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New to all of this! New to all of this!

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  #1  
Unread 06-25-2002, 01:25 AM
New to all of this!

I am Carole. I am 31 years old. I live in So. CA. I just found out last Thursday that I have invasive cervical cancer. I don't know what stage. The news came at me so fast I did not hear anything the doctor said to me after the announcement. Let's just hope he didn't mention I also won the lottery!
I am not too sure about anything at the moment, as the appointment happened so fast and I was there alone expecting him to say "I'll see ya in 4 months." I know he wants to do a hysterectomy within the next couple weeks. He is going over the lab results because it may need to be a radical.
I am not sure what I am looking for here on this site as I am writting this. I have never posted on a message board. I am a bit lost for words. Which never happens!
I am a single parent of 3 little ones 7, 9 and 11. I am lucky enough to be able to attend college full-time. I WILL become an RN. Over the past 2 years I completed all the prerequisites to get into RN school. I am on a 6 month waiting list to get in...so I guess this is a good time to get sick. LOL. I want to work for hospice so I think there is an underlining reason why I am encountering this. I am looking at this as "This can only make my hands better healers."
Overwhelmed...getting there. Depressed...no. Upset...no. Confused...yes. Humor in place...always! Shocked...HELL YES!
I will be talking to the doctor tomorrow and I am sure I will have more information. All my schooling left my brain at the last visit! I missed his call today...I was so upset. I guess all one can do is take it day by day...I believe strongly in the power of a smile and that helps me a lot.

I am worried about the recovery as I have 3 little ones and not very much help.

Please Take Care and Make a Good Day for Yourself!
Carole
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  #2  
Unread 06-25-2002, 03:31 AM
New to all of this!

s Carole

I am rushing out the door to work, I promise to write more later. But from an RN to a future RN, the most important thing you can do right now is consult with a gyn oncology surgeon. These are the docs best equipped for gyn cancer surgery. I cannot stress this enough.

You are in my thoughts and prayers. You sound like one incredible lady!!!

karenann
  #3  
Unread 06-25-2002, 05:07 AM
Yes, Please Consult a GYN/ONC

I didn't even know they existed so didn't have one for my surgery--wasn't told about them at all. This can be critical! The gyn/onc is specially trained for gynecological cancers and is your best and safest way to go. Here's a er and a big
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  #4  
Unread 06-25-2002, 07:13 AM
New to all of this!

{{Carole}}

Ditto what the other gals have said. I consulted with a Gyn/Oncologist prior to my surgery and he then ended up being my primary surgeon during my surgery. Not all are surgeons but most all will be there during the surgery itself, and since this is their specialty, know "exactly" what to look for.

One thing you might do is gather as much information as you can, bring a list of questions that you may have along with either someone to go with you if possible or maybe a recorder. Its very hard to "hear" everything that's said and two sets of ears are better than one.

I hope and pray that this was found early and will be easily treated. Please keep us posted on how things are going when you can. You sound like you have a great attitude, you go girl!

{{hugs}}

Vicki
  #5  
Unread 06-25-2002, 10:58 AM
New to all of this!

Hi Carole,

Sorry to hear of your news. I was in your same situation back in March of this year, and I don't think I heard anything else after the words, "invasive cervical cancer" either. I have/had Stage 1b cervical cancer.

I had a radical hysterectomy with lymph node dissection as well as tissue dissection from the (bladder) ureters on 04/03/02. My OB/GYN sent me to a GYN oncologist, who performed my surgery, but my own OB/GYN assisted in the procedure. I was operated on a Wednesday and came home on Saturday with a Foley catheter, which was in for one week. Pain control was not an issue for me...stayed on Percocet and Motrin for about a week, then occasional Motrin, but I was totally exhausted. I did find that walking slowly and doing a little more each day helped to strengthen me. Here I am, 11 weeks (I think!) later and I'm back to normal. On HRT (premarin) and calcium with D and multivitamin. No spread of cancer to the lymph nodes, so I do not need chemo or radiation therapy. Cure rate is in the high 90% I'm told. I go back every 3 months for paps of the vaginal wall, and a rectal exam (ugh...) each time too.

Writing in a hurry...my little one wants to go swimming...I have a 7 year old daughter (who has had 16 operations) and a 14 year old son. My 7 year old was more than happy to be my nurse at home. Definitely get your older kids to do the dishes, vaccuming, heating up meals....for a few weeks. My 14 year old did the laundry sometimes (when my husband went back to work after taking off two weeks to help me)....the kids can definitely help out at those ages!!

Take care. A big to you.
  #6  
Unread 06-25-2002, 03:57 PM
New to all of this!

HI CAROLE,
I ALSO AGREE WITH THE OTHERS, AN ONOC/GYNE IS THE WAY TO GO. THEY ARE SPECIALISTS IN CANCER AND CAN TELL YOU AND DO A WHOLE LOT MORE THAN A REGULAR GYNE.
SORRY ABOUT YOUR NEWS. HAVE FAITH, AND SEE THE ONOCOLOGIST GYNE PLEASE. S
POSITIVE THOUGHTS AND PRAYERS.
  #7  
Unread 06-26-2002, 12:52 AM
New to all of this!

Boy, you sure seem to be handling it better than I did, but as I've said before, there's no 'right' or 'wrong' way to deal with having cancer. The waiting is difinately one of the hardest, if not the hardest, thing to deal with. I'm hoping that it will be at an early stage and operable. I was 31 as well when I heard the doctor say I had cancer. I have no idea what he said after that either. In fact, I think we can all relate to that one!! "What?!? I have cancer???__________________________________________________"
Well you definately came to the right place. I only wish that I knew about this site before my surgery, too. Regardless, the women here are so wonderful and it helps so much to know that there are others that you can talk to that can truly relate. Let us know what happens. I'll be praying for you!
  #8  
Unread 06-26-2002, 05:23 AM
New to all of this!

{{{Carole}}}

Just adding my 's to those above. I'm sure you are very shocked by the news. I think all of us were. You sound very upbeat though, and that's a valuable asset to have.

Stay in close contact with your doc, and write down every question you have as you think of it. You'll want it in writing when you talk to your doc because as you get answers to some questions you'll lose track of some of the other questions you have.

Good luck, Carole! Let us know how you are doing.

  #9  
Unread 06-26-2002, 05:22 PM
New to all of this!

Cervical cancer when caught early is very curable. I had a TVH for cervical cancer 7 months ago. It was very early and I did not need any further treatment. My oncologist told me that the chance of reoccurance is over 99%. I was only 35 when diagnosed. If they know that it is cancer they usually will do a radical. Many women with early stage cervical cancers can keep their ovaries. I did.

-Denise
  #10  
Unread 06-27-2002, 09:10 AM
New to all of this!

Carole, adding another prayer here. I have kiddos about the same ages as yours (11, 9, 6, and 2), and I'm putting my surgery off until September when they're all (but one) back in school. I have DH to help me, thankfully.

But I agree with everyone else on the gyn oncologist.

And do you have friends to whom you might be able to farm out the kids for a week? Or could your mom come and help? A lady from church or work or school? Someone else's mom? Just trying to brainstorm with you.

I was in shock when I got my diagnosis as well. It actually came after my 6 weeks post-partum checkup with my last baby. So I was dealing with post-pregnancy brain on top of the shock. I took my mom to my gyn oncologyst appointments with me. Her memory worked better than mine did. But if she hadn't gone, I would have taken a tape recorder with me.

Best wishes to you. And how GREAT on your schooling!
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