I would appreciate any advice (long)

I can second the recommendation for Dr. Abu-Rustum. He did my surgery 6/14. He is very open and approachable. Takes the time to answer my questions now mater how silly. Even called me back personally in the middle of the night when the Dr. on-call was unavailable. That gets big points in my book!

and what did your dr suggest? I have severe squamous dysplasia/carcinoma-in-situ, unclear margins, with endocervical gland involvement. Thanks for the feedback.

Well, I've actually had 7 cryos and 2 LEEPS. My most recent LEEP (in April) was squamous carcinoma-in-situ. I also had unclear margins but no endocervical gland involvement. When my results came back, the Dr. offered me a choice of cone (with hyster most likely following) or hyster. I decided that I was through "messing around." Went straight for the surgery. And am I ever glad I did. By the time of my surgery 6/14, the CIS had progressed to stage 1A2 squamous cell carcinoma.

Ultimately, you have to decide where your comfort level is. I was not comfortable having another procedure just to end up at the same place (hyster). I was also not comfortable having the dysplasia recur time after time.

Hi,
I had AIS. It actually turned out to be stage 1A cancer. They did not know that until they did the hyster. I had the hyster done by my regular gyn. I would not recommend that. Although it worked out for me, it was a mistake. When I went in they thought that it was still pre-cancer.

I thought that you had adeno because you mentioned glandular involvement.

If you are nervous then don't wait. I wish I knew someone in Philadelphia. I went to U of P so I know the area well. I do have a good friend who lives in Wynnewood. I'll ask her if she knows anyone.

Is having children an issue for you? I don't think I saw your age. Some oncologists see young patients and fail to push the hyster because of fertility.

Anyway, it's worth the 2 hour trip to NY for your peace of mind.

-Denise