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Adeno Carcinoma in situ
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08-03-2002, 12:28 PM
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Posts: 29
Hysterectomy: July 22nd, 2002
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Adeno Carcinoma in situ
Hello!
I have finally found the right place to post messages! I am now 30 years old and have been married for 7 years. I had AIS (adeno carcinoma in situ) of the cervix starting in 1995, I have had many LEEPS, 2 cones, and one trachelectomy (in which I traveled to Toronto for). All in hopes of getting pregnant and having my own baby. Well, This is did not happen I had a TAH on 7/22/02. What I am waiting for is my pathology reports! How long does it typically take? I have called the Cleveland CLinic many times but they state they are not ready yet. I trust my Dr. 110% but I woncer if a long wait means they found something? If anyone has had AIS can you let me know what happened to you?
THANKS!
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08-03-2002, 02:16 PM
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Posts: 279
Hysterectomy: August 6th, 2002
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Adeno Carcinoma in situ
Robin,
I don't have AIS, but can tell you the time frames for the path reports I've received or will receive. For an internal and external pelvic ultrsound, it took almost two weeks. For a uterine biopsy, it took 10 days. For the path report after my surgery, the surgeon said it will be weeks until he receives the report. Everything that's leaving is being tested. He said he sends it to a lab that takes longer, but is very thorough. At this point, I want thorough, not speed. Even after I get the results, I'll probably ask for the samples to be sent for another opinion.
Hope this helps. I'm sure some more sisters will post with additional information.
 s, Laura
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08-03-2002, 03:38 PM
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Adeno Carcinoma in situ
Hi,
I agree with Laura about getting the actual slides, (they belong to you), and taking them for a second opinion. Mine were looked at by 3 labs and came out with 2 different dxs.
May I ask, what is an internal and external ultrasound?
Thank you and good luck!
Judy
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08-03-2002, 06:24 PM
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Posts: 36
Hysterectomy: October 15th, 2001
Surgery Type: TAH
Ovaries: Kept 1 or both
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Adeno Carcinoma in situ
Hi Robin
I too had AIS my surgery was in Oct 2001, thought I'd go mad and need to be taken away by the men in white coats - ha ha he he!! while waiting for the results of the pathology. I finally got them 4 weeks later by which time I was convinced it was bad news, but thank goodness everything came back clear and the margins were clean. So was told to go forth a live a long, happy and healthy life.
I was 42 when I had the surgery and had never been able to have a child, so while the outcome was the very very best I could hope and pray for. It's been a long and painful 9 months of emotional healing the finality of not being able to have a child, along with the grief and loss the whole thing cause me. I've been on anti depressants and seeing a councellor for about 7 months. Thankfully I can see the light at the end of the tunnel now, like it or not with grief and loss it takes time to heal.
I hope you are healing well and are surrounded by loving caring people. But don't hesitate to write if you need any support or you just need to talk about how you feel.
Healing hugs
Caraj
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08-04-2002, 08:43 AM
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Posts: 454
Hysterectomy: July 13th, 2002
Surgery Type: TAH
Ovaries: Removed both
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Adeno Carcinoma in situ
I had to wait one week and 2 days for my final surgical path report. I was so relieved when the dr. called me back with the report. It only took two days to get the results from the uterine d and c biopsy and then just a little over a week for the surgical. I called to remind the dr. to call me with the results and told them I was anxious to hear my results. They were wonderful about keeping me informed as soon as they got the results. It probably helps that I live in a big city and there are labs here that do all the testing.
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08-04-2002, 08:58 PM
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HysterSister
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Posts: 639
Hysterectomy: November 16th, 2001
Surgery Type: TVH
Ovaries: Kept 1 or both
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Adeno Carcinoma in situ
It took them 10 days to get back to me with my pathology report. It was the longest 10 days of my life. I don't think that it means that the results are bad if you have not gotten them. It's just probably a slow lab.
It is always good to get them reread by another doctor. I have had most of my results read by someone else. The best pathologist for this is a woman out of Johns Hopkins. She is very well known.
-Denise
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08-05-2002, 06:26 AM
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Posts: 553
Hysterectomy: July 30th, 2002
Surgery Type: SAH
Ovaries: Kept 1 or both
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Adeno Carcinoma in situ
Golly, I must be really weird! My path report was back within 24 hours, and I had all my results at that point.
Don't know why, or what made me different .. the Castle is a large city teaching hospital, with a vast lab service of it's own..maybe that was why? I honestly don't know!
Anyhoo, that's what happened with me
 s
Tess
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08-05-2002, 08:05 AM
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Posts: 55
Hysterectomy: July 22nd, 2002
Surgery Type: TVH
Ovaries: Kept 1 or both
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I had TVH on 7/22 also for AIS!!
I had the same thing, same time frame, and same type situation as you... 29, married 4 years, no kids yet, but had to make a decision after having a LEEP and Cone already! Anyway, I went in for my follow up on 8/1 and the pathology was already back. Everything was benign, but still glad I made the decision, as the AIS would have come back, and who knows when and if they would have caught it.
Try to hang in there, I think on average it's like 10-14 days to get them back. Please let us know how it all comes out!
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08-05-2002, 03:49 PM
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Posts: 29
Hysterectomy: July 22nd, 2002
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I got my Path report!
THANK YOU to all of you!!!! I got my path report today (2 weeks post op) and everything is benign. Thank God.
However, they found a bacterial infection call Actinomyces???????? Has anyone every heard of this? I have 2 weeks worth of antibiotics to take.
Susan, kind of wild how we have so many similarities!
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08-05-2002, 04:57 PM
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HysterSister
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Posts: 629
Hysterectomy: November 12th, 2001
Surgery Type: TAH
Ovaries: Removed both
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Adeno Carcinoma in situ
COME TO THINK OF IT, MY PATH REPORT WAS IN 2 DAYS LATER. MY DOCTOR HAD IT IN HIS HANDS AND READ IT TO ME WHILE I WAS STILL IN BED. FUNNY, THE WAY SOMETHINGS ARE.
SOME HOSPITALS TAKE LONGER I GUESS!!
WELL, GLAD YOUR O.K.!! GREAT NEWS!!
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