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Unread 06-28-2002, 12:35 PM

I haven't posted for some time so if this is in the wrong place someone can move this message.
I have just found out that taking the drug Danazol for enodometriosis makes you 3 times more at risk for developing Ovarian cancer. I have been on this drug for over a year.
I am a wreak and don't want anyone else to not be told about how dangerous this drug is. ( i wasn't informed) even though I constantly asked if there were any long term side effects I should be concerned with.
The information I have comes from the webmd.com site under Endometriosis Treatment Danger. I also received information from the University of Pittsburgh Medical Center .
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Unread 06-30-2002, 10:55 PM

HELLO! Happy to see you back! We missed you! I am sorry, but I don't know anything about your medicine. Have you asked your Dr.? Maybe you can weigh out the benefits versus the risks. Is this drug helping you? Maybe write down your questions and bring it to your Dr. with you. Perhaps the Dr. can shed some light on the benefits. Good luck to you. and
Unread 07-01-2002, 03:05 AM

Dear baf:

I find this very interesting about Danazol. Two and one half years ago I was going to a different gyn from the one who actually performed my surgery (TAH/BSO). The first one prescribed Danazol for what he thought was endo (no lap or anything done, he just highly suspected that I had it.) I decided not to take it, rather get a second opinion. It was also very expensive, even with a drug plan and the side effects I was warned of were enough to make me seek a second opinion.

I was referred to the second gyno (after I told my GP that I was not happy with how the first gyno treated me with such disregard). The second gyno, on my initial visit with him, just shook his head about being prescribed such a potent drup without have a confirmed case of endo.

Anyways to make a long story short, the seond gyno performed the TAH/BSO, found no endo, but a rather severe case of adeno and fybroids and bowel adhesions.

I feel badly for you now that this revelation has come forward about this drug. I just seems to me that sometimes some doctors prescribe anything just to get you out the door!!!
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Unread 07-06-2002, 08:29 PM

Razorsgirl, about what your said on prescribing anything to get you out the door..well, in my case I think you hit the nail on the head. Everyone of the doctors I have saw 3 are reluctant to doing any type of surgery on me and would rather me stay on medication until I come to the age that they think I will have started menopause. I went to see my primary doctor last week and he was absolutely no help whatsoever.
One lady wrote to me and mentioned that she was on danazol only 3 months and is now suffering from complete liver failure, that's pretty scary.
I just want other ladies to not settle with the answers their doctors give them, to keep looking into the medications they are on, because there are always new testing and results being found. We need to always ask and ask again if there are any new findings or reports on the medication they have prescribed for us. The internet is a wonderful search tool and if your find anything at all that concerns you about your medication print if off and show your doctor. Make at least 2 copies and keep one for yourself and leave the other with your doctor to research.
It is after all OUR body and our life.

Take care all of you, God bless.

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