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  #1  
Unread 07-03-2002, 05:06 PM
No Choice :(

I *have* to have a hysterectomy at the end of July...even though I have cried daily over this, dread every part of it, and don't want to go thru it. I have multiple fibroids, enlarged uterus, and an ovarian cyst. Have had ultrasounds, vaginal and abdominal. Had the CA125 test...it came back at 82...my Dr said it could be elevated just due to the fibroids or the cyst, she doesn't think it's cancer, but can't be sure. Also told since I'm 45 and premeno, the test isn't that accurate as a screening test?? Although there is no history of ovarian/breast cancer in my family, my mom died of pancreatic cancer and my dad of prostate cancer, so I feel I kind of have no choice but to get this out of me and get it checked out. Is there a way to diagnose ovarian cancer w/o a complete hysterectomy? Or...sigh...am I just prolonging the inevitable??
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  #2  
Unread 07-03-2002, 05:50 PM
No Choice :(

s Donna

Sounds to me like you need to seek a second opinion from a gyn oncology surgeon. See what he/she thinks. Sometimes people can get a biopsy from a laproscope and then proceed from there if further surgery is necessary. If cancer is found, the gyn onc surgeon is the expert that needs to be present for your surgery and staging.
Ca 125s are not always accurate markers that's for sure.
If you do decide to proceed with the hysterectomy, please make sure you check out the other forums on this site. They will be an invaluable help to you. I was 49 when I had the radical hyster. Not a fun time, that's for sure. But definitely doable when the need is there.
Hope you keep in touch with us.

karenann
  #3  
Unread 07-04-2002, 12:52 AM
No Choice :(

Definately get a second opinion like Karenann said!!!! It is your body, and there are many other diagnostic tools other then a hysterectomy. Please post here on hystersisters anytime you need to vent! Let us know when you have another appointment for a second opinion!!! Take care! ssss
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  #4  
Unread 07-04-2002, 05:09 AM
GYN/ONC is a Must

Please get a second opinion from a GYN/ONC. If there is any cancer there, they are the experts and the best at working with it. CA125 is not all that reliable as a pre-diagnosis marker--it's an indication but not 100% trustworthy. The cyst (most are benign) and the fibroids can elevate it as can having your period or being about to have it. The ultrasounds are another part of the picture literally--they should be able to tell the difference between a fluid filled cyst and one with solid matter (more serious). See if you can't get in to the GYN/ONC quickly for a consult--explain your situation when you call. Also, if you do then go ahead with the hysterectomy, be sure to visit the pre-op board--I wish I had seen it before mine--it's very helpful and answers the woman-to-woman questions the doctors don't always know to tell you.
  #5  
Unread 07-04-2002, 08:11 AM
No Choice :(

I agree with everyone else in that you should get a second opinion. My ovarian cancer was diagnosed through a laparotomy, not a CA-125. And I didn't have a hysterectomy right away either so you still might have lots of choices. Don't get too freaked out yet. What I've also noticed about ovarian cancer is that it doesn't always follow a hereditary pattern. Just because both of your parents had cancer doesn't mean that you will too, which is good news! I would definitely be more aware of it but I wouldn't get too upset yet. No one on either side of my family has ever had cancer and I had ovarian and cervical. You never know. But get that second opinion as soon as you can to set your mind at rest.
Good luck!

Debbie

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