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How did you know it was cancer????? How did you know it was cancer?????

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Unread 07-13-2002, 05:53 PM
How did you know it was cancer?????

My doctor is basing my TAH BSO on my 8cm sepeated cyst and a pretty much useless ca125 test. Didn't your doctors do a CT scan or other bloodwork???
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Unread 07-13-2002, 06:01 PM's the novel...

How did I know it was cancer? I woke up after the surgery back in the room (a nice private one halfway from the nurse's station so it was pretty quiet) and I think my primary care doctor must've been shouting at me to wake me up because I was out--remember nothing after telling the doctor that the operating table was pretty narrow and I had that falling-off feeling. My doctor said, "They found ovarian cancer. A few years ago I'd have said 'go home and wind up your affairs' but now they have better treatments." That was it. Actually, I knew this was the diagnosis going in. I did NOT know my CA125 numbers (I hadn't heard of a CA125 until the GYN I was referred to based on an ultrasound ordered by primary care doctor for pain mentioned it--heck, I never heard of the term gyn/onc until afterward) going in--162. I knew that solid masses were on the ultrasound and that did indicate cancer possibilities. I had a CT scan and was not told the results of that (no one called and said it showed areas of spread) so I spent 90% of my time looking up "hysterectomy" and about 10% looking up ovarian cancer. Should've been the other way around. I look at it this way--in a real sense, it worked very well for me--I assumed they were jumping the gun and over-diagnosing and it would be junk in the tumors and I'd be recovered in six weeks and fine--so I didn't panic, didn't do the whole "oh my gosh I have cancer" thing, etc. beforehand. Yes, I should've been referred to a gyn/onc and there are ones here--but the gyn has a good reputation and said he'd never do it if he didn't think he'd do as well as a gyn/onc--and yes, I should've been told CA125 and CT scan and what was coming... As it was, the primary doctor said, "you have ovarian cancer..." and I went "oh" and went back to sleep. And THAT leads to a whole other story...
Unread 07-13-2002, 06:05 PM
Forgot to Add

When I was taking my pre-op paperwork around from primary doctor (did the physical) to the lab (blood) to xray (chest--gee, they saw some fluid and no one told me), to EKG I noted on there the tentative diagnosis of ovarian cancer. That's when I knew the first time that's what they thought.

My advice to anyone is: ASK questions; don't wait for THEM to contact YOU; ASK them to phone or let you know results; ASK why a test is being done.

Boy--was I ever dumb!
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Unread 07-13-2002, 08:43 PM
How did you know it was cancer?????

s Kathy

I too got calmer as the day of surgery approached. I remember telling myself: Let go, let God! It is also what I repeated in my mind as they gave me anesthesia.
There is just no sure way to know until they do the surgery. I had a 12cm mass on each ovary. My ca 125 was in the 900's. My CAT scan was normal but for the ovaries. Even with the above findings, my gyn oncology surgeon felt that the way the masses appeared on the ultrasound was not the usual presentation for ovarian cancer. But something in me knew what the outcome would be. She had asked ahead if the ovarian masses were benign, did I want her to proceed with the hysterectomy. I did. I was 49 and having longer and longer periods. The doc said if the masses were benign, the surgery would last two hours. If they were cancerous it would take much longer. I went into surgery at ten am. Next thing I remember was opening my eyes, all alone, in the recovery room, and searching for a clock. It was four pm. I remember telling myself to stay calm and relax. Next time I opened my eyes, my family was all around me and I was in my room. My first words were: I know I have cancer, but how bad is it?
It is a scary time for you, I fully understand. Hopefully your news will be much better than my own. However, you will get through this!!!! And if you need us, we will always be here for you to give hugs, advice, and just to share.
You are in my thoughts and prayers.

Unread 07-13-2002, 09:49 PM
when did ...

Thank you for sharing your experiences. You have no idea how helpful it is to me as I am working my way through the maze.

You said they found fluid. Was it on the chest x-ray or the ultrasound? I am floored that that is the way you found out, by reading it and not from your doctor.

Thank you (and Karenann) for all of your help!

Unread 07-14-2002, 05:27 AM
Oh--I forgot what the GYN said when I met him pre-op

I actually met him on a squeezed-in appointment where he said I'd need the surgery. He went though some stuff and said they'd call when, etc. and I said "could this be ovarian cancer?" and he said "I don't think so." No, they didn't even have CA125 then--but I wish he had said, "With solid tumors showing on the ultrasound, that is a possibility. The CA125 blood test is another indicator and the CT scan I'm having done will also help clarify things." I mean--that is a LOT more helpful and honest. Oh well...

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