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A little frustrated... A little frustrated...

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Unread 05-23-2002, 01:44 PM
A little frustrated...

Hi Girls,

I don't normally post here on CC, though I had my radical hyst over a year ago for cervical cancer. I have been following my post-op schedule for visits to my ONC GYN faithfully.

This past Dec. my Dr. found a vulvar lesion showing pre-cancerous cells and I had a same day procedure to have the cells removed. My Dr. wanted the cells removed but didn't think it was anything to "worry about". I know that those of us who have had any type of cancer diagnosis worry by nature when anything is amiss. But everything seemed ok. I was lucky in that I haven't required chemo or radiation; the path results from my hyst showed all the cancer to be removed.

Anyway, 6 weeks ago I had another routine follow-up appt. with PAP smear (or I guess I should say vault smear). I have not had any symptoms and assumed everything was ok. Today I get home from work and and have a message on my machine that my Dr. wants me to come in for a culposcopy and not wait until my next routine appt. in August. I called the office right away and asked the girl on the phone why exactly I needed to come in and could this possibly be from the PAP report from my office visit 6 weeks ago???? I was told that yes, my report just came in this week..."you know, sometimes the labs are backed up too". I practically wanted to choke her through the phone when her response to what did the PAP show that has the Dr. wanting me to come in, and her answer was "Well, it shows that you need to come for the culposcopy"...well, duh!' I trust my Dr. and he is well known and well respected in the medical community. If anything, he errs on the side of caution, which is a good thing.

Sorry this is getting long. I actually feel very fortunate that things have gone as smoothly for me as they have. But of course, now I'm worried about what's going on. I could speak with the Dr. by phone, but will probably wait until my appt, which is now mid June. I guess I'm just venting and whining because it just seems to go on and on, even when the news is good news, there's always that cloud hanging over with the possibility of what the next routine visit will show.

Thanks for listening; I feel better just getting this out of my system.
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Unread 05-23-2002, 03:36 PM
HI Tina

Oooh, I don't blame you for needing to vent. The office staff can be so (pardon the pun) clinical sometimes. They forget a person is on the other end of the phone.
The nurse at my first surgeons office, when I asked about the vulvar biopsy results had to go rifling through the paperwork, and then came back and said "oh, yeah that's cancer too." Like it was an ingrown toenail or something. But I digress.
Please do give your doctor a call and discuss the results and next test with him. Perhaps he can say something to put your mind at ease a little. You've been through enough already.
Sending up a with your name on it. It's gonna be okay.
Unread 05-23-2002, 03:38 PM
A little frustrated...

s Tina

You're certainly venting in the right spot. I agree. The fear must never leave completely. But it sounds like you are doing very well in spite of it.
I am sorry you got the news in such a stupid manner. I really think docs themselves should be making these calls. And not leaving messages about abnormal results. I would not wait until the next appt in mid June. That's almost three weeks away. You are perfectly within your rights to know what is up with the need for further testing. Keep in touch.

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Unread 05-23-2002, 06:38 PM
A little frustrated...

Hi Tina,
Glad you decided to vent a little...it does help clear the brain huh?
I agree with others, you might consder calling and asking to speak with the DR. I work in healthcare and know that sometimes the office staff is great and sometimes they are like what you experienced. The Dr would probably be happy to speak with you either on the phone or in person before 3 weeks are up...that is too long to live in the "unknown".
Think about giving him/her a call and let us know how you are doing.
i'll be thinking of you,
Unread 05-24-2002, 07:47 AM
Hi Tina

I'll second the suggestions that you call and speak right with the doctor. I can't understand how their offices/clinics can just call and leave messages--don't they know themselves what it's like to have had cancer and whta a message can bring up? Guess not. Please come to vent any time. I will continue to for you.
Unread 05-24-2002, 04:05 PM
A little frustrated...

Hi, Tina!

Sorry that your PAP came back abnormal. I'm 15 months post-TAH and just had a PAP come back abnormal. He said it was atypical cells that were found. So not truly abnormal, but not normal either. I will have a colposcopy at the end of June to see if we can find anything.

I hope everything turns out OK for you. Absolutely call and find out what's going on. You deserve to know the lab result from the PAP before you go in for the colposcopy. It just makes it easier when you are well-informed.

Good luck!


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