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complex hyperplasia with atypia complex hyperplasia with atypia

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  #11  
Unread 07-12-2002, 07:25 PM
ATYPICAL Hyperplasia

I also had Complex Endometrial Atypical Hyperplasia. My first symptoms I assume were the heavy periods which started in mid 1999. At that time, my Primary Care Physician ("PCP") recommended that, if they continue, it would probably be a good idea to have a D&C to see what was going on. He thought it was the start of menopause, but wanted to make sure I was ok. I respect him dearly for that concern. Near the end of 1999, I had a period which started normal, but became a long one--and also had clotting. The clotting (hemorrhaging in my opinion) began right after Christmas. I called my PCP again and he prescribed Provera for 10 days and then for me to come to his office. If it didn't get better, I was to call his office. When I went in to see him, he again recommended the D&C. I found a Gyn to examine me. She first recommended Ultrasound examinations--both types--abdominal and transvaginal. Then about a month later, she did a D&C with Hysteroscopy. A week after that, she told me I had "complex atypical endometrial hyperplasia" and needed a hysterectomy. I wanted to make sure that this surgery was absolutely necessary so I got another opinion. The second doctor said he recommended it because of the word "atypical". The medical profession still does not know how long it takes to change to cancer. This is why my second doc recommended the surgery. I had surgery a month later -- June 2nd, 2000. By that time, my hyperplasia had turned to cancer, but not enough to cause me to need chemo. I also got an unexpected diagnosis of ovarian cancer, which also turned out to be early stage and no chemo was necessary.
Research if you wish, but don't wait too long before you make your decision.
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  #12  
Unread 07-14-2002, 02:37 AM
complex hyperplasia with atypia

Hi Judy,

I had a D&C in 1994 and subsequently told I had hyperplasia. I was given no follow-up treatment, nor was I told it could sometimes lead on to cancer.

I finally found out I had endometrial cancer this February, but I was told that it could have been present for some time (even though it was fortunately still only in the lining of the womb & not in the uterine wall).

I find the following link about hyperplasia to be the most helpful:-

http://my.webmd.com/content/article/1680.51528

The most inportant point, in my opinion, is that anyone who is diagnosed with hyperplasia and opts not to have a hysterectomy MUST be given follow-up checks on their hormone levels!!!

Good luck to you in making the right decision.

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