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New to List; Pathology report in New to List; Pathology report in

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  #1  
Unread 07-03-2002, 02:00 PM
New to List; Pathology report in

Hello Hyster Sisters!

I had my surgery on Friday for abnormal bleeding.
I needed a biopsy and due to large fibroids, I
had to have surgery (abdominal). I elected to
have everything removed since I am 53 and in
menapause.

Anyway, it took severy months to get a second
opinions, third opinions whether to have surgery
or if there were other alternative ways to get
a biopsy. I didn't expect to find cancer of the
uterus (stage one) eventhough I knew it was a
possibility; I didn't think I had it. The doctor
told me only 4% of women in menapause with abnormal
bleeding get uterine cancer.

Now the pathology report is in and I had cancer.
Hopefully it totally gone. I elected to have everything (uterus, ovaries, fibroids, etc,) removed. But I was depressed hearing the results.

Is there some further treatment for stage one
uterine cancer that I should be considering
once I recuperate from the hysterectomy? Chemo?
Radiation? I am going to start reading up on
it. I don't feel like it right now. I think I'm
going to take a walk and compose myself if I
can.

How reliable are path. reports anyway?
Feeling down,

Kelly in LA
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  #2  
Unread 07-03-2002, 02:38 PM
Hi Kelly

Big to you. Was your surgery done by a gynecological oncologist? Have you had a consult with one? The GYN/ONC would be the ideal doctor to have a consult with before you make any decisions. He/She will need reports, slides, etc. to work with. I don't know about uterine cancer; maybe some of the others here do. But those GYN/ONC doctors are the experts in this area.
  #3  
Unread 07-03-2002, 05:56 PM
New to List; Pathology report in

s Kelly

Ditto Margaret's advice. She and I are both ovarian cancer survivors, but I am sure some of the uterine gals will be along.
Just take one day at a time as you continue your recovery.
Best wishes.


karenann
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  #4  
Unread 07-03-2002, 06:03 PM
New to List; Uterine Cancer

Dear Margaret,

I really appreciate your response to my message
today. I'm feeling alone right now since my
closest relatives are in other states.

My surgeon was a regular gynecologist, but he
informed me today over the phone that I will
be seeing a specialist. He said that removal
of the uterus and the other organs is the
"standard" treatment for stage one uterine
cancer. So we have done that surgery on Friday
of last week.

You're right. I need to see a specialist or
oncologist in uterine cancer. I will probably
go over to UCLA Medical Center; I live here in
Los Angeles. I was expecting to get breast
cancer and not uterine cancer; so this caught
me by surprise.

This list has been very helpful to me; especially
to talk with other women in similar situations.
I'm not sure family members can understand; but
they try to be supportive. I am estranged from
my immediate family and have been for several years. I suppose I will have to tell them eventually. My father has Alzheimer's disease.
He may not know me now. His second wife and I
do not get along. Oh well. I won't burden you
with this.

Thanks again for your sound advice. And keep in
touch.

Love,
Kelly in LA
  #5  
Unread 07-03-2002, 06:40 PM
New to List; Pathology report in

HI KELLY,
I HAD ENDOMETRIAL CANCER WHICH IS THE SAME AS UTERINE. THAT'S WHAT I UNDERSTAND UPON READING ABOUT IT.

I HAD STAGE 1 ALSO AND MY HYST WAS ALL I NEEDED. THERE WAS NO OTHER TREATMENT AS THE UTERINE LINING WAS NOT
EVEN 1/2 CANCEROUS. IT DID NOT GO BEYOND THE LINING.
THIS KIND OF CANCER IS VERY SLOW GROWING AND IS CONTAINED TO THE UTERUS FOR ALONG TIME.
ASK YOUR ONOC/GYNE. I AM ALMOST SURE HE/SHE WILL NOT REQUIRE YOU TO HAVE ANY FURTHER TREATMENT.
YOU MUST FOLLOW UP WITH PAPS EVERY 3 TO 6 MONTHS DEPENDING ON YOUR DOCTOR.
RELAX, YOUR O.K. NOW!!!
  #6  
Unread 07-04-2002, 09:31 AM
New to List; Pathology report in

Kelly:

I have survived two surgeries for uterine cancer (1/30/02 and 2/15/02) and mine was diagnosed as a rare uterine sarcoma. Went in for a hysterectomy for a large fibroid and during biopsy they discovered the sarcoma. Had another surgery two weeks later to check lymph nodes and other tissues to make sure they got it all. I had six weeks of follow up radiation after I went back to work and I tolerated it very well. Still have some fatigue now and then, but I'm very fortunate to be almost back to normal. I'm 60 and was not expecting cancer at all.

I know you must be worried, but hang in there! If they do decide you need further treatment, go for it. The radiation really isn't bad - they have all kinds of meds to help with nausea, bowel problems,etc. I found that I met so many people in worse shape than I was and they were so friendly and inspirational. A friend who had cancer before I did said to accept your condition as a new journey. You will be surprised at the people you meet and the support you get from unexpected places and she was right.

I found that the more research I did about my condition, the more respect the doctors had for me and worked with me. Be sure and ask them all your questions and talk to the nurses. They are really very helpful. This site is great, too, for getting you through the post-op problems if you have any.

I found that having a positive attitude and convincing myself that I can beat this was the most helpful thing in getting support from my doctors and my family and friends. I have a cancer that is known to reoccur, but my oncologist said if it does, we'll fight that battle when it happens, but to enjoy my new health. I'm doing that as best I can.

Good luck to you and keep in touch. We are all here for you.

SuziQ
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