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New here, having a total surgical hysterectomy... New here, having a total surgical hysterectomy...

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Unread 05-30-2002, 12:28 PM
New here, having a total surgical hysterectomy...

I have had endometriosis since I was 13 years old. I just can not take the pain anymore. I went to see my doctor to see about a vaginal hysterectomy so they gave me a laprascopy to see what was going on. They found that my bowel is attached to my uterus and that I have many cysts. So....the vaginal way is out. I have to have abdominal surgery next month. I am so nervous. I had a tubular pregnancy 15 years ago and had the same "cut". It was quite a recoup period. But now I have 3 children, one is a baby, and I am so nervous about the recoup period. I am also nervous about having to go on hormones.
Has anyone been in the same situation?
Thank you so much for your support :-)
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Unread 05-30-2002, 01:13 PM

Hi Ginny! While I can't tell you anything about what is going to happen, I can tell you that we are in a similar boat. I'm going in for a BSO LAVH in July and am anxious to have it over with. The girls here have been marvelous in answering some of my fears. (Mainly am I doing the right thing)! But, you'll find a whole lot of support here. So, from now til then, I'll be thinking of you and praying for ya! Blessings, janet
Unread 05-30-2002, 01:18 PM
New here, having a total surgical hysterectomy...

I haven't been through exactly the same thing as you, but I just wanted to come here and give you a hug. I did have adhesions that were caused from c-sections that had to be removed. Before going in, the dr thought it was endo based on my symptoms. I felt so much better after having all that removed and the recovery period. Please take care of yourself as your dr orders so that you can heal right and feel better than you have in years.
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Unread 05-30-2002, 01:19 PM
New here, having a total surgical hysterectomy...

Hi Ginny!

I am having a TAH/BSO June 4th. I've never been cut before so I am a bit nervous. I suffer from severe endometriosis and adenomyosis and my Dr. says he can't put me on hormones because it will increase the risk of the endo coming back... you should check that out with your dr.

I don't have small children, but my DD is not the compassionate, caring type. My DH is going back to work the day after my surgery, so I will pretty much be on my own... except for my dog!

I'm in so much pain right now with my FINAL period that the recovery period is looking pretty good right now! You will get all the support you need from this website.

Good luck! I'll post my recovery as soon as I can.

Unread 05-31-2002, 01:25 AM
New here, having a total surgical hysterectomy...

Hi Ginny
I just wonder why a vaginal or laparoscopic surgery should be 'out' because of your cysts and endo. I have heavy adhesions (meaning parts stuck to each other like you) from PID, an 8cm cyst and a fibroid and all of this will be treated laparoscopically. Especially for endo they often do not do open surgery anymore in a lot of places. If you feel comfortable with the choice the doctor made for you great, but otherwise you could get another opinion, I went to 3 specialists with all my results, including the diagnostic lap. report and took it from there. It what quiet amazing how differently they judged what should happen with me. In the end I made my own decision and now I'm waiting to find out if I judged well for myself... hugs to you
Unread 05-31-2002, 05:18 AM
New here, having a total surgical hysterectomy...

Hiya Ginny, welcome to Sanity City

I don't have children, so I can't comment on the c-section comparison...all I can do is wish you the bestest of luck, and offer you some hugs and kind thoughts

Keep us posted as to what's happening - and make sure you read as much as you can about your condition, and your options!

Unread 05-31-2002, 08:26 AM
New here, having a total surgical hysterectomy...

Hi Ginny,

I too am new here and I have endometriosis. Not a fun thing to have to deal with especially in the beginning and doctors tell you and your mother the pain is all your head and the bleeding and other symptoms are normal! Anyways, you wondered if anyone else was in the same situation. Yes I am!
My doctor did a lap on me 18 months ago, my bowels were glued to my left side of my uterus and the back of my uterus. I had several endometriomas and cysts on my one ovary. She was able to do the surgery and I had no problems for about 14 months. Well I saw her a few weeks ago and boy the endo is back, right along with all the same symptoms as before. We discussed my options, and I decided on a hysterectomy. She is doing a hysterectomy with removal of my remaining ovary. She feels it is not functioning like it should. My surgery will be abdominal surgery so she can get all the endo, adhesion scar tissue and untie my bowels ect from my uterus. As she has no way to know what I look like till she gets in there, and she has told me abdominal surgery will give better opportunity for her to make sure she sees everything and gets everything. Hope that makes sense. I am thinking that the recovery period won't be any worse than my two c-sections I have had. I hope and pray!
I too am nervous about the HRT's as you read differing opinions on using them for women with Endo.
Are your two older children old enough to help out? What about your DH. What about friends and family helping you out after your surgery? If people offer to help take them up on it. You will need it.
I don't know if this will help you or not, but I hope I have a little. Hang in there and I wish you luck and painfree days with your surgery.

Unread 05-31-2002, 09:48 AM
Answers from the other side.

Ginny: First of all . I was in the same boat as you before my surgery. Since mine was potentially a cancer surgery, and I wanted to keep my cervix, the abdominal route was what we finally decided on. And, in your case, here is (possibly) why:

The abdominal approach gives the drs. much more visibility, especially if there are potential bowel issues (as I had). It takes a lot of experience with the laparascope to get at adhesions that may be between your uterus and your bowel/rectal area (known as the cul-de-sac). I had an ectopic pregnancy too in that area, so lots of adhesions remained. And, although you may go in with the expectation of the laparascopic approach, you may still have to sign a consent for abdominal surgery in case they get in and find that things are more involved than they had anticipated. Also, if your surgery is for endo, the laparascopic approach may keep them from finding and obliterating all of it.

As far as HRT, most docs will tell you tro try to do without estrogen for a period of time, ranging from weeks to months, to give the endo time to die out. That being said, you can still take progesterones to help with symptoms. You may also be able to use estrogen cream or a ring to help with the issues of vaginal dryness, etc. I've actually been pleasantly surprised at my lack of real symptoms. My doctor explained that many women who have endometriosis actually have their natural hormones off balance on the estrogen side.

As far as recuperation, how old are your children? Even five-year-olds can help get things for you and set the table, etc. Lifting the baby will be an issue, as lifting is out for at least the first few weeks. I hope, for your sake, that your DH is able/willing/supportive. My household is one in which self-sufficiency is valued above all else, and, although emotional support has been there, the physical support sometimes hasn't. OTOH, my recovery seems (so far) to be rapid and uneventful, in part because I was active before. If you've got three young kids, you're probably used to being on your feet much of the time too!

Teach DH to do laundry, try to find daycare for at least part of the day so you can nap, and GOOD LUCK!

I hope, like so many of us, you'll find you feel so much better with the adhesions/cysts/offending organs gone that the post-op pain will be nothing, as it signifies the end of the pain road.

Feel free to e-mail, if you wish...

Unread 05-31-2002, 09:51 AM
Thank you guys!

My kids are 2 months, 9 and 11, and my hubby is a great help around the house. I am scared about being laid up, but my family is so terrific, and my mom lives down the street and will be a great help around the house :-)
They dont want to do a vaginal because my bowel is attached to my uterus. They want to do surgery to be able to "see" everything and make sure they get it all out. I also have a few very large cysts that need to come out as well.
The dr. is also going to do a bladder tack while he is in there as I have incontinence.
I have heard that going on HRT afterwards might not be in my better interest as it might aggrivate the endo if there are any cells left.
I am scared, but so exited to not have to deal with the problems anymore.
Thank you guys for all of your support :-)
Unread 05-31-2002, 12:49 PM
New here, having a total surgical hysterectomy...

Hi there!
I am two weeks post TAH for adhesions and can give you some insight in to the recovery process. I also had 2 c-sections, and found the recovery period to be a bit more difficult with the TAH. I needed to have someone there around the clock for the first two days ( I had nausea, which colored everything, so if you don't it will be much easier!) My husband was Johnny-on-the-spot with meds and water, as well as things to soothe my stomach. I did need him to help me up to the restroom for about two full days and nights. If you are free from nausea, the pain meds will be a great help, just be sure to take the next dose BEFORE the last one wears off. My kids are 5 and 10, and I prepared them for how different the household would be for a few weeks and they have been great. An infant would be different though, you will need someone to do ALL the lifting for a few weeks. I would start now with a list for all your helpers, as you will think of things every day. (its a mom thing!) Also, I had a calendar with a whole page for each day for my husband, beginning the day of surgery and lasting about ten days. I constantly thought of things to add to it, and I felt much better knowing he had everything spelled out for him. Small obscure things popped in my head at weird times and would hop up and write them down! He did great, in spite of the fact that he has absolutely nothing to do with the running of the household. It was a great lesson for him! You will NOT be able to putter around the house for the first two days home, so be sure you have a plan for every detail so you can relax and heal. I am 16 days post-op and am doing most of my chores that don't require lifting, but I still can only do a little at a time without resting. The process is slow, slow, slow. It is a very trying time, but its over in a flash and you'll be glad you went through with it. A few tips: Be sure to eat lightly for two days before surgery, and when you get home begin eating high fiber cereal and maybe some prune juice, as well as lots of water. If your system is "full" you will be miserable as they manipulate your bowel during surgery and it acts a little traumatized for a few weeks. Be careful of meat and heavy foods, especially anything on the BRAT diet (bananas, rice, applesauce, toast). YOu'll be glad you did. Good luck, you'll do just fine. As for the household, preparation is the key!

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