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Treatment has changed AGAIN!!! Treatment has changed AGAIN!!!

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  #1  
Unread 07-21-2002, 11:43 AM
Treatment has changed AGAIN!!!

Hi everyone!!!

Well, I did go to the castle on June 17 but came out with all my girlie bits still intact!!!

Once I was under anesthesia, they determined that more of my vagina was involved than they had orignally thought. This would have meant that I would have had to have radiation afterward and, with the panniculectomy (tummy tuck) that I was having, there was a high risk of infection. So they put gold around the tumor to mark it out and then woke me up.

I will now be having radiation daily for 5 1/2 weeks followed by 2 treatments of brachytherapy.

I am VERY HOPEFUL that this will kill off the little bugger once and for all and then I can have surgery to make sure it doesn't come back!

So anyone out there who has had this treatment, any words of encouragement would be greatly appreciated!!!!!

Lynette
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  #2  
Unread 07-21-2002, 12:34 PM
Treatment has changed AGAIN!!!

HI,
I AM GLAD YOU ARE IN GOOD SPIRITS ABOUT THIS. I AM SURE YOUR DOCTORS KNOW EXACTLY WHAT THEY ARE DOING AND THE 5-1/2 WEEKS WILL GO BY QUICKLY.
HANG IN THERE,KEEP POSITIVE THOUGHTS, AND MY PRAYERS ARE WITH YOU.
ALL WILL BE FINE I AM SURE.
  #3  
Unread 07-21-2002, 01:45 PM
Treatment has changed AGAIN!!!

Lynette,

I had part of the treatment you will be undergoing -- the external radiation. I got along really well with it -- no skin burns or rashes at all. The only real problem I had was some diarhea (sp), which was to be expected, and which I was able to control with OTC meds. The "mapping" (where they determine the path of the radiation) took about 1 hour, and then each treatment was only a few minutes (maybe 5-7, including the positioning of the equipment). The did one beam in through my abdomen, one through either side of the pelvis, and one from underneath. It wasn't as bad as I had expected. Many people experience fatigue, and I did too, but I was having chemo along with the radiation, so I'm not sure whether the fatigue was from one or the other -- probably a combination.

Oh, and I also lost my hair in that area -- I hadn't expected that and it was a bit of a surprise, which is why I am mentioning it to you ahead of time. It has mostly all come back now!

Robynb has her story available on the site, and I know she also had the brachytherapy, so try to read what her experience was like.

When do you start your treatments? Keep us up to date.

Joanie
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  #4  
Unread 07-21-2002, 01:59 PM
Treatment has changed AGAIN!!!

Hi Netekay, boy this is scary stuff isnt it? but you will get through it, it may be hard sometimes but it will end. I promise.

The top part of my vagina was involved as well and I had to have a disc like piece of tissue removed and then had both external beam and brachytherapy. ~ 20 external and 17hours of the internal.

There are lots of us here who have had it and not one of us had the same side effects. Each person is different.
I lost my pubic hair ~ it has grown back and I had severe burning , no diahrrea .....but now 1 year down the track I am fine.

You will probaby have to use a vaginal dilator after treatment, ask the radiolgist about this as it is very important to use it to keep the vagina open.( for future examinations as well as sex ) it can be scarred from the radiation.

Please anytime you need me , email me :

[email protected]

I am here holding your hand and you are in my love and hugs x x x
  #5  
Unread 07-21-2002, 06:42 PM
Treatment has changed AGAIN!!!

{{{Lynette}}}

How frustrating for you to think you'd have your crown by now and you're going to have to wait again. You sound like you are in remarkably high spirits given what you are going through. Good luck as you are going through treatments. I hope it goes easily for you. Keep us posted on how you are doing. And feel free to come by anytime you need some company or just a .
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