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Doctors nurse said no more tests?? Doctors nurse said no more tests??

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Unread 07-15-2002, 04:48 PM
Doctors nurse said no more tests??

I called my gyno oncoligist today. He is on vacation od course. I told his nurse I was concerned that my elelvated ca125 test (60.2) and my sepeated cyst (8cm) on one ovary that maybe I really don't need a TAH BSO. I asked about any other test they could do like a CAT scan and uterine biopsy.
She said it wouldn't make a difference in whether he took everything out or not, they would take everything no matter what.
I asked if they took the cyst and biopsied it right then and there and it was cancer free why would they need to proceed.
My family doctor called me later and said he was no expert but he figures that they probably feel even if they take it out and biopsy right then and there, they could miss the cancer. That wouldn't be good, of course. I just kinda figured there must be SOME better indicators?? It seems to me they could take everything out, say I have no cancer, when I really did in that case.
What do you all think??? It seems to me with their logic we should all have are organs removed just in case.
a very anxious Keggy weeggy
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Unread 07-15-2002, 05:39 PM
Doctors nurse said no more tests??

s Keggy

That is really strange. Perhaps you need to wait until the gyn onc is back from vacation and request a phone conversation with him or even a visit in person. Like I said earlier, I was 49 when my ovarian masses were discovered. My gyn onc surgeon left it up to me pre op, how far she was to proceed if the ovarian masses were benign. I also believe that most of us with an ovarian mass had a CAT scan done before the surgery.
Although your family doc offered his advice, it is really far removed from his field of expertise.
Time for you to get very assertive and get those questions answered.

Unread 07-16-2002, 10:27 AM
Agreeing with Karenann

This is something to talk directly to the doctor about. In my case, I know the CT scan did show areas of spread and they could use that as a resource during the surgery. Remember, though, CT scan does not pick up very small seeding (IF there is cancer there)
and since you are using a gyn/onc, it's really his/her expertise that counts.
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Unread 07-18-2002, 01:11 AM
Doctors nurse said no more tests??

I just wanted to say I have some of the same questions you do. I read some good ideas on this in a book called Ourselves, Growing Older- a health book. They talk about modified hysterectomies. Be assertive and say what you want. It is not about being a good patient. It is about coming out of this with the best possible results. Good Luck.

Unread 07-18-2002, 08:28 PM

This is a very interesting post to me. I wish I would have known you girls before I had it all taken out!!! Sorry I have nothing more to add informational wise, but you are in my thoughts. Big sss Take care sweetie!
Unread 07-19-2002, 12:27 AM
Doctors nurse said no more tests??

If I have a malignant cancer I am going to tell them to take absolutely everything out that I can live without. I want to improve my chances of survival. But if I have a condition that is early and I think I can get away with it, I am going to try to keep a part or two.

That book I told you about says, "The threat of ovarian cancer does not justify routine removal of healthy ovaries. Ovarian cancer, while a serious disease, is relatively rare, occurring in less that 1 percent of all women. ..the risk of ovarian cancer is no higher in hysterectomized women who keep their ovaries than in women who do not undergo a hysterectomy, ...In ADVANCE of surgery, a woman should discuss with her doctor the conditions under which she CONSENTS to the removal of her ovaries...there is no evidence to date showing that the presence of cysts means an increased risk of ovarian cancer at any age."

This is for the general population and not someone with a cancer dx. remember. But I would definitey find an oncologist who will work with you more on what YOU feel is right for your body, unless they say "This is malignant. We've got to move fast." That's a different story, right?

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