at about 3 weeks as I had a very high temp, but usually it is around the 6 week mark ( in Australia that is ) .

My checkup were 3 mths apart after that but I am now on 4 mthly visits.

I am not sure of the mammograms but there are a few ladies who have had scares with breast lumps and I am sure they will be along soon to help.

Do you live near your mum ? Maybe you could have a chat to her Dr to see why they are keeping her in so long. Maybe they just want her to heal properly before allowing her to go home.

Best of luck and dont worry about asking too many questions
Unread 05-19-2002, 06:22 PM
To Robyn

Thank you for all the insight !

I still hope and pray that she will not need any further procedures !!! Her surgeon told me that the margins were clear.

However, now I am scared why this doc - at the follow-up test- took a biopsy while he was performing the colposcopy.

What kind of tests did you have in your 3-month follow -up tests ?
I read somewhere that a pelvis exam, a recto-vaginal exam, ultrasound and blood-tests are the usual ones. Do you have colposcopy on a regular basis ?

I am living in Canada and my mom is in Germany... that is why the only contact I had with the doctors was on the phone.

By the way, my mom is in a rehab - clinic right now. She was dicharged 5 days post-op from a regular hospital and asked her doctor if she can go to a rehab clinic to recuperate. This is the normal procedure in Germany, after such a surgery ( the insurance pays up to 4 weeks for a rehab - clinic).

She was supposed to come back to me in Canada on May 22 and she has a return ticket, but now that this doctor has performed all these tests, she was told to stay the entire next week and if needed ( if the results come back positive ), she must have more treatments.

Thanks again, Robyn,

Unread 05-19-2002, 07:12 PM
I am new here and scared for my mom !!!

Hi Lana, well it sounds like the Drs are just being cautious. Please remember that in the majority of cases the hysterectomy is all that is required to remove all the cancer. In some cases ( as in mine ) further treatment is needed , but this is very rare.

I have a colposcopy at every checkup (4mths) . Sometimes the Drs will do a biopsy of tissue to see if there are any changes . Ultrasounds and blood tests I dont have done. I guess all Drs are different .My cancer would not have been detectable by either of those.

You take care and I will say a prayer for you mum, I am sure she will be fine x x x
Unread 05-20-2002, 04:13 AM
To Robyn:

Thanks for your words, advises and prayers !

I'll keep you posted !



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