Uterine Sarcoma

Does anyone out there know anyone who has been treated for uterine sarcoma (stage 1)? I've had two surgeries and my first checkup and CT scan went well. I'm feeling great but would really like to talk to someone with the same diagnosis. I have read all of 4Margie's posts, but her cancer is different from mine. I'm lucky to be doing so well and hope that I won't have a reoccurence, but I'm a fighter and I want to be prepared for any eventuality.

Thanks to all of you who posted information about your pre and post hysterectomy experiences. They were a great help for me before and after my surgeries.

SuziQ

Hi Suzi!!
I am bumping your post back up to the top for you. There are a few ladies who have been through Stage 1 Uterine and I am sure they will be along.
I can't help with this, but I do know that often with a stage 1 diagnosis the surgery takes care of it all!!
Best of luck!!
Hugs
Maria

I had surgery Nov. 26, 2001. The gyn told me it was only fibroids and nothing to worry about. About 3 weeks later he told me the pathology report came back that I had leiomyosarcoma (uterine sarcoma). He removed my uterus and ovaries but left my cervix. One fibroid was attached to my cervix and where he cut it off there was no clear cancer free tissue. I don't know the stage of my cancer. They never told me. He sent me to a cancer gyn specialist and he sent me for 33 radiation treatments. I finished those around the latter part of March this year. I had a CT Scan then (before starting the treatments) and it was clear but I go back July 30th for another one. I have asked repeatedly why he didn't remove my cervix after finding the fibroid (tumor attached to it) but he said he thought it was only a fibroid and the cervix holds the bladder up. I also asked why he didn't test the stomach washings after the surgery but he thought there was no need to since he thought it was only fibroids. Uterine sarcoma is very rare and it was never suspected.

I had uterine sarcoma. but it may be different than yours. Endometrial stromal sarcoma. (low grade) I'll be glad to exchange information.
SusanL

I guess someone deleted my post. As I told you in my other post, I would be writing to you with a few links and info. on sarcoma. There is a hostess that was treated for uterine sarcoma. So, I'll pass on the information. Is your sarcoma in the connective tissue of your uterus? OR is it the sarcoma that resembles a fibroid? That is the sarcoma that is more rare. I do know now that it has a difficult cure rate. I hope you have the connective tissue sarcoma, if you have to have one! My ss and prayers to you.

There is a link that was passed along to me. It is http://www.nlm.nih.gov/medicineplus/uterinecancer.html and

http://webmd.lycos.com/content/article/1680.52017

Good luck with your research and drop me a line anytime.